I used to hallucinate too before my decompression. I never told my doctors about it because I didn't want one more doctor telling me I had an anxiety problem. It would happen when I woke up in the middle of the night, often times feeling like I had to breath, I think I had apnea too. My vision would be a little blurry, sometimes I had vertigo, and sometimes my heart rate would be be high too. And my ears would be ringing really loud. I think it was all related. It happened maybe twice after surgery after I did way too much. it was like I was looking at a picture on the wall that would move with my eyes and then gradually fade.
Hi...you had decompression surgery already ...correct? You also stated an issue with your ankles....have you had that looked at? I wonder too, if you had a full decompression or if you had a dura placed.....?If you have EDS which could cause your joints to sublux....fall, that could explain your ankle issue and possibly why you continue to have symptoms.
Sleep apnea is a huge issue and you need to have that looked at too....ASAP !!!
Do you have a Chiari specialist?