Aa
Correctly self-diagnosing or being a hypochondriac?
For years now, I've had this periodic sensation of electric pop rocks bubbling in my neck and skull. It doesn't hurt, so I never thought much of it, but I was curious so I looked it up after the last incident. When I hit upon Chiari and looked at the symptoms, I nailed a good twenty or so of them.
Migraines, neck pain, clumsiness, losing my words mid-sentence, tinnitus, vertigo, random twitches... all the way up to the weirder things like Exploding Head Syndrome and Alice in Wonderland Syndrome. All of these events seemed so sporadic that I thought each had its own plausible explanation, but after researching Chiari I'm not so sure, since so many of them fall under that umbrella.
Do you think I'm correctly self-diagnosing or just being a hypochondriac? If I go to the doctor, how do I even approach this? "I think I have a Chiari malformation, so if you could just refer me that would be great?" I have a feeling I'll be patted on the head and told to get some rest.
Migraines, neck pain, clumsiness, losing my words mid-sentence, tinnitus, vertigo, random twitches... all the way up to the weirder things like Exploding Head Syndrome and Alice in Wonderland Syndrome. All of these events seemed so sporadic that I thought each had its own plausible explanation, but after researching Chiari I'm not so sure, since so many of them fall under that umbrella.
Do you think I'm correctly self-diagnosing or just being a hypochondriac? If I go to the doctor, how do I even approach this? "I think I have a Chiari malformation, so if you could just refer me that would be great?" I have a feeling I'll be patted on the head and told to get some rest.
Hi...ur symptoms can be so many different things!!!i know this sounds disappointing.so u never had a ct or mri of craniocervical area? I think they should at least do this.i have chiari,but after a long runaround now found out my facial pain,vertigo,blurred vision are muscle related.i get injections,do excercice and it already works a bit.i dont know if u can get to see at least a traumatologist who can indicate if thats ur case.muscle tension and cervical syndrome xan already be the answer.have u ever been to a neurologist?
Having a headache often warrants investigation enough and everything else you have going on would be enough for most docs to agree you are suffering. If you are looked over or told you have anxiety from one doc you move on to next until u have the right tests.
You aren't just having one symptom you have many that would strike concern in anyone. Don't trick yourself in to believing a doc won't believe you or that you are waiting their time :( fight for investigation you know your own body, express it to someone who can get to the cause and not Google most of us have been where you are... I know i was .. For years i Googled... Was told nothing wrong and i had anxiety... I believed i was a hypocondriac also.... But i was right.... I knew there was something wrong i thought i had every disease under the sun... Don't do that to yourself !
Your scenario is exactly how it should go. Just make sure to add that you are finding it hard to function fully .. hopefully you have a doc that will listen to you first time around...
You aren't just having one symptom you have many that would strike concern in anyone. Don't trick yourself in to believing a doc won't believe you or that you are waiting their time :( fight for investigation you know your own body, express it to someone who can get to the cause and not Google most of us have been where you are... I know i was .. For years i Googled... Was told nothing wrong and i had anxiety... I believed i was a hypocondriac also.... But i was right.... I knew there was something wrong i thought i had every disease under the sun... Don't do that to yourself !
Your scenario is exactly how it should go. Just make sure to add that you are finding it hard to function fully .. hopefully you have a doc that will listen to you first time around...
That's the thing though. None of these symptoms are bad enough on their own that I would go to the doctor over them. Together they put a significant damper on my quality of life, but I never would've thought to lump them together to get it checked out without hearing of Chiari.
"Why are you here today?"
"Well I've been having pretty regular migraines... and here's this list of other random symptoms that may or may not be linked together."
"Why are you here today?"
"Well I've been having pretty regular migraines... and here's this list of other random symptoms that may or may not be linked together."
To be honest ... Never go to a doc with self diagnosis.... They hate it.. Just go and plead your symptoms and worry over it until they send you for a scan and make sure you get a copy of scan as my chiari wad missed 2 times...
You can Google as much as u want but you cannot see inside!
Just never say you think that u have something lol they hate it and they will tell you to get off Google and act like you are crazy!
Just give a list of symptoms and exaggerate if you must until you get the answers u need.
You can Google as much as u want but you cannot see inside!
Just never say you think that u have something lol they hate it and they will tell you to get off Google and act like you are crazy!
Just give a list of symptoms and exaggerate if you must until you get the answers u need.
Have an Answer?
You are reading content posted in the Chiari Malformation Community
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
