I did speak with the prescribing gastroenterologist the next day. Keep in mind that everyone responds to medications differently, but after hearing my concerns and meeting with both of us, he agreed that the infusions were to be stopped IMMEDIATELY,- even skipping the upcoming infusion. We did discuss other medication options and decided Humira would be best for us. My husband hasn't started the Meds due to some complications with insurance and ect, so my husband has been off any Meds since his last infusion in January(?). I am proud to report that hubby is back to his old self again with some occasional joint pain. The mood swings did rapidly disappear, but the extreme joint pain is decreasing slowly. I will say that if you are noticing a major difference in your loved one speak up!!! As part of their support team, you may know them better than anyone else and be able to see when something isn't right before anyone else. In cases of depression and suicidal thoughts- contact the dr. IMMEDIATELY!!!! Due to HIPPA, the dr. can't speak of the patient to you without consent or being their guardian, but you can explain your observations and concerns to the dr.!! At the time all this was going on, hubby didn't see a problem besides the joint pain and was convinced I was overreacting. Looking back now; even he agrees the Remicade was not right for him. Hope this helps!
Has anyone talked to a doctor? If so, what did they say?
Did your son ever get relief from the mood swings?
Did your daughter ever get relief from the mood swings?
I AM FEELING MUCH OF WHAT EACH OF YOU ARE FEELING FROM THE REMICADE. MY WORST FEELING IS THE NERVOUSNESS AND ANXIETY IM ENDURING. SOMETIMES IT GETS TO THE POINT OF A PANIC ATTACK. I FEEL HOPELESS AND JUST LACK INTEREST IN SO MUCH OF LIFE. MY GRANDSON IS MY JOY AND I THANK GOD I HAVE HIM. HE MAKES ME REALIZE THERE IS HAPPINESS. I ALSO WANT TO MENTION THAT AS THE REMICADE WEARS OFF MY SYMPTOMS START TO SUBSIDE.I EXPRESSED THIS TO MY DOCTOR BUT IT WENT UNHEARD.