Need Dr that treats POTS in South Florida

[pepito6]

Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida??
I have been to the Cleveland clinic neurology dept with no results.  Maybe I should check their cardiology dept.  PLease let me know if you know of any.
Thanks,

[sharkster55]

After 16 months and dozens of specialist I made an appointment with Dr. Charles R. (Randy) Thompson,Center for Autonomic Disorders
6706 N. 9th Avenue, Suite A-3,
Pensacola, Florida, 32504
Office - 850-476-8200
Understanding that dysautonomia means that the signals to your autonomic nervous system are messed up and that can lead to every system in your body being affected. From your capillaries, glands, organs, to your muscles and the brain itself. I suffer from over 50 different symptoms but fortunately not at once. Randy sat with me for 4 hours and told me the reasons for every symptom I had and some that I did not realize I had such as a quick inhalation my eyes hurting.  That in itself was the greatest relief knowing I was not crazy. He is one of two in the state of fl and the one at mayo is very impersonal. Randy is swamped but make an appointment because it will help you a lot.

[dani_johnson]

I know that I'm a few years out on this thread, but I have heard thru the dysauto grapevine that Dr. T had to retire because he was getting too ill to see patients. True?

[ZeeIn]

How about putting something together for the entire State.  I'm in Central Fl and have been all over.  Mayo is a waist of time.  My local Doc's just point at each other. "My Cardiologist say's It's Neurological, see you Neuro.". My Neuro says they both need to work together.  Then. On top of POTS, NCS, Dysautonia; I have a folder full of "other" diagnosis's, including my Endocrine system, which I feel messed up everything.  Was just in hospital 8 days.  They found a Pit Cyst and my Adrenal's along with my Thyroid (not to mention the major swings in BP (I thought you would be close to dead when your BP Systolic is in the 60's and the Dystolic is in the 20's. But I'm here to say nope, it is possible and I keep ticking, between blackouts and horrid dizzy spells).  My Dystolic goes as crazy as the Systolic. Way up 198/110 and way down to 62/27. Takes a bit with my BP cuff due to the Errors since it goes so low.  They got the same crazy readings in the hospital.  My BP keeps those nurses moving. Lol.  What I would really like to find in the state of Florida is a Neuroendocrinologist.  They address most of these issues.
Good luck all!!  My prayers are with you.  

[LO55]

My daughter has POTS and is finally starting to improve with Midodrin. It regulates her blood pressure and she can finally live again!

[ROWDY1]

JUST TO LET YOU ALL KNOW I FOUND A WONDERFUL DOCTOR IN NAPLES FLORIDA. ( SINAN GURSOY MD) WHO SPENT A TON OF TIME WITH ME AND REALLY EXPLAINED EVERYTHING. I HAD BEEN DIAGNOSED WITH POTS A WHILE AGO BUT I NEVER REALLY UNDERSTOOD UNTIL HE EXPLAINED IT.  ITS AMAZING HOW MANY PEOPLE HAVE HE SAME PROBLEM BUT NOT MANY DOCTORS KNOW ABOUT IT...  

[dani_johnson]

Rowdy1, he's my doc, too. I wouldn't be alive without him. He is sympathetic and understands mechanics. Ruth DuPont is a family doc who also understands. I know this is an old thread, but I wanted to look in here for someone up in North Port whose 7-y-old is dxed. But I saw Gursoy's name - love him. I know he rubs some people the wrong way with his gruff sense of humor, but not me. His office staff has changed a bit and it's all for the better. A few years ago, there was someone in there who just didn't need to be in there answering phones and dealing with patients.

[LaLa4]

I am in Miami and have been to about every doctor out there with no luck. Every doctor I come across is so condescending, even with the POTS diagnosis. I can't wait to see the website for S. Florida, when do you think you'll have that up?  
Someone mentioned Dr. Cheshire at Mayo Clinic....I went to him and he did absolutely nothing, total waste of time. I think I'm headed up to the Cleveland Clinic in Ohio, I've given up hope down here :(

[tbhb2254]

Is there a Doctor who knows about POTS in central Fl? I live in Orlando and am unemployed and no insurance (waiting for the Obama plan to kick in haha). I have a lot of medical problems but I can't get rid of the fog in the head feeling and flue like feeling (over 10yrs now) can't remember what I did today so that messes any job's, you name it I got it. I take 9 med's and I'm sick of all this.   Thanks