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closed vagina on 8 yr old

When my daughter was 1 I was tending my sisters little girl and noticed that our girls looked VERY different. I told my husband that our little girl didn't have a vagina. He just laighed and said that all girls have them. I called ask a nurse and they gave me news no mother would ever want to hear. ( she will never have children and all that.) So I called the hospital and my Dr. happened to be there. He had me call first thing in the morning and get her in for him to see her. He pulled up her birth records and she was normal when she was born. They did ultrasounds and everything is there. So he sent us to a ped. obgyn and she put her on estegen. She opened up. We continued putting the cream on and she closed back up. This Dr. moved out of state and we found a new Dr.  She tried everything we would get her opened for a min. and then she would close back up. At the age of 4 she ws surgically opened up. That lasted about 3 months. They don't know what is causing her to do this we have had dermitlogists do allergy tests and no one seems to know.
We have taken her off the estregen because of health risks and are hoping when the time comes that her own body will kick in and open her up. I have heard of this happening but when they gave the cream it opened them and they were fine.
Has anyone heard of this?  I am worried now because if her own body doesn't kick in and she starts her period and the blood pools it can kill her.
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Avatar universal
Well I am 24 now and when I was little my inner labia was fused together and when I was about 2 my pediatrician referred my parents to a specialist.  I had to have surgery and after that my mom said she had to apply cream for a while and I have not had any trouble since.  So stay encouraged!
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Avatar universal
My daughter is 17 years old and I just took her for her first "female" exam.  The Dr.  couldn't do the exam because there is no hole.  I am terrified.  For a little history,  She had this problem shortly after birth, or as a toddler and her Ped. prescribed Premarin and we applied it as directed and the hole seemed to open back up.  Then as she got older, as you all know, there was no way she would let us ckeck it.  I had actually forgotten about it and have been more worried about other teenage issues.  But a month ago she told me that she could never use a tampon because it would not go in.  This brought back all of the memories from her toddler years and I got her an appointment ASAP.  What worries me more is that her Dr. said that she can get one pinkey finger about an inch up into my daughter and then it is completely blocked.  We are going to an OB-GYN Dr. tomorrow for an ultrasound.  She has had normal periods since 12 years of age, but never used a tampon.  So,  Don't think that this will go away with puberty.  I am very scared and worried.  She is my only child and I don't want to think of her not being able to have children or even worse, a healthy normal sex life when the time comes.  

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Avatar universal
We have a similar problem with our 3 year old. It started with a UTI infection that was treated with antibiotics. Every 2 months months she would get another infection. After her third infection we were refered to a specialist. She told us she was sealed closed. Altogether  she has had 8 UTI infections that were all treated with antibiotics. We went to see a naturopathic doctor who told us that this whole problem was caused by the use of too much antibiotics.It not only gets rid of the infection but also kills all your good bacteria in your body. We were never told that we had to put good bacteria back into her body. We also found out that she has a yeast infection that has spread all over her body. Since the irritation was so bad her body thought it was a cut and sealed this area closed. We have been puting bio k plain yogut on her vagina and also making fruit smoothies for her to drink to replacing good bacteria back into her body. This has seemed to help. We are going to Sick kids soon to see what they reccommend. We will keep you posted. I just want to say that I am thankful that we are not the only family going through this. We were devastated when we found out and thought maybe we did something wrong. Hopefully together we can help our kids get better faster.    
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2 Comments
I hope all is well with your daughter and family!
I just wanted to ask how things are for her and if you were able to get the yeast problem fixed up, and if that solved the problem with her vagina. I hope so.
All the best to you all.
Inkpot, thanks for posting. Do you know someone you suspect this is the case for?  Such a difficult thing for anyone to go through!
Avatar universal
It makes me feel better to realise this problem is more common than I thought.
I just took my lil 3 year old to the pediatrician this morning for this problem It is the 4th time it happens now. The pediatricians we have taken her in the past opened it up for us right then and there and today I was worried she would have to go through that again, as well as having the vaccinations! This time we were prescribed a cream that I have to apply daily with a cotton bud for a month and return if it doesnt open. What is interesting is that this cream does not seem to contain estrogen like most of you mention (we had been given one in the past that did and I worried about side effects). It specifically says on the description that it is used for feminine genitals without the side effects produced by estrogen. It's called Colpotrofin if anyone is intrested, I'm in Spain though..
I've even had one doctor say to leave her as is and get her 'opened' when she's older and closer to puberty. Does anyone know if this would make it more difficult to open? I'm really quite worried now, I dont want her to be traumatised with a problem in her genital area and I already know Im going to have trouble applying the cream to my strong-willed little girl!
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Avatar universal
My little girl is about to be six.  She had this problem when she was a few months old and again a couple of years ago.  She always has slight irritation around her genital area.  Times past i have used the estrogen cream and was scared that there was something very wrong with my babygirl. (she is the light of my life.)  Her pediatrician said this was quite common among young girls. I've never heard of it before.  But, after my babygirl complained of some irritation from wiping herself today I decided to "take a look", only to find that her labia have once again fused back together.  Her ped prescribed premarin, which is an estrogen cream, soaks in the tub w/ baking soda, and each time try to pull skin apart.  Needless to say I thought I would have an anxiety attack today after realizing this problem once more. It scares me to death for her.  I had problems carrying pregnancies to term.  So I'm very concerned for her.  I am also worried that the cream will lead to future problems.  But I'm worried more about what would happen by doing nothing about it. I teach my daughter to respect her body, to be aware of her body. And, I try not to do anything that seems invasive, although I know to her this seems that way. But health comes first.  Her doctor also told me to make sure she is "drying" herself after peeing and no bubble baths.  I let her wash "her" private area, but never with soap.  I guess all we can do is whatever works.  I feel better knowing that she is not the only one. Thanks for sharing, my heart goes out to you all.  Hope all ends well.
Concerned and Loving mom
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Avatar universal
My daughter is 8 and just noticed her vagina is closed. she was complianing of burning when she urinated and I thought she had a UTI. The Doctor said it could be trying to open and that's why it's burning. She didn't seem concerned at all. I am freaking out because I remember about 6-7 months ago she said to be Mommy how come my sister has a whole and I don't. I blew it off and said yes you do you just couldn't see it. what the heck should I do!!!! Help.

by cc2
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