Hello. I have had crazy symptoms for a while. The strangest was thirst without peeing a lot. I drink more now that I ever had before amd pee the normal amount each day. I had a neurologist tell me I have Chiari but that the herniation wouldnt cause my symptoms. This is one of the first places I have seen there can be a link. Is there any more info on linking thirst to Chairi. Thank you all!
Hi I am new to this community. I was very happy and suprized to see your post. I have a 1 year old that was just diagnosed. He has an incredible thirst. He seems to be thirsty ALL the time.. The pediatrician told me to switch him to a cup and he would drink less...NOT he drinks 8-12 12oz glasses a day and 2 8 oz bottles. At least I know its not just him. Thanks to everyone who responded it was very enlightening
Mine don't peel, but I use lip gloss during the day, and Carmex at night! ; )
Seriously, I mentioned it on another thread - when you brush your teeth, use your toothbrush to give one gentle swipe around your lips. Don't scrub or brush the lips, just do it gently every day & before you know it - they'll be good as new! (Lip exfoliation, I guess.)
Lisa
Aww come on I'll bey u use chap stick...huh?...LMAO
I also have odd lip peeling as well......no lip gloss though...;)
Hi mine peel...I always thought it was lipstick or lip gloss....never really had an idea or knew I had chiari....and it is one of those "symptoms" no on an official list.
"selma"
Does anyone's lips peel from the excessive thirst?
My lips have been peeling like crazy for 4 weeks now, couldn't imagine what it might be? I just got checked for allergies. It is the turn of the season and I am allergic to grass - - I have never had peeling lips like this before so I can't imagine it is the grass allergy.
I drink around 2 1/2 gallons of water a day...
I always have a liter of water with me at all times....
Hi and welcome to the chiari forum.
I am a big water drinker too....I think we naturally compensate for what we r lacking...could be the reason, but I drank so much water when I was working my DH bought me a mini fridge to keep it cold and right in my office : )
"selma"
Saying that, in June, i had an ultrasound of my kidneys and they were seen to be retaining urine, and not emptying them out properly, went back 6 weeks later and they were fine, started to get the same sort of pain on and off for the past few weeks, fully expecting it all again.
I get that too and l am post op...in fact it got a little worse after the surgery. Interesting, considering that I should have enough CSF now...
When the thirsty feeling gets really bad I get a really burning, tingling tongue and even if I hold water in my mouth, it still doesn't soothe it. Does anyone else get that?
I have been looking for an answer for so long about this..
Carolyn
I drink a ton! And am currently having urination issues and can hardly go. It *****!
Molly
I would agree, my partner was the first to notice this in me, i can go through 2 bottles of juice or about 4-5 pints of water in an evening, i kept calling him up when he was on his way home from work and was like can you pick up some squash please, he actually said it to me 3 days ago. I was like, mmmm i know but i don't know why.
But oddly i don't need to go to the toilet as often, i literally only go 2-3 times a day at the most.
Welcome to our expanding group, jessbee!
I won't leave the house without a bottle of water! I keep a glass on my nightstand every night, and a couple times in the past week, I've actually had to get up and refill it...
Another symptom to add to the increasing list?
Lisa