confused....

[jennylynch]

ok so here is what i justpicked up fromt he hospital. patient mri appears to have chiari 1malformation with downward position of the cerbellar tonsils. the patient had a brain mri which showed and impression there as a chiari 1 malformation present but no ther significant abnormality except for breaking of the tectum...
what does that mean?
also found this chiari I malformation present with downward postion and pointing of the cerebellar tonsils which lie at the level of the ring of C1. there are some associated anomalies in the brain with breaking of the tectum into the superior cerebellar cistern but this is minimal.

anyone understand this cuz i sure dont and my dr said im normal after my feb 11 decompression

aso found out today i have degenerative joint disorder in my t2 and t3

[selmaS]

  Well that is not that far off.....hang in there!!


     "selma"

[jennylynch]

thnaks i cant see a neuro until after the first now my insurance is being stupid

[selmaS]

  No Worries...I have all my MRI's on disk....and keep a journal of all Dr visits with my BP, weight etc...so I know just what is going on and can offer the info to my Drs when needed.

I also keep all my Drs names, phone#'s and addresses in the journal as well...and I keep a current med list including supplements.

  Let us know how this goes : )

    "selma"

[jennylynch]

sweet i didnt know i could. i get records of all my mris and keep my medical records. i may have to do some calling and see what i can do.. thanks alot selma

[selmaS]

  DO u have copies of ur MRI's?...u may be able to send to a chiari specialist for review...some do this for free, while others do for a nominal fee....
This may help u get ur point across to the insurance is u have other NS's that say u do have an issue.

  Just a thought

  "selma"

[jennylynch]

i am going to have to i cant go on in the same pain as i was before the surgery again

[selmaS]

  Did u appeal to ur insurance to change PCP's? Let them know what is going on.....

  

[jennylynch]

i am trying for a new pcp and my old one litterally called the new one and told him he couldnt see me. he came to the room on my first appointment and said i cant see u the family adn child health clinic was your pcp and u need to go back. the clinic i went to will only send me to the dang neuro that did my surgery and i am seriously dissatisfied with him adn want to see someone else and they wont allow it

[selmaS]

  I think from what I have read it is a result of having chiari....and it can be the reason for the rapid downward eye motions....and other visions issues.

Most of us may continue to have a herniation of the tonsils as many Drs do not remove the tonsils and they may or may not retract and y they do the lamenectomies to make room for the CSF to move past them.

The only issue would be if they were causing another CSF obstruction.

  Does ur insurance mandate who u see?...do u need referrals?...mayb u need a new PCP????

   "selma"

[jennylynch]

ok it helps but not in my terms lol. so what exactly does it do? is it something to worry about?? and is it normal after decompression to have downward herneation again. i have not had and mri since febuary? im sorry my neuro is a bad one. he told me dont worry about anything its all in ur head i did ur surgery so u are now cured and dont need to see u for a year. ok so i end up at least 15 times in his office and he tells me to stop over reacting im fine i was decompressed. he never even told me that i had the dengenerative joint disorder i had to find out on a medical form that was sent by him to the veterans on my health claim. he told me everything on that mri was normal nad no worries. im so upset and lost he wont allow me or will my pcp allow me to see another neuro since he says im cured. now they want me to go to all these mental evaluations they think im nuts

[selmaS]

  This is an area of the brain that is elongated or beaked....
The tectum is the region of the brain located at the dorsal, or back section, of the brain stem, in the mid-section of the brain. The word tectum is Latin for "roof," indicating this region's position in regard to the brain stem. The midbrain tectum also has projections that lead to the spinal cord, allowing for a quick response time to stimuli.

There are two main receptor types in the tectum: the superior colliculi and the inferior colliculi. The superior colliculi control primary eye movements and preliminary visual processing in humans. Visual input is collected from the retina and impulses are then transmitted to the superior colliculi. Eye movement, and even head turning and arm-reaching movements, are then initiated in response to the stimuli.

The inferior colliculi is concerned with auditory processes. It is located just below the superior colliculi, and the two work together to integrate sound location data and visual input in order to give a sense of space and location. Sound waves are collected by the cochlea, the inner part of the ear, and transmitted via the auditory nerve to the inferior colliculi. From there, these impulses are then transmitted to the thalamus and processed by the auditory cortex. It is a complicated process that occurs in microseconds.

  Hope this helps

   "selma"

[jennylynch]

yea it does sorry.. my hand through in the r cuz it sounded right lol

[selmaS]

  May I ask, r u sure it doesn't say beaking instead of breaking??