Herniation question

[shesabstrakt]

I had a cervical spine mri done a week ago...got the results back and it was normal
didnt get my brain mri one yet but would the cervical have showed herniation at all?


my necks been numb past couple days and iv felt like gagging obviously im worried
that my brain is going to herniate...if they did not find a reason 8 months ago
what are the chances it would?

[shesabstrakt]

feels like fluid on the back of my neck if thats the best way to describe it.....although, i had mris not too long ago of my neck and head, that would have shown i think, because i dont have any dx'd diseases or anything

[shesabstrakt]

Forgot to add some things....so after the year i had the onset, i noticed a soft spot on the top of my head, a little bit to the back...its squishy and once it got infected...like a little absess, had mris since then and nothing shows to be abnormal, they said could be a small fatty tumor.......its been weeks, months since i really paid attention and now more of my scalp is squishy..its weird and they ( neuros ) said that the pain and everything else would hav enothing to do with this.....also...the back of my neck feels this way as well now..it is all very strange.

someone mentioned Hydrocephalus, but my mris would have shown that...if i touch these soft spots i get tingling on my scalp...it may not relate to all my other issues but it is really strange....saw a dermetologist ( spelling ) she didnt really say anything about it at all just told me to make sure it doesnt get hard.....

[shesabstrakt]

my head hurt and face hurts when i put my eyebrows in a "suprised state" anything or facial expression that tenses my face up...hurts.

[shesabstrakt]

http://www.csfinfo.org/ is a nice website :)

[selmaS]

  The symptoms u mentioned r typical of chiari...that pain is not uncommon, as painful as it is ...and the more stress u have the worse it can get.

And soooooooo many of us have had issues with Drs not being able to dx this either...it may take time, and it will take a chiari specialist.

  Hang in there  : )
   "selma"

[shesabstrakt]

Increased ICP, I see is much more dangerous than chiari


http://en.wikipedia.org/wiki/Intracranial_pressure    

important for doctors tosuspect/note from symptoms....none have ever brought that up excpt for one dr. who said he suspected maybe low pressure instead. Hmmm....

[shesabstrakt]

was reading a little on this http://en.wikipedia.org/wiki/Valsalva

even if i breathe in REA,LLY deep it hurts the back of my head/neck,
just hard to determine if its low/high pressure headaches/pain or chiari,
of course im stil waiting to see chiari specialist as well.


ive had neck pain for awhile but the onset ( when it started getting really bad last year)
started with a pain in my neck which went to the top of my head..i had pain in the top of my
head that whole time but now its mostly in the back of my head.i also have really bad facial pain, and have seen a rheumatologist ( found nothing )

[shesabstrakt]

Yes, It makes my head hurt and really bad lately...when I use the restroom...
worst part though is the back of my head/neck rite now, it literally feels like when you
break a bone lol I cant cough for anything and I avoid sneezing at all costs....

[selmaS]

  Hi....when u say it hurts to go , u mean u get the pain in ur head?

That is typical of chiari...and so many of us do have this...as well as when we laugh, cough, sneeze or lift heavy items...Drs say strain, and that is to cover the BM issue,. but I need more details.....

   "selma"

[shesabstrakt]

hurts to use the bathroom, when I go number 2..lol sounds dumb but its been like that for awhile....i do a lot of research, maybe i shouldnt but its still complex to know everything in the anatomy of the brain and stuff...

[shesabstrakt]

when i move my head certain ways - side to side or down...my hands tingle and go numb as well as my face. my face is always hurting i dont know if that is bones or muscles..hurt to move my face at times

[shesabstrakt]

wellll as the days go by my neck hurts even worse, i can barly move it...feels like something is like sitting on it, its so numb. if I touch it even a litle..it makes me want to throw up. i had the mri done 7-28-11 Not sure that something could occur in that short amount of time.

[drewlevas]

Well when I explained to my mother what the doctors as sayed, she exclaimed ''Well after all these years it was really all in Your head after all''. She wants to come with me to my next doctors apointment. She's the one that ask all the questions, I usualy forget! She is as afraid as I am. I'm kind of happy to see that we are not the only one looking for the same questions to be answered, you are too. And I don't think youre an idiot!!!

[shesabstrakt]

Lol, I mean I feel like an idiot but talking to a counselor, doesnt help because they dont know anything about brain or health period.  I have health anxiety I like to call it, due to having real pain. "its all in my head" Literally haha.

[drewlevas]

I understand the way you feel so much! For I have the same fears! My MD has told me not to go check on google but I still did! (lol) It's scary.

It helped to read this post. Keep us informed, and I'll trie to relax as Selma as propose.

[shesabstrakt]

* my "g" letter does not work on my computer haha..just looked at my post

[shesabstrakt]

I think one was done at the hospital last year or so...but none were recent, Id have to check..i wish i had a primary care doctor..which they dont know anythin but atleast i could get everythin together from when it all started up..

so they could know the whole situation and look at ALL the scans and test that have been done at different places. what would contrast show? I can not upload the films from the cd they gave me for some reason...

[Samanthab259]

Was any of your MRIs completed with contrast? You need to relax a  lil i know it is hard because i tend to stress alot to & it only makes ur head worse. Hope u feel better soon ;)

[shesabstrakt]

I was never dxd with intracranial hypotension ( low ) or increased icp (high )...the one nuero i had last year said that he suspected maybe low pressure possibly but never talked about it again. It is hard for me to determine if i could have either of these or which one it would be, wish mris could show the difference with out having to get an LP done...also I know low pressure can cause brain sag which is like aquired CM but not the CM that you have when you are born with or in an accident.


My LP done 1 1/2 years again was 20 opening pressure, and no leak has been found
on the mri's so far....


yeah, that is why i was wondering what in the world would cause that and be chronic ( 2 years ) and does it happen slowely in a couple days orrrr rite away when it happends..referring to the link * website.

[selmaS]

There r many NS's and NL's who do not feel chiari is something to be concerned with and do not report it or inform the patient....

Just bcuz u have yet to be dx'd does not  mean u do not have something  that is not showing up...it is the opinion of the Drs reviewing them that it is an incidental finding.....

This is y the members and myself keep on saying u need to get to a true chiari specialist to review ur MRI films.....

   "selma"

[horselip]

Hi there,
i was able to read the link that you are talking about and it is come scary stuff. Now i understand what you are talking about. From what read though it sound like an acute thing rather than chronic. Also didn't you have intracranial hypotension? That is low pressure not high. Tell me if I am wrong.
Horselip

[shesabstrakt]

i feel that things are getting really bad..i was wondering what else could cause the symptoms that I have, if  it does not show on the tests...i  mean is it the pressure in my head? i know i had an lp but that was 1 1/2  years ago and i really dont want to risk another one and have an even worse headache from the procedure.

so many things have been ruled out ...and i know migraines can not be thissss dibilitating.

[selmaS]

  I am not sure there is nething else that could be life threatening...y do u feel this is life threatening?

  

[shesabstrakt]

yea i wil do that