Epstein Barr Virus (EBV) Community

This patient support community is for discussions relating to Epstein Barr Virus (EBV), chronic EBV, and infectious mononucleosis (mono).

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1 - 20 (of 1209) questions

Does Epstein-Barr cause Pulsatile Tinnitus

ozonejunkie2

I’ve had ringing in my head (Pulsatile Tinnitus) since Jan 2019. I hv been to ENT’s have gotten MRI, MRA, ultrasound of carotid arteries...

EPV, PULSATILE TINNITUS, HEARING LOSS

missouri_girl_77

I started having pulsatile tinnitus in my left ear back in the summer with hearing loss. My ENT ran a battery of test and I've had MRI' s...

1 answer | 1 comment

I am being treated with Valtrex it's working

LivingDead101

Since I last posted soon after, I saw an immunologist and an infectious disease Dr both told me there was no treatment for EBV. I guess I...

5 answers

Bed ridden for 6 mos

Vixies

I was bed ridden for 6 mos w/vertigo/dizziness/nausea. Saw holistic dr. who gave me combination of supplements to detox from heavy metals...

2 answers

Should a person with reactivated EBV get immunotherapy, i.e., allergy shots?

penmanj

I have been getting allergy shots for over a year, but very recently I have not been tolerating them well. My blood work shows mild reac...

Normal Symptoms?

Eastin

For 4 months (since around mothers day) I have felt terrible. I went to my PCP and was diagnosed with strep even though I never had a sor...

4 answers | 2 comments

Muscle contractions, burning and soreness

TiredinOhio

I have been diagnosed with several different conditions, one of which is Chronic Epstein Barr virus and chronic fatigue syndrome. I am e...

3 answers

Could I had ebv

Shnider223

I kissed a prostitute but not an open mouth kissing could I get ebv from this exposure?

1 answer

Has anyone had a swollen face from EBV for years after?

enr0010

In November of 2017, I contracted mono and pretty much every single day since, I've had a swollen face to some degree and fatigue. Someti...

Can EBV/Mono cause pains every now and then?

Geminiii

Hello, I was diagnosed with EBV/Mono last summer and ever since I get on and off throat pains.. Lymph node tenderness and general pains. ...

Reactivated EBV

twofishes

I was recently diagnosed with a reactivated case of EBV. On the CDC website is says that most people do not experience symptoms with rea...

10 answers | 2 comments

Could it be EBV? Constant Fatigue & Brain Fog

Mikef25

Age: 26 Weight: 173 lbs Height: 5'10" Lives in Connecticut Symptoms: Brain fog, fatigue, lightheaded, extreme thirst, reaction to...

4 answers | 4 comments

Are My symptoms indicative of EBV?

wolfpackjac

In January 2018 I started having flu-like symptoms. Flu test was negative so they sent me home and said it would pass. Well it didn't. ...

1 answer | 1 comment

At my wits end someone please help me!

Worrywell94

Briefly, my situation is that I became ill 3 weeks following an unprotected sexual encounter late September 18 (yes silly silly me). Due ...

3 answers | 11 comments

Does mononucleosis go away?

Lilybelle691

I’m 17 years old and in January of his year I came down with an unknown sickness. I was waking up every morning puking and by the afterno...

3 years after EBV

SerpentGarden

So to give a little background, back in January 2010 I was diagnosed with EBV and Mono, at 27years old. This stuck around for a few...

6 answers

Has anyone else suffered with EBV with persistent symptoms for a long time?

BSTOCKLEY

I began with feeling ill back in March after I came back from Budapest with sickness and diarrhoea (sorry for the too much info!!). Ever ...

1 answer

BODY TWITCHING

mercygracious

HAS ANYONE ON HERE THAT HAS BEEN DX'D WITH EBV HAD SEVERE BODY TWITCHING AT TIMES? IF SO, WOULD LOVE TO HEAR FROM YOU!

24 answers | 2 comments

Chronic ebv, parvo virus b19 and cmv

Dustela

Three years ago I was diagnosed with ebv, parvo virus b19 and cmv Dr. Don't know what to do with me. Im stuck in place. Unable to get ans...

1 answer

EBV

chrisneedshelp

see what you guys think Ok its like this about 3 years ago i got real sick (could not get out of bed sick) I even had to sell my business...

4 answers | 7 comments

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