Tell me about it...still is so much better than not being like anyone at all!! I am constantly amazed as more people come on here..how more and more of what I experienced is happening in someone else.
Weird how similar we all r...huh?
Funny...I have weird bumps on my shin...they go all the way done the tibia (sort of beside it)..I've wondered about that for awhile. I get pain down it while walking and at rest, sort of comes and goes but it's a sharp shooting pain. I have to say that I do experience most of my muscle pain right after I sit down...it just throbs and aches.
That is exactly what I was doing and still do, I am always holding my muscles tight when walking b/c my joints are too unstable that w/o thinking I know that they are not able to bear the weight. Plus, my legs muscles are weak especially around the joints so I try and make up for it with the ones that are strong (I am very off balanced). I bet you are probably doing the same thing w/o even realizing it!! I believe for a long time that I was slowly changing how I was walking to subconciously accomodate what was going on with my body. Now that it the hardest thing for me now..is trying to retrain myself to use my muscles properly...and it is not easy!! My PT told me for now..just to try to strengthen the weak muscles and then the rest will follow.
If you are doing this...then you most likely are feeling the pain in relaxing..like I said the first 10 mins that I sit down are the worst especially if I have been on my feet for a while. Still curious that there is this EDS link....I really hope I get to see a rheumatologist...I think I am going to pretty much insist on it once the blood work comes back (despite what it says).
Carolyn
No, i didnt forget, smarty pants, i just didnt tell everybody that part LOL
I figured everybody knows their shoe size but who knows what size their head or hand is?! I dont know what he's looking for either but its interesting.
And yes he's great. I like him a lot! He even took the time to explain things in terms my husband could relate to!
but you forgot something!!! he also measured your head and your hand! he is not interested in foot size alone. but i still have no clue what he's trying to prove either! lol he's great though, isn't he?
Carolyn...my latest is the shin split pain I get in my right shin while lying down or sitting....it is very odd.....but really hurts.....if it was shin splints my DD told me I would feel weird bumps on the shin and the pain would be while walking and putting weight on it...but it is fine then...only when I am relaxing.......
So, I was talking with another member with EDS and she was saying that she tends to hold her muscles tight when walking....so I wonder if I may be doing this and the pain in relaxing is a result?? Ne thoughts?
"selma"