Need Dr that treats POTS in South Florida

[pepito6]

Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida??
I have been to the Cleveland clinic neurology dept with no results.  Maybe I should check their cardiology dept.  PLease let me know if you know of any.
Thanks,

[Heiferly]

Hi. It seems you replied to a very old, outdated thread from our archives; that's what the hourglass next to it means. What you need to do so your post is seen is to copy what you've written (highlight the text and click copy, usually found under the "edit" menu in your browser) and click on the large orange "Post a Question" button at the top of the page here, then paste the text into that box (click in the box, then click paste usually found under the "edit" menu in your browser). Thanks!!

[joylink]

My 22 year old daughter has been diagnosed with POTS. She suffers from fatigue, dizzy spells, near fainting, black outs. racing pulse.   She has little energy.  She just had a heart procedure  to burn the nerve to help regulate the pulse, but, when Doctor Weitz, neuroradiologist from Holy Cross Hospital in Fort Lauderdale, went in, he found that was not the problem. He is figuring that she has POTS.  We are researching POTS on line.  She is exercising by sitting down position, using the stretching cords..5 min. at a time and building up stamina.  Just 5 min. wipes her out right now. She is drinking more fluids and Gatorade We will go back  to see the doctor in a few weeks.  He is talking to us about the studies from Vanderbilt and . a POTS clinic in Minnesota.  I wish there was some clinic closer to us in Florida.  This is all new to us. We could use some connections -phone conversation with  others who are dealing with POTS.  

[eldyrarias]

Did find a dr. My daughter was diagnosed with pots and we need to find dr

[robin5232]

Hi kelly my name is robin and my son just turned 18 is there any doctors who except Medicaid who have knowledge in this disorder? I can be emailed at ***@****
Thank you so much

[elisha79]

Hi kelly I am looking for an automanic cardiologist and neurologist in south florida that treats neuropathic pots.    I just traveled to Virginia to have the autonamic tests and receive the diagnosis and now need drs for treatment . thank you so much.

[halesred1]

I am in Tallahassee and have been diagnosed with POTS/dysautomonia.  Can anyone shed some light on it for me. I have extreme symptoms (fainting multiple times a day) I am taking Midodrine and Toprol XL but my body isn't responding to the medicines.  My primary and cardiologist both told me that this "disease" is above their pay grade and they can't help me.  My insurance will not pay for me to go to Mayo Clinics; they have approved for me to see Dr. Thompson in Pensacola but they are not accepting any new patients and not taking a waiting list until end of February 2014.  Any suggestions? Anyone in Gainesville?  I read where this can be dibilitating; other pages say no it will reverse itself. I've been dealing with symptoms for 2 plus years but recently diagnosed. What are others experiencing? Suggestions to help.  Are there any other patients in the Tallahassee area?

[bilieann]

dr. Charles (randy) Thompson In Pensacola Florida is awesome!! he is currently treating my POTS and several other autonomic dysfunctions! he's very knowledgeable and is very easy to get along with! you should  check him out if not already