I've had Fibro for many years now. The key diagnostic points are: Tenderness in at least 10 of 18 very specific points that your doctor can identify, significant sleep disturbance, aches and pains (not necessarily in the joints), fatigue, confusion and what we call "Fibro Fog". Ninety+ percent of all cases are in women. No two cases are the same. Most Fibro patients have other auto immune conditions (arthritis, lupus, Sjogrens, etc.) and other pesky, but not fatal disorders (IBS - irritable bowel syndrome, GERD - gastro esophogeal reflux disorder, TMJD - temporal mandibular joint disorder). No one really knows what causes Fibro - but most of us notice getting it after a major illness or accident. There is no blood test, xray or neurological test for it today. But so much has been learned about the disease in 10 years. When I was diagnosed, it was a woman's disease referred to psychiatrists. Today, it's a recognized neurological disorder with medication specifically designed for it!! Research on Substance P and its link to chronic pain may lead doctors to a cure not only for Fibro patients but other chronic pain people also. Stick with a Rheumatologist or Neurologist. With all of the other auto immune conditions in your bloodlines you'll want to make sure you're watch carefully. Best of luck to you.
I am sorry you are going through this. The diagnosis process can take a long time and be awfully expensive, too. I was diagnosed with Fibromyalgia but it just did not feel right to me. I saw a few different docs and finally got to my current rheumy. I have a long list of things wrong with me but not one of them is fibro. Sometimes you have to change docs a few times before you can get to one who can diagnose you. Considering your current symptoms and family history, my suggestion is that you continue to pursue a diagnosis. Change rheumys as often as you need to until you find one who is interested in your case, will listen to you and pursues this doggedly.