Thank you for taking the trouble to advise me...yes, you suggestions were good. Shall get onto it. Cheers Nancygcs
Hi Nancy, I hope you find what you're looking for, soon. Have you researched private clinics / institutes / universities, etc that you may be able to contact about your queries? Best would be to track down an individual md / scientist who could advise you privately and offer suggestions about your individual case, but do not forget your own research, passions and possible alternatives (doctors are not always right). I'm sorry that I can't offer any better advice, I understand how frustrating it can get when you aren't receiving the care / treatment / answers that are needed. Keep looking and great luck to you!