I have been diagnosed with this diorder "Large granular lymphocytic Disorder" for the past 13 years. It would be interesting to discuss with someone.
Great to hear from you - the first person I have ever had contact with who has this disorder.
How bad is it for you? I have been in remission for the last few years (my second remission) and don't take any medication at all, but at it's worst I was having transfusions every three weeks and also had the associated arthritis.
Looking forward to chatting with you.
My husband was just diagnosed with this and I am terrified! What is your Neutrophil count? Please tell me what the prognosis is....Thank You!