I HAVE LOOKED INTO MADELUNG AND LIPOMATOSIS AND NEITHER FIT THE DESCRIPTION OF MY SYMPTOMS. AND BELIEVE ME I WILL DISCUSS THIS WITH MY DOCTOR. THANKS FOR YOUR INPUT AND I WILL LOOK AT THE WEB SITE YOU POSTED.
Hello,
Three possibilities are there for your symptoms.Firstly,it can be Lipomatosis, a hereditary condition where multiple lipomas present on the body.Second possibility is of Adiposis dolorosa (Dercum disease), a rare condition involving multiple painful lipomas, swelling, and fatigue. It is generally seen in obese, postmenopausal women.Third possibility is of
Benign symmetric lipomatosis (Madelung disease), another condition involving lipomatosis. It nearly always appears in middle-aged males after many years of alcoholism, although non-alcoholics and females can also be affected.
http://en.wikipedia.org/wiki/Lipoma
Pls discuss these possibilities with your doctor after reading the above URL.
Hope it helps.Take care and pls do keep me posted on how you are doing.
NO THE DOCS HAVE NOT MENTIONED YET BUT HAVE BEEN DOING RESEARCH AND RIGHT NOW IT IS THE ONLY THING THAT MAKES SENSE. I CAN'T GET IN TO SEE RHEUMO DOC UNTIL END OF OCT BUT HERE SHE IS VERY GOOD. WE WILL SEE. I AM A NURSE AND I WORK AROUND DOCS EVERYDAY AND THEY TO ARE PUZZLED BUT TRYING TO BE HELPFUL. I LIVE IN A SMALL TOWN SO THEY ARE NOT EXPOSED AS MUCH. WELL THANKS FOR THE RESPONSE.
i have same problem lumps in stomac and ribs.
had loads of tests still no answers.
cant realy describe pain its like pain under skin all over burning prickly stinging
driving me mad got my 3rd appointment with dastro end of sept hopefully get some answers
what stage are you upto with docs have thay mensioned dercums to you
look it up