I was referring to after a PFD....did you have that...I know you were de-tethered....but did you have decompression for Chiari?
That is the type of patch I was wondering about since they can fail and cause leaks....
Thanks for the encouragement! I'm scheduled to see my head neurologist but not til the end of March!!! I asked to see the only doctor at Mayo that Insee has published a great deal on spontaneous CSF leaks. The clinic that asked for the referral was told I need to stay with the one I already have. Since its in the same neuro area. We tried to explain that this guy is the expert- they said he's now semi retired. When I go for my appointment I'll try to get a referral to this doctor.
I've had some hours of relief and two days of relief in the past two weeks. That hopeful. Have been layering essential oils.
Selma all the patches I have had were just blood patches and one fibrin glue patch plus a ten day stint in the hospital with a drain in.
i also just wanna chime in and say it sounds like it's been rough for you. I had a leak from a spinal tap years ago while undergoing testing for ms. Had a miserable 8 days with a few er trips for iv meds and then admitted to the hospital for a blood patch. I couldn't imagine going through that more than once. I hope you find some answers and some relief!
Hi...wow you have been thru the ringer huh?...I know you saw several specialists a few yrs ago and were told no EDS...BUT...I am wondering if they missed something....all these leaks are due to something.....
What type of dura patch did you have?
Aww Thanks and to you too....and one with no more CSF leaks !!