Thanks. My cousin is ok so far. He has to go for MRIs every few months to check but so far he the tumor is behaving. But it is a type where the survival rate is usually only a few years so we shall see.
i dident even notice the date on the post. i guess i need to start paying att to the dates . hope all is well with you and thanks .
hi rumpled: im sorry you and your family are going threw all this. i will keep you and your cousin in my prayers. you have helped all of us on this form and supported us threw some hard times and i know your cousin is lucky to have you on thier side. i hope your tumor is just testing to and even that is hard at times. sending you hugs and prayers.
I hope your father does well. My cousin is still alive. He did chemo only based on his biopsy and his tumor shrank.
My father has just discovered that he has a small tumor in the thalamus area, but we have not had a biopsy and are waiting on an appointment with a neurosurgeon. Emory University in Atlanta is a leader in the neurology field and has an advanced Endoscopy procedure that can possibly reach the mid-brain thalamus area... please check out the link and I wish you all the best of luck.
http://www.emoryhealthcare.org/neurosurgery/make-an-appointment.html
Thank you. What kind of tumor does your father have?
Please forgive me if I do not respond promptly, I will be on and off the boards that next 10 days taking care of my own tumor (just testing, I hope).
My father has a couple tumors in his right thalamus and his medical team performed radiation with Tomotherapy. It worked temporarily, but the tumor has grown only 3 months after treatment. We are now looking at doing a Craniotomy (key-hole) surgical procedure to remove the tumors. Will update you, but here are a few facilities who we are contacting and they all do metastatic brain surgery.
University of Pittsburg UPMC
Mayo Clinic
UCLA Neurosurgical
No, or at least, I have not found a way to set it up... I feel bad as I think I miss people.
He is doing chemo for now and from what I have read, there is a combo of chemo and radiation that seems to be most effective.
I hope we can help you out here.
A BIG thanks for the warm welcome Rumpled! I had the initial impression that it was one of those auto-generated greetings (lol) This is the 3rd forum I've joined since sorting through diagnosis after diagnosis beginning last fall. I regret not finding this site sooner since it seems much more active and dynamic than any other I've come across.
I'm very sorry that your cousin was dx w/ the hypothal tumor. From everything I've read, that would be a terribly risky surgery, no? Is chemo going to be the sole treatment? It's very fortunate that he has a supportive family and I will pray that he can keep his spirits up & find some peace. Hope to talk to you again soon!
~Jesse~
We found out it is a CNS Lymphoma. Odd in that he is not immuno-compromised but that is what it is.
He has already started chemo.