Aa
Aa
A
A
A
Close
456995 tn?1206589507

This can't be all from Hashimotos, can it ?

Ok, so I was Dx with Hashimoto's about two months ago and put on Levothyroxine.  I have an appointment with a new doc on April 1st (long story, but been having problems with finding a doctor who can/will treat me).  Well, I am on 100mcg of Levothyroxine, and don't feel all that much better. I have slightly more energy, but I am still having random symptoms.   Here is kind of a timeline of my symptoms.  I am so frustrated, as this has been going on for about two years.  I am so tired of being sick. This is my symptom timeline..  Can all these symptoms be from the Hashimotos?
I just want to feel better, and honestly want my life back.

June/August 2006:

Quit Smoking (smoker for 10 years)
•Oral Surgery (Wisdom teeth) * Slow, painful recovery – symptoms began: Excrutiating headaches, Vision disturbances, Sinus problems, stabbing pains up left side of face, extreme exhaustion, cannot sleep enough (Followed up with my surgeon, exam and x-rays showed no abnormalities in healing)

September 2006 – April 2007
• Profuse sweating despite temperature
• hot/cold sweats
• migraines
• TMJ/tooth grinding
• neck stiffness
• constant re-occurring infections (mostly strep & sinus, continuous antibiotics, no lasting help.)
• energy decreased further
• waves of nausea (seemingly random)
• severe light sensitivity
• droopy left eye (almost partly paralyzed), occasional pulsating of left eye
• memory starts to decline, easily confused, easily distracted
• heart palpitations (saw cardiologist, heart is in perfect condition).
• Dx with insulin resistance (pre-diabetes) and put on Januvia.
• Switched from Januvia to Actos
• Hungry all the time, weight gain
• Switched from Actos to Metformin 500mg 2/Day
• Little improvement in symptoms, not much
• Vision gets really bad, depth perception problems very debilitating and affecting my driving
• Skin begins to burn and itch
• Develop severe restless leg syndrome
• Muscle pain and weakness so severe it hurts to move
• Feet & ankles swelling often
• Short term memory severely impaired
• Ringing in ears
• Pins and needles feeling in feet/toes, constantly getting bruises/cuts, not knowing how/when
• Always at the Emergency Care Clinic, sick non-stop: infections, strep throat, sinus problems, canker sores, etc.

April 2007 – October 2007

• Start going to doctors regularly
o Doctor finds no major abnormalities, refers me to an allergist (allergy tested – normal)
o Xrays, CT Scans – normal  
o ENT  blood work okay, ANA negative
o Develop constant lingering bitter/metallic taste in my mouth
o Acid reflux gets worse
o Blood sugars not controlled, often very low
o Metformin decreased from 500mg AM & PM to 500 MG AM
o Begin taking ibuprofen or Tylenol to function through the day (control pain, headaches, inflammation)
o Start seeing ENT in medical center
o Tonsillectomy October 2007
o Slow painful recovery
o Sore throat never went away after surgery
o On and off post-nasal drip  

December 2008-Current
o Dx with Autoimmune Thyroiditis after thyroid ultrasound and evidenced hypothyroid in blood work, otherwise blood work mostly normal
o Dental work, aggravated TMJ, headaches, neck stiffness, facial pain
o Hot flashes, on and off fever
o Random nausea, occasional vomiting
o Energy decreased
o Bowl problems (bowl urgency or constipation, irregular/abnormal patterns, not well digested)
o Small pin sized bumps on skin, occasionally itchy and inflamed
o Generally just don’t feel well, ever …
o Hand & Feet Severe Pain, Cold/Sweaty Toes
o Body/muscle aches increase (Pretty constant, but gets worse with cold weather)
o Continuous post nasal drip, non stop despite medication and nose sprays
o Sore throat (steady since late October 2007)
o Left eye feels gritty and like there’s pressure on it  
o Occasional difficulty breathing, feel throat closing

34 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I have wondered if I have Hashimotos. Was diagnosed with hypothyroid at 10 yes old, have always had sinus infections and upperespiratory issues, asthma, was recently diagnosed with pcos, am now 4.5 months postpartum (my little miracle), and have horrible sinus problems still....my pulmonologist wants to now test blood for autoimmune diseases..... I have/ have had a lot of the same symptoms you listed! I will ask about this next time I see the Endo, too. I have always been in and out of drs offices, and on and off meds. It's uber debilitating and aggravating. I just missed my neice's birth due to sinus issues. Man. This gives new hope, though. I didn't know there were other drugs to treat Hoshimotos...
Helpful - 0
Avatar universal
I'm sorry you're going through all this. I also have Hashimoto's and I suffer from at least 3 other medical conditions that started around the time my body started attacking itself. Autoimmune conditions seem to make the body go out of whack.

You mentioned that you're on Levothyroxine (T4). From what I've heard, this medication doesn't work for everyone. Even if your labs look normal, it doesn't mean that you're thyroid symptoms are gone. Some people do better on thyroid medications that combine T3, T4 and other T hormones (e.g. Armour).

Do you still take ibuprofen? If you take it everyday for a long period of time, it can really irritate your stomach and even cause ulcers and gastritis, which can give you nausea and vomiting episodes.
Helpful - 0
Avatar universal
Sounds like you all need to get on better thyroid meds and or get tested by Igenex for Lyme didease. The basic test your dr runs is not accurate!
Helpful - 0
Avatar universal
I see you posted years ago but felt the nudge to comment any way. Thank you for your detailed list of symptoms! I have been treated for Hashimotos for about 4-5 years now and am on Levothyroxine starting at low dose and presently at .0150 which seems to be working for the most part to lessen annoying symptoms but having said that I still suffer and lately have had a lot of dental work and mouth woes and see that it could all be related. I am 61, almost 62 so chalked it up to getting older, now I think it is related to Hashi.
I have been gluten free for about ten years. I will never knowingly ingest gluten. I try to be dairy free but do have some cheese now and then. I am soy free egg free seldom have nuts. My quality of life has improved greatly after making these changes and being monitored by an endocrinologist for dosage needs.
This is a wonderful place to gather support for Hashimotos. THANKS
Helpful - 0
Avatar universal
I thought I have hashimotos but I only have elevated TPO antibody not TG antibody so can't be but I have hyper and hypo symptoms am getting worried at having no answers for how I feel
Helpful - 0
Avatar universal
I was diagnosed several years ago with Hashimotos because of a wonderful medical asst. who clued me in that all of my symptoms sounded like i had it, and what test to ask the doctor for (I can't remember the name of the test anymore). I am so thankful I found a doctor (with the Lord's help) who put me on T4 back in 2004. He has kept me on it because it works so well for me, and my temperature is still low (one of the criteria that the T4 is solving the problem with the thyroid).
I felt my PCOS and hormones from my ovaries was also giving me symptoms, so I asked my gyno to give me a total Hyst. I thank the Lord that I asked for this because they found endometrioid ovarian cancer in the early stages. It had spread only to my fallopian tube, and a staging surgery found no other cancer in any of my organs or lymph nodes. What a blessing.
But then through an MRI, it was shown that I had a tumor in my nose, as well as extending into my brain! So I had the tumor removed (NOT cancerous - again thanking the Lord) from my nose. After another MRI, the meningioma in my brain was located around my optic nerves, around my main blood vessels in the brain, and abutting my brainstem. Those are the 3 places surgery is not possible. I went to Huntsman Cancer Center in Salt Lake because they treat those types of invasive brain meningiomas. They gave me 6 weeks of steriotactic radiation, which stopped the growth of the tumor. All of this happened 6-7 years ago, and I'm still going strong! Now you see why I am so happy with the Lord!!!
Helpful - 0
Have an Answer?

You are reading content posted in the Autoimmune Disorders Community

Top Autoimmune Diseases Answerers
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.