Need Dr that treats POTS in South Florida

[pepito6]

Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida??
I have been to the Cleveland clinic neurology dept with no results.  Maybe I should check their cardiology dept.  PLease let me know if you know of any.
Thanks,

[Lisala]

I have had a diagnosis of dysautonomia since 1990, where I saw a Cardiologist at UAB in Birmingham, AL.  Dr Lou Dell'Italia.  Not sure if he is still there, but UAB had Dr Coghlan on staff, who did a good bit of research in this area.  I am going through the hoops here in the Panhandle of FL, as I had to change from Toprol XL because of severe resistant major depression.  Who know changing to Verapamil would be such a friggin roller coaster.  Finally got a referral to a cardiologist, so will see if he has a clue.  

I have just learned about Dr Thompson in Pensacola.  Thanks for the info.  HE is next on my list.  I have spent the last 4 weeks with tachycardia 115-168 with no relief...and my internist is CLUELESS!!  and unsympathetic.  They look at you like they think you are a hypochondriac!   We''ll see how the referral goes; may have to go back to Toprol and adjust the psych meds.  Hate to do that b/c I am feeling (mentally) better.

[matteahmb]

I am a patient of Dr. Thompson's in Pensacola.  He is a wonderful Dr. and frankly gives you great peace of mind since he understands some of the strange systems that can be described with this disease.  Explaining brain fog to someone who has never had it seems impossible sometimes.

The down side is that he can be out of the office due to his condition.  Right now, he is on a medical leave.  I assume he is going to be returning (fingers crossed).  I would hate to have to go back through the doctor's with blank stares.

[lyonsden10]

I just came from my neurologist's office and he wants me to get the testing for this. I'm also in S. Florida. I don't even know what dysautonomia is yet! I have chronic fatigue and other issues, but increasing and severe dizziness, palpitations, orthostatic hypotension, and a few other things that made him recommend testing. I am even on a medical leave from work. So I, too, would like the S. Florida website URL when it is done. Thanks

[tonyad]

  Hey there, and Welcome to the Forum :)
I have the name and number of an Electrophysio in Ocala, only about
2 1/2 hours from ClearWater.

   PM me or send me a note if you want that info.
Sorry for your dx but glad that you have some answers  :0
Take Care,
~Tonya

[Kavbear]

I am in the Clearwater/ St.Pete area (Central FL) and just got back from the Mayo/ Minn.
and FINALLY have a Dx. of POTS and a few other "common things" that aren't going to be a problem getting treated. and now don't know where to start here.
I was given a starting treatment plan and to call my "main" doctor there in 3 months if after following my plan things did not improve OR things got worse at any point.
I can't afford even yearly trips there, does anyone know of anyone in my area,  or even within several hours drive from me or Daytona (where I have family)?
I see there is one in Pensacola but I might as well fly back to the Mayo.

[schelle7]

Hi,
I have very recently started treatment for what my Dr thinks is POTS. I am not sure exactly how far south you are but the electrophysiologist (electrocardiologist) I go to is Dr. Cossu in Port Charlotte, FL.