symptoms of syringobleui

[prettyinblack]

i was just wondering those anyone know some of the symptoms of  this disease and what causes a person to get it. is not being able to control your bladder one of them causse thats a problem i havin at the moment

[selmaS]

hmmmmmmmm a shunt...to move the fluid that is not able to be collected? I am confused by that....but ok, I am sure there is more to this than I am getting.

[prettyinblack]

they change it until t he 27th of this month and i have already had surgery on my neck to release the pressure off my nerves my first doctor told me that there was nothing they could do but my second doctor decided that the surgery would be a good idea so i had the surgery in feb of 2010 and to me it was unsuccessful but now they tell me i may have to get a shut put in

[selmaS]

  AS I may have mentioned most of us should have been tested to have MS ruled out, but I have not heard of using a LP to rule it out unless there were lesions that prompted more testing....?

One, u want to ask if the Dr u r seeing is a chiari specialist , and that is one that has chiari as a focus of their practice, something they deal with everyday...not a few times a month, it makes a big diff as they r more experienced and more capable of dealing with ne surprises that may arise.

Since u have such a lack of feeling I would say that is a syrinx causing that, but that is not the same as what u asked about, the cyst u asked about affects the brain stem, and a syrinx is a cyst (syringomyelia) that affects the spinal cord.

Ask about testing to be sure u do not have one of these as well, and since they could not get fluid for the LP, it is more than possible to have one and to also have a CSF obstruction....that is what causes a syrinx to form.

If this Dr is not well versed with these related conditions, ask if he has a partner or knows of another Dr in the area he would refer u to.

Ask if u had a CINE MRI to check for a CSF obstruction or if they may consider doing one.....

Always see what the Dr has in mind, u can go in with ur questions and then they trow u a curve ball and u don't have questions prepared....

Ask how u can contact the Dr after u go home and all the info sets in  and some questions develop.....

If ur Dr feels u r not a surgical candidate, than ask what treatment do they suggest.

And if u r a surgical candidate, make sure u understand y they feel u r.

    Good luck on Weds....please post an update on ur visit : )

            "selma"

[prettyinblack]

with the lumbar punture they were unsuccessful i had no fluid for them to test  but they were trying to rule out ms and the mri thet looked at them all but especially my lumbar and the cervical spine. i go back to the doctor wedensday 4/27/11 i was wondering can u give me some question to ask the doctor cause i really know nothing about my condition i never heard of it until i was diagnosts with it i truly need some understanding about it and i have no one else to talk to about it and no help i am always burnin my hand due to the lack of feelin in it so thanks for everything

[selmaS]

  May I ask what area the MRI was of...did they do one of the brain, cervical spine, thoracic spine and lumbar?

And do u know y they did the lumbar puncture? Where they looking for something in particular?

  "selma"

[prettyinblack]

all i know is that he doctor told me i had fluid building up on my spinal cord it was pressing on my nervous on the left side i have no feelin in my left arm up until my elbow i cant balances myself to well i can no long walk at all in heels i had surgery made a year in febraury to remove my c4 and c5 bone i am still havin the same problems but now i cant controll my bladder i am so tired of this and the sad part about it is i have no clue on how i got it. i had a panic attack in june of 2007 around the end of june my index finger went  numb then the rest of my arm i never had a chances i guess it was meant to happen and yea i spelled it wrong u right and thanks for your help oh yes i had a lumbar puncter,mri with and without contrast

[selmaS]

  Hi, I think u mean-Syringobulbia- it is a medical condition when syrinxes, or fluid filled cavities,cysts, affect the brainstem. This defect normally results from congenital abnormality, trauma or tumor growth.
Mostly occurs within the lower brainstem as a slit-like gap. This may affect one or more cranial nerves, resulting in various kinds of facial palsies. Sensory and motor nerve pathways may be affected by interruption and/or compression of nerves. This disorder is associated with syringomyelia, a syrinx limited to the spinal cord.

The list of signs and symptoms mentioned in various sources for Syringobulbia includes the 8 symptoms listed below:

Vocal cord paralysis
Tongue atrophy
Tongue fibrillation
Speaking difficulty
Vertigo
Rapid involuntary eye movements
Absence of sweating on affected side of face
Flushing on affected side of face

I would venture to say no to ur question, unless u also have a syrinx located lower on ur spinal cord...did u have a thoracic and lumbar MRI? Did they rule out tethered cord?

"selma"

  "selma"