Painful stent

[amandaphil29]

I have a urostomy because my bladder was removed due to cancer damage. the dr told me i had hydronyphrosis and put in a stint and lots of meds, i experienced this sharp pain in my lower pelvic area. really sharp pains that almost felt like contractions cause they would come and go. Finally the dr took it out and i was fine for a while then i started having back pain again and they had to put in a nyphrostomy tube for two weeks then another stint and it fell out into my urostomy bag! So another nyprhostomy tube  both times with the nyphrostomy tube i went into septic shock and was in icu with b/p of 54/26 it was very scary! now i have another stint and aGAIN THIS PAIN IS UNBEARABLE IN the same spot as both times before is this a normal pain? my urine is dark and has a lot of whitish yellow mucus stuff in it and i'm not urinating much at all! My dr keeps telling me its normal but i sure don't feel like it is i can't even get out of bed!! ugh and i'm supposed to leave this in for 6 weeks then he wants to put some kind of wire in a tube through there!! I am in soo much pain and nothing helps relieve it?

[el_em_en_oh]

I'm not trying to scare you by saying this, but I recently had a friend pass away from cancer that started in his kidney's then spread, and the first indication (that he initially ignored) was a kidney-stone'like pain. He dismissed it as being a kidney-stone passing, but after no stone passed and 2 months had gone by, he finally went to the ER in agony, only to have a CT/MRI done and discover that he had cancer.

Are you certain that when they removed your bladder, they eradicated all of the cancerous material, or do you think it's a possibility that it somehow has made it's way to your kidney? I have to admit, I'm no expert in/with cancer, but I'm a prime candidate to GET renal cancer later in life due to my constant/regular exposure to CT's & x-rays (due to my condition).

I make kidney-stones that are too big to pass, on a monthly basis, and have to have them procedurally removed. Subsequently, the have to perform CT's & x-rays prior to and during the procedure to locate the stone(s), thus exposing me to a lot of radiation. My urologist(s) have told me that they'd be surprised if I DIDN'T develop renal cancer at some point in the future.

Go and get a second opinion, my friend. Best advice I can give you as your stent pain shouldn't be leaving you in agony.

LMNO

[amandaphil29]

thanks! and i have been through a lot of pain with all the cancer and surgeries i've been through this is insane unfortunately i have to drive 3 hours for a second opinion but at this point i have to do something i can't even get out of bed!!

[el_em_en_oh]

Have you had your kidney's checked for cancer?

Urinary stents are uncomfortable, and a bit painful, but not in the "THIS PAIN IS UNBEARABLE" range by any stretch of the imagination (assuming of course that you have at least SOME tolerance for pain).

So to answer your question: No, the excruciating pain you're feeling from the stent isn't all together normal. You should seek a second opinion. Might p1ss off your doctor if you go behind his back for another opinion, but better safe than sorry. Another opinion is always good, to get a fresh set of eyes on your case & history.

Good luck to you.