pulsatile tinnitus

[cfinniss]

do any of you guys suffer with pulsatile tinnitus? i had my decompression in 09 and most symptoms are back but the pulsatile tinnitus came after the surgery and it drives me crazy.  i have read that ICP can cause this but do not know weather to press my ns to check my ICP or not?

[cfinniss]

thank you for the reference of the book Pain Erasure the Bonnie Prudden - i will check into getting that.  i will try anything that will help with the pain and not have to go on more drugs.

[cfinniss]

thanks for the tip about diamox i will mention it to my docs. i would hate to have to go on yet another drug but this heartbeat in my ears is driving me crazy.  i have had it for over a year now and you think i would get used to it!

[cfinniss]

Selma,
i forgot to mention to you also that besides the pulsatile tinnitus and the waking with the pounding headaches that go away once i sit up of stand up for about 10 minutes i also have ocular hypertension.  all three of these things are signs of intracranial hypertension which can be caused by Chiari and the spinal fluid flow problems.  

the thing i am so upset about is that i have been telling my docs for over a year now about these symptoms and not one of them mentioned it could be intracranial hypertension and that i was not going crazy.  i had to do all the research myself to find out what these symptoms could be caused from.  i just got my answer recently online by searching what could cause pulsatile tinnitus, and severe pounding headaches when i wake up in AM and ocular hypertension and all three symptoms are symptoms of intracranial hypertension.  when i told my docs these symptoms wouldn't you think they would have done tests to see what was causing them and that they might be worried that these are danger signs??!!!

[cozybee]

Not sure if you have tired diamox for the pulsating ring in your ears but it did help a little for me. I had to stop taking it as it has sulfa in it and I am highly allergic and itched for a month after stopping it. But it took the swelling out of everywhere..ringsize,shoesize, and brainsize I guess:) anyhow it did decrease the constant hearing of my own heartbeat in my ear I heard all the time. Now off the diamox it is back ten times as loud!

[selmaS]

there is a book that may help u..it is called Pain Erasure the Bonnie Prudden way...it is  myotherapy  that she uses...it puts pressure on the trigger points like acupuncture, but this is acupressure....with the book u can learn to do this for urself or ur DH can do it for u to avoid the cost of going.....see if it helps.

I am sure there is a connection to ur hyper active reflexes....not sure tho.

"selma"

[cfinniss]

pt was able to help me a lot with the myofcial pain they did what they called a myofacial release technique which is the only thing that has ever helped with the trigger points.  but my insurance will not pay for pain management for them to keep treating me...i do not have hyper mobile joints but i do have very hyper active reflexes not sure if that is anything to do with it...