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? Adenomyosis

I definitely think that I have adenomyosis

I was looking on the NET still checking out some of my symptoms and came across an intersting bit of research information that I thought I should share with everyone. It's is so succinct and precise so....HERE IT IS - Information about diagnosing ADENOMYOSIS for anyone looking for an answer who has symptoms similar to my own (see above posts re ADENOMYOSIS). Please see below, an interesting article I found online:

Adenomyosis: Still largely under-diagnosed
S. Basak�1*, A. Saha�1
1Department of Obstetrics and Gynaecology, Diana, Princess of Wales Hospital, Grimsby, UK
*Correspondence: S. Basak, Diana, Princess of Wales Hospital, Scartho Road, Grimsby, North East Lincolnshire, DN33 2BA, UK ***@****

Summary

Underlying adenomyosis is often the cause of treatment failure for patients undergoing Mirena insertion, endometrial ablation and/or hysteroscopic resection for abnormal uterine bleeding and/or pelvic pain. In this cohort of abnormal uterine bleeding, clinicians rarely considered adenomyosis as a differential diagnosis. In such cases, gynaecologists concentrated primarily on menstrual flow. Symptoms of pelvic pain, dyspareunia, pelvic pressure symptoms and type of dysmenorrhoea were not queried. Frequently, no correlation was sought to account for a uterus noted to be enlarged either clinically or at hysteroscopy. Given the limitation of ultrasound scan (USS) in diagnosing adenomyosis, and gynaecologists' reliance on USS findings, adenomyosis often remains undiagnosed before a hysterectomy. An earlier diagnosis of adenomyosis requires a good history, correlation of clinical examination and ultrasound scan findings and a back-up MRI service. Once adenomyosis is suspected, women can be appropriately counselled so that they are fully aware of the possible failure of conservative management. If conservative management is chosen, they should be followed-up and hysterectomy offered for persistent symptoms.


I most definitely will be following this up and hope that it helps anyone else who needs it.
Thanks to everyone too who replied to my post. You all have been so help and I appreciate it very much. xxxx

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Avatar universal
PLEASE NOTE: There is no such thing as a 'modem' coil. The txt should have said 'MIRENA' coil.
Sorry, I typed the above reply on my iPhone and it changed what should have said 'mirena coil' to 'modem coil' with the predictive text.
SandraBB
Helpful - 0
Avatar universal
Just an update.
I had a partial hysterectomy in December 2009 for suspected adenomyosis after previously being told that my problems were nothing to do with gynae. I was so upset when I was discharged back to my GP after my laparoscopy only revealed large fibroids. I had been suffering for almost 1 1/2 years and my gynaecologists opinion was that my pain was not gynae related (even though the major pain started once I had a modem coil emigre cos it made me manic). I was mortified and thought that there was nowhere else to go from here and thought that I would be crippled and in pain for the rest of my life as no medical professional that I had seen could diagnose me. I spent the week in bed in tears then went back to see my GP and asked for a 2nd opinion. I was referred to Notts where I was told I had suspected adenomyosis and a partial hysterectomy would get rid of at least 70% of my pain if not all. I wanted this asap and guess what.....it worked. I also had my uterus and fallopian tubes removed and my right ovary also as it was adhered to my pelvic wall hence the pain down my right leg. The histology did not show adenomyosis but I was told that as they only sample a small amount of tissue, it doesnt always show up, but that the fibroids were also a contributary factor to my excruciating pain. I'm glad I had the 2nd opinion as I could still be dragging my painful leg about today whilst being in extreme contraction like agonising pain 90% to 95% of the time.
I'm still a bit tired since the op but in comparison, I would make the decision to have a partial hysterectomy again and again. For me that 2nd opinion was the best thing I did and wish I had sort it out sooner.
I suppose it was easier for me to make the decision for the partial hysterectomy as I have a child and didnt want to have anymore. This decision may not be so easy for someone who hasn't finished, never mind started having their family and I really feel for you if you fall into these categories as you have a tough decision to make and would advise definitely to get a 2nd and even 3rd opinion if still not happy.  You will then be told about all the options that are available to you and future outcomes so that you could make an informed decision. But don't put up with the pain. You know your body and when all of a sudden something starts to go wrong or things have progressively gotten worse, keep fighting for satisfaction as everyone deserves to be pain free. And don't worry about feeling any less of a woman after losing such an essential part of your female anatomy. Things still work just the same, if not better and you will feel like more of a woman than you had in a long while once you are over the op and possibly very soon after it!!
Good luck all. I hope this helps. Now, I just have to get rid of this flu bug!-!! xxx

Sandra B
Helpful - 0
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