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The impat of Polycythemia vera on menstruation?

I am a 32 year old afro-caribbean woman. My periods started when I was 13yrs old and were abnormal (missed mths). At 18years old they started to get very light and eventually stopped.  I have visitd many doctors who took test and placed me on birth control pills which did bring it back but as soon as I stopped taking the pills my period stopped.  I was tested for hormonal in imbalances and it revealed that my Testosterone   levels were slighted elevated. I had ultra sounds which showed that my uterus was small. The doctors told me i would never get pregnant. I was fine  with that as I did not want any children.

I started experiencing severve headaches at age 12. Three years ago I was diagnosed with Polycythemia vera after having a headachces for weeks. I was stabilized using Hydroxyurea which I take everyday.

I am now happily married and would like to have a family with my husband.  I was wondering if my menstral issues could have been impacted by  Polycythemia vera?
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Avatar universal
I am a 45 year old caucasian female and I was also recently diagnosed with PCV.  I also find it funny how they keep saying it happens more in males but all I am finding is women with this disorder.  I find it interesting that I also had a lot of problems with my periods since I started at the age of 17.  I would sometimes have it for a month and then sometimes miss it for months.  It is still messed up today (probably more to do with my age now).  
I myself am not taking interferon or hydroxyurea but doing the phelbotomies and I am on 81mg of Aspirin per day.  My Dr. did not want to start me on the hydroxyurea because of too many possible side effects.  
Well I wish you well in your journey living with PCV.
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Avatar universal
Greetings,

As an African American meaning my dad from Africa and my mom born in Japan on American soil (military). 34 year old recently diagnosed with PCV I am going to say no. PCV is a blood retention condition. Now since you did not bleed the PCV may have been brought on by the elevated testosterone levels which may just be a hormonal imbalance. I have 5 kids and was told that I have had PCV for over 10 years in which I had 3 kids in that time. They say that since I had never had migraines in the past and they started about 10 years ago that I  have had this condition since then. However I never had it tested until recently when my spleen enlarged. It is odd to have found your post because everyone keeps telling me that this condition generally effects older males. A load a crap if you ask me. I was searching for PCV to be associated with birth control I had taken that actually stopped my cycle.
Now I was wondering if you could help me with something. I have not yet started any regimens like interferon or hydroxyurea. Have you found the Hydroxyurea to be helping your condition?
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