I have a basilar invagination, chiari and EDS.
For the basilar invagination I have had a tough time finding research as it is even less common than chiari, so if anyone else has had it and can maybe help with a few questions that you think would be important to ask prior to surgery would be helpful
For EDS, I have seen on the forum that epithelial patches are safest because of the rejections rate do you know where I can find more on this?
I feel like i have read every credible article my search engine will bring up, but still want to do more research if you have found any good articles on these things I would really really appreciate it.
THANKS ahead of time!