Hi.
I was diagnosed with Sensorimotor polyneuropathy a few years ago, This is a fancy name for is a condition that causes a decreased ability to move or feel sensation because of nerve damage. The "polly" means it is body wide.
Neuropathy is a common complaint with people who are Diabetic so you need to get a hba1c blood test. This shows an average of your sugar levels over a period of weeks.
Vitamin B12 deficiency can also be a problem so it would be wise to ge, t this checked as well.
Neuropathy is a very painful problem and can be difficult to control.I get burning on the soles of my feet up as far as the ankle, I can have sharp burning sensation on my skin, vibration in my legs (not sure if this is a symptom) and feeling of Ants crawling on my skin (Formication)
My doctors are confused about the cause one even suggesting that it was a lesion in my brain that has not been detected by MRI yet.
Other problems to keep an eye on is Carpal Tunnel Syndrome witch is a related problem. Fasciculations is a small muscle twitch that can be seen under the skin, I have these in the calf muscle. I often find that this gets worse after walking and I get a lot of cramping. I also have no deep tendon reflexes in my legs and diminished reflexes in my arms, I think most people with CM/SM can relate to all the above problems but I dont know if the medical community would agree there is a link between CM/SM and Neuropathy......
Hi....I did have issues with my feet and ankles feeling freezing cold....and it went up to my knees...I was told I had Raynauds Phenomenon...and it did take quite a while for it to leave me...,more then 2 yrs....I also had it in my hands pretty bad too....but they are also better....they still hurt when they get cold, but it takes longer for them to get cold and hurt now....
I am not sure if it is the same thing....but as the above posted mentioned it can take up to 2 yrs for the nerves to heal completely and for those of us with EDS it may take even longer,....
Have patience and see how things go....it is not all immediate after surgery that you will see progress or benefits....it may be next yr this time you look back and say ...wow !....I forgot about that symptom...wonder when it stopped....lol...
I have stated many times, with each yr that passes I notice more benefits....take it a day at a time....journal how you are feeling and then...look back from time to time...you will see just how many symptoms left you were not aware of anymore....
I have heard others say if it is nerve pain it may take months or years to heal. The nerves are the last to repair themselves and can be rather painful in the process. But yes, I have also heard that if there was significant damage to the nerves, they might not recover. Hopefully you are just on the slower end of healing completely!
Are you keeping a log to document your pain levels day to day, to actually see and remind yourself if the pain levels are increasing, decreasing, or staying the same?
I'll be praying that you see some healing, though. So sorry you are still feeling this pain.