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395684 tn?1215997724

Please Please Help, I can't take anymore!

Let me give you some background. I am 38 years old female. I had a lumbar spinal fusion in February, afterward, I started feeling better for about a month, then all of a sudden I reverted backwards to the way I used to be, in chronic lower back pain, my neuro surgeon evaluated me, did an MRI and told me the fusion process was fine and all was healing well and that he was for a loss as to why I still had the same excrutiating pain, then two months later, still with the back pain, I devoloped neck pain, the pain in the neck does not change no matter what I do, there was no injury involved. The pain has progressively gotten worse and is accompanied by the following symptoms, my head always is sweating, just my head, I am running a fever every morning but then it goes away (fever range 100 to 102). My head hurts, in the front, it is continuous and never goes away, my pupils are larger, my memory is not well, I have to urinate all the time but I can't seem to empty my bladder all the way. Some mornings my toenails are blue, but only for a while, I have sever joint pain that moves from joint to joint throughout the day. my doctor did an MRI on my head and my neck as well as blood work. The MRI was fine, the blood work came back fine except she said something was elevated (it began with a C) and indicated that there was inflamation somewhere in my body, but she doesn't know where. I asked her what to do now, she said she is trying to come up with a plan but she just doesn't know, I told her the pain is getting worse and I still have th excriciating pain in my lower back as well, she advised me to go to the ER if it worsens or I can't take it, I have been to the ER several times and they don't do anything, they tell me they don't know what it is then give me some type of narcotics and send me home. The narcotics are not working, I am still in pain, no one will help and I can't take much more, I get up every day and wish that I didn't, there seems to be no light at the end of the tunnel and I am not sure how much more I can take, please help me if you can. I have even went to the Cleveland Clinic which is one of the three top ranked hospitals in the United States, they didn't help at all. I lost my job because of missing so much, I need to get healthy so I can get to work. They have given me every kind of medication you can think of, such as the following : amytripiline, neurontin, lyrica, flexeril, valium, percocet, vicodin, oxycontin, prednisone, cymbalta, celebrex, Ibuprophen 800 mg, Motrin 800 mg, naprosyn, imitrex (no history of migraines, or even headaches), skelaxin, soma, toradol, tylenol w/codeine. Please write me as soon as you can, thank you for listening.
9 Responses
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Avatar universal
Hi
Did you ever find the help you needed?
I also suffer from severe undiagnosed head, neck, and shoulder pain.
It is like living in a nightmare and you can't wake up.
Helpful - 0
Avatar universal

The test you had that indicated you had inflammation is probably a C-Reactive Protein.

Has your physician ruled out autoimmune diseases ?
Helpful - 0
Avatar universal
Hello! ((((((((((((((((((((((HUGZ)))))))))))))))))) I was wondering if the elevated blood test was calcium or creatinine? If it's calcium, and it's elevated, it can cause horrific back and joint pain, headaches, muscle spasms, heart burn, all kinds of gastric complaints, frequent urination, kidney stones, and more...If you've had this condition for years, (and the calcium is elevated) get your PTH (parathyroid hormone) level checked...(It's pretty unusual, so Drs don't think to look for it)...(Look up Parathyroid.com)...I was diagnosed with all kinds of other things before a stand-in Dr finally brought my attention to my calcium issue...I had a huge parathyroid tumor (non cancer) that caused ALL of my illnesses...As soon as the bugger was out, (by the next morning) I had no back, neck pains or headaches...If it could be this easy for you...Good luck...My hubby experiences chronic back pain from an injury, and I know how horrible it can be...                                                                    ~MM
Helpful - 0
410943 tn?1202262442
I would see a natural doctor like a Naturopath as they have extensive knowledge more than you know.

Good Luck
Helpful - 0
Avatar universal
I am certainly not an expert on this.  However, recently I have moved to Tampa Florida and the Hotel/Condo I have been staying at for over 1 1/2 months is 1/4 mile from Laser Spine Institute located at Rocky Point in Tampa Florida. It is a well-recognized facility.   I have gotten into lenghty conversations with residents while at the Pool and I am told Laser Spine Institute is the "BEST" in the US.  I have met patients from all over the US and Canada who make the trip here to have Laser Spine procedures performed at this facility.  They are very satisfied with the outcome of their laser surgery.

I just happened to log onto this Website and thought I would share this information with you.  I am familiar with the Cleveland Clinic in Ohio (I just moved from Louisville, Ohio to Tampa FL)

I hope you find relief soon.  I suggest you contact Laser Spine Institute.
Helpful - 0
395684 tn?1215997724
Thank you for your support, I hope you too get the help you are needing, it ***** to be so ill all the time and not get any answers about what it might be what might be causing it and what will help. I have also posted on sights with no resolution, but I am hopeful and will keep trying, if you need anyone to talk too, or just yell at to relieve stress, give me a shout. Good Luck, and thanks again.
Helpful - 0
560502 tn?1215997659
I am so, so, sorry. I don't know how to help you, but i wish i could. My question isn't being answered either, and ive posted it on so many sites. I know how you feel to not get any answers. God bless you.
~Brianna
Helpful - 0
395684 tn?1215997724
Please any doctor ut there could you please try and give me a direction to go in, I can't take much more of the pain and I have no direction to go in, if one of you culd please give me some insight as to what my problem could be, something I could take with me to my doctors and say hey test for this, I would so appreciate it, please don't just ignore me.
Helpful - 0
395684 tn?1215997724
Please anyone, help me, even if you don't have all the symptoms, maybe just some, even if anyone knows what direction I should go, I would really appreciate it, these symptoms are driving me nuts, Thank you
Helpful - 0
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