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456995 tn?1206589507

This can't be all from Hashimotos, can it ?

Ok, so I was Dx with Hashimoto's about two months ago and put on Levothyroxine.  I have an appointment with a new doc on April 1st (long story, but been having problems with finding a doctor who can/will treat me).  Well, I am on 100mcg of Levothyroxine, and don't feel all that much better. I have slightly more energy, but I am still having random symptoms.   Here is kind of a timeline of my symptoms.  I am so frustrated, as this has been going on for about two years.  I am so tired of being sick. This is my symptom timeline..  Can all these symptoms be from the Hashimotos?
I just want to feel better, and honestly want my life back.

June/August 2006:

Quit Smoking (smoker for 10 years)
•Oral Surgery (Wisdom teeth) * Slow, painful recovery – symptoms began: Excrutiating headaches, Vision disturbances, Sinus problems, stabbing pains up left side of face, extreme exhaustion, cannot sleep enough (Followed up with my surgeon, exam and x-rays showed no abnormalities in healing)

September 2006 – April 2007
• Profuse sweating despite temperature
• hot/cold sweats
• migraines
• TMJ/tooth grinding
• neck stiffness
• constant re-occurring infections (mostly strep & sinus, continuous antibiotics, no lasting help.)
• energy decreased further
• waves of nausea (seemingly random)
• severe light sensitivity
• droopy left eye (almost partly paralyzed), occasional pulsating of left eye
• memory starts to decline, easily confused, easily distracted
• heart palpitations (saw cardiologist, heart is in perfect condition).
• Dx with insulin resistance (pre-diabetes) and put on Januvia.
• Switched from Januvia to Actos
• Hungry all the time, weight gain
• Switched from Actos to Metformin 500mg 2/Day
• Little improvement in symptoms, not much
• Vision gets really bad, depth perception problems very debilitating and affecting my driving
• Skin begins to burn and itch
• Develop severe restless leg syndrome
• Muscle pain and weakness so severe it hurts to move
• Feet & ankles swelling often
• Short term memory severely impaired
• Ringing in ears
• Pins and needles feeling in feet/toes, constantly getting bruises/cuts, not knowing how/when
• Always at the Emergency Care Clinic, sick non-stop: infections, strep throat, sinus problems, canker sores, etc.

April 2007 – October 2007

• Start going to doctors regularly
o Doctor finds no major abnormalities, refers me to an allergist (allergy tested – normal)
o Xrays, CT Scans – normal  
o ENT  blood work okay, ANA negative
o Develop constant lingering bitter/metallic taste in my mouth
o Acid reflux gets worse
o Blood sugars not controlled, often very low
o Metformin decreased from 500mg AM & PM to 500 MG AM
o Begin taking ibuprofen or Tylenol to function through the day (control pain, headaches, inflammation)
o Start seeing ENT in medical center
o Tonsillectomy October 2007
o Slow painful recovery
o Sore throat never went away after surgery
o On and off post-nasal drip  

December 2008-Current
o Dx with Autoimmune Thyroiditis after thyroid ultrasound and evidenced hypothyroid in blood work, otherwise blood work mostly normal
o Dental work, aggravated TMJ, headaches, neck stiffness, facial pain
o Hot flashes, on and off fever
o Random nausea, occasional vomiting
o Energy decreased
o Bowl problems (bowl urgency or constipation, irregular/abnormal patterns, not well digested)
o Small pin sized bumps on skin, occasionally itchy and inflamed
o Generally just don’t feel well, ever …
o Hand & Feet Severe Pain, Cold/Sweaty Toes
o Body/muscle aches increase (Pretty constant, but gets worse with cold weather)
o Continuous post nasal drip, non stop despite medication and nose sprays
o Sore throat (steady since late October 2007)
o Left eye feels gritty and like there’s pressure on it  
o Occasional difficulty breathing, feel throat closing

34 Responses
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Avatar universal
I see you posted years ago but felt the nudge to comment any way. Thank you for your detailed list of symptoms! I have been treated for Hashimotos for about 4-5 years now and am on Levothyroxine starting at low dose and presently at .0150 which seems to be working for the most part to lessen annoying symptoms but having said that I still suffer and lately have had a lot of dental work and mouth woes and see that it could all be related. I am 61, almost 62 so chalked it up to getting older, now I think it is related to Hashi.
I have been gluten free for about ten years. I will never knowingly ingest gluten. I try to be dairy free but do have some cheese now and then. I am soy free egg free seldom have nuts. My quality of life has improved greatly after making these changes and being monitored by an endocrinologist for dosage needs.
This is a wonderful place to gather support for Hashimotos. THANKS
Helpful - 0
Avatar universal
Sounds like you all need to get on better thyroid meds and or get tested by Igenex for Lyme didease. The basic test your dr runs is not accurate!
Helpful - 0
Avatar universal
I'm sorry you're going through all this. I also have Hashimoto's and I suffer from at least 3 other medical conditions that started around the time my body started attacking itself. Autoimmune conditions seem to make the body go out of whack.

You mentioned that you're on Levothyroxine (T4). From what I've heard, this medication doesn't work for everyone. Even if your labs look normal, it doesn't mean that you're thyroid symptoms are gone. Some people do better on thyroid medications that combine T3, T4 and other T hormones (e.g. Armour).

Do you still take ibuprofen? If you take it everyday for a long period of time, it can really irritate your stomach and even cause ulcers and gastritis, which can give you nausea and vomiting episodes.
Helpful - 0
Avatar universal
I have wondered if I have Hashimotos. Was diagnosed with hypothyroid at 10 yes old, have always had sinus infections and upperespiratory issues, asthma, was recently diagnosed with pcos, am now 4.5 months postpartum (my little miracle), and have horrible sinus problems still....my pulmonologist wants to now test blood for autoimmune diseases..... I have/ have had a lot of the same symptoms you listed! I will ask about this next time I see the Endo, too. I have always been in and out of drs offices, and on and off meds. It's uber debilitating and aggravating. I just missed my neice's birth due to sinus issues. Man. This gives new hope, though. I didn't know there were other drugs to treat Hoshimotos...
Helpful - 0
Avatar universal
This list reads like the story of my life!! Seen 11 specialist in the past year and not a single one can explain why my body seems to hate me.:( Dx with Hashimoto's about a year and a half ago. I have tried every thing, but it has gotten to the point were I am sick on a daily basis. I am only 28 and this is ruining my life..
Helpful - 0
Avatar universal
get off all grains, get the books: going against the grain by melissa diane smith, and the food lovers make it paleo cookbook.  i think you may have a thyroid problem (i am not a doctor but have seen all these symptoms in family members) and at least a gluten intolerance if not a sensitivity to all grains.  my mom's arthritis went completely away after 3 days of being grain free (completely-you have to look at labels like crazy, for instance ice tea with high fructose corn syrup will sabotage you, the corn being a grain).  and find a doctor who will try t4/t3 combo on you to see if it can help you.  look at the stopthethyroidmadness web site to see your symptoms and problems there. also you may have thrush or a yeast problem?  good luck!
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