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Update...
(28 male 5'10" 180 lbs) I checked my thyroid again, TSH is 1.5 (from 0.32) which I assume is within normal range. Free T4 is 19 now (from borderline high 24). I was taking Lorazepam 2 or 3 mg per day for 3 months and Wellbutrin 300 mg for less than a month and I stopped both cold turkey a month ago. since then, the eyelid twitching that I had has completely stopped but I have twitching all over my body (arms, legs, fingers, shoulder, face, etc.). I also get a really bad burning/freezing pain in my both legs more often left leg (below knee on the side of my shins) with mild numbness/tingling in both legs and sometimes arms. I also feel a pain and weakness in my right shoulder that radiates all the way to my right wrist. My feet get really cold (sometimes only my left foot) and I get the feeling that my socks are wet. This is much worse during the night. I saw a neurologist a few months ago (when my thyroid was borderline high, did not have this leg coldness/burning/freezing/tingling/numbness to this extent) and he told me that my reflex in all 4 limbs are "very brisk" but assured me that ALS, MS and CIDP are not the cause since this brisk reflex is symmetrical in all four limbs and thought the slightly overactive thyroid is causing it. My questions:
1- I think I have CIDP. I have read that "rarely" it can cause brisk reflexes instead of diminished ones. Do you think CIDP is a possibility?
2- Can this be caused by sudden withdrawal from Lorazepam and Wellbutrin?
3- Can it be MS?
4- Can it be thyroid related peripheral neuropathy (how come it started "after" my thyroid went back to "normal"?)
5- Can it be my body getting used to having normal thyroid levels again?
I appreciate your help.
This discussion is related to Hyperthyroid (possible Graves') with neurological symptoms.
1- I think I have CIDP. I have read that "rarely" it can cause brisk reflexes instead of diminished ones. Do you think CIDP is a possibility?
2- Can this be caused by sudden withdrawal from Lorazepam and Wellbutrin?
3- Can it be MS?
4- Can it be thyroid related peripheral neuropathy (how come it started "after" my thyroid went back to "normal"?)
5- Can it be my body getting used to having normal thyroid levels again?
I appreciate your help.
This discussion is related to Hyperthyroid (possible Graves') with neurological symptoms.
You two seem to be going through similar things as I am.
About two months ago I started having carpal tunnel-like forearm pain. Then about a month ago I started having numbness/tingling in both of my arms (usually only one at a time - it switched day to day) and my left leg. Occasionally my leg gets a burning feeling, especially after exertion. This happened for about a week and stopped, apart from my left leg, which still feels a bit numb/heavy. Also starting about a month ago I've had little twitches all over my body, randomly, several times an hour. Sometimes with either one of my legs the whole limb will twitch once, maybe due to a large muscle in my thigh twitching and moving the whole leg.
About a week ago my left eyelid started twitching almost constantly. It still does this. It starts twitching several times an hour. If it's not twitching I can provoke it to do so by closing the eye firmly or rubbing it. The left eyelid is now drooping slightly, probably because the muscles are worn out. I've also started to get pain behind my left eye and a headache behind the eyes sometimes. Vision seems fine so far.
I've been to the neurologist and he doesn't know what to make of it. I've had brain, cervical spine, and thoracic spine MRIs which were all normal. EMG tests on my arms were normal.
I started seeing an endocrinologist about a month ago after my GP noticed my TSH and calcium were high. I've had 4 tests of TSH spaced out a week or two between and the TSH has trended downward and now it's in the normal range. The 2nd calcium was high but now that's normal too. Free T4 has been within the normal (high end of it) range for the 2 tests I've had with it (last 2). Fasting glucose was normal. About a dozen other blood tests the endo ordered were normal.
The only thing that was abnormal was low vitamin D, which was not terribly low, but I think half of what it should be (I'm sorry I don't have numbers at the moment).
Other tests:
2 negative ELISA tests for Lyme (higher negative). I've not had Western Blot though I'm trying to schedule with an infectious disease doctor to pursue that further. I live in an endemic area for Lyme disease (MD, USA).
saeed123, your symptoms seem quite similar to mine. I'm very interested in knowing what you are able to find out. I will share how my pursuit of a diagnosis plays out, too. I have to read up on the rest of your posts...
julie833, the vitamin D deficiency you have is compelling, given that it is the one abnormal level that I have right now.
Still no diagnosis in sight, but I'm worried about MS. I'm looking at Lyme and thyroid issues still and I think I would prefer those, but mostly I just want an answer.
Good luck to you all.
About two months ago I started having carpal tunnel-like forearm pain. Then about a month ago I started having numbness/tingling in both of my arms (usually only one at a time - it switched day to day) and my left leg. Occasionally my leg gets a burning feeling, especially after exertion. This happened for about a week and stopped, apart from my left leg, which still feels a bit numb/heavy. Also starting about a month ago I've had little twitches all over my body, randomly, several times an hour. Sometimes with either one of my legs the whole limb will twitch once, maybe due to a large muscle in my thigh twitching and moving the whole leg.
About a week ago my left eyelid started twitching almost constantly. It still does this. It starts twitching several times an hour. If it's not twitching I can provoke it to do so by closing the eye firmly or rubbing it. The left eyelid is now drooping slightly, probably because the muscles are worn out. I've also started to get pain behind my left eye and a headache behind the eyes sometimes. Vision seems fine so far.
I've been to the neurologist and he doesn't know what to make of it. I've had brain, cervical spine, and thoracic spine MRIs which were all normal. EMG tests on my arms were normal.
I started seeing an endocrinologist about a month ago after my GP noticed my TSH and calcium were high. I've had 4 tests of TSH spaced out a week or two between and the TSH has trended downward and now it's in the normal range. The 2nd calcium was high but now that's normal too. Free T4 has been within the normal (high end of it) range for the 2 tests I've had with it (last 2). Fasting glucose was normal. About a dozen other blood tests the endo ordered were normal.
The only thing that was abnormal was low vitamin D, which was not terribly low, but I think half of what it should be (I'm sorry I don't have numbers at the moment).
Other tests:
2 negative ELISA tests for Lyme (higher negative). I've not had Western Blot though I'm trying to schedule with an infectious disease doctor to pursue that further. I live in an endemic area for Lyme disease (MD, USA).
saeed123, your symptoms seem quite similar to mine. I'm very interested in knowing what you are able to find out. I will share how my pursuit of a diagnosis plays out, too. I have to read up on the rest of your posts...
julie833, the vitamin D deficiency you have is compelling, given that it is the one abnormal level that I have right now.
Still no diagnosis in sight, but I'm worried about MS. I'm looking at Lyme and thyroid issues still and I think I would prefer those, but mostly I just want an answer.
Good luck to you all.
saeed123:
Have you had your Vitamin B12 level tested? A CBC test would help to confirm this too.
Julie833:
Have you had your calcium level and a PTH (parathyroid hormone level) checked? You could never take enough Vit D is there's something occurring with your parathyroid gland.
Was your Vitamin B12 level tested?
Have you had your Vitamin B12 level tested? A CBC test would help to confirm this too.
Julie833:
Have you had your calcium level and a PTH (parathyroid hormone level) checked? You could never take enough Vit D is there's something occurring with your parathyroid gland.
Was your Vitamin B12 level tested?
I too am having very similar neurological symptoms even though my thyroid levels are normal.
I was diagnosed with Graves 2 years ago and about a year ago I started feeling neurological symptoms. It started with the neck and shoulder cramping even though my potassium levels were normal. I feel a strange sensation in my legs after walking briskly for about 10 minutes or more. I have very sensitive nerves, even when I stretch my arms or legs it results in pain and weak feelings for the next week. My face and scalp feels numb. My muscles and fingers twitch on and off throughout the day.
I've had an MRI which was normal. I had nerve testing when I first started and all my blood tests were normal except I had low vitamin D. I've been taking vitamins for about 3 months now without improvement.
I have that same story of my neurologist saying it's my thyroid and my endocrinologist saying it's not related to the thyroid and if it is he said there is nothing he can do.
At this point I am trying to explore as many options as possible and even thinking about getting my thyroid removed to see if that would help.
I will update you on any progress and wish I knew what is going on. It is very frustrating to hear that there are others out there going through the same problems and professionals have not had much experience with this. Please let me know if you find out what it is before I do!
I was diagnosed with Graves 2 years ago and about a year ago I started feeling neurological symptoms. It started with the neck and shoulder cramping even though my potassium levels were normal. I feel a strange sensation in my legs after walking briskly for about 10 minutes or more. I have very sensitive nerves, even when I stretch my arms or legs it results in pain and weak feelings for the next week. My face and scalp feels numb. My muscles and fingers twitch on and off throughout the day.
I've had an MRI which was normal. I had nerve testing when I first started and all my blood tests were normal except I had low vitamin D. I've been taking vitamins for about 3 months now without improvement.
I have that same story of my neurologist saying it's my thyroid and my endocrinologist saying it's not related to the thyroid and if it is he said there is nothing he can do.
At this point I am trying to explore as many options as possible and even thinking about getting my thyroid removed to see if that would help.
I will update you on any progress and wish I knew what is going on. It is very frustrating to hear that there are others out there going through the same problems and professionals have not had much experience with this. Please let me know if you find out what it is before I do!
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