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798548 tn?1237503653

pulsatile tinnitus

do any of you guys suffer with pulsatile tinnitus? i had my decompression in 09 and most symptoms are back but the pulsatile tinnitus came after the surgery and it drives me crazy.  i have read that ICP can cause this but do not know weather to press my ns to check my ICP or not?
Best Answer
620923 tn?1452915648
COMMUNITY LEADER
I went thru that over the yrs as well...I would feel awful and go to a dr...get no where and quit going....it is not a good cycle to be in.....

and the problem is not u, it is the fact u have yet to find the right drs....I know u will

Hang in there...and know u can chat with us netime : )

"selma"
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620923 tn?1452915648
COMMUNITY LEADER
Hi Cathy...well myofacial pain is related to trigger point  pain...and since it is from whip lash, u might try PT...they can do work on the muscles with out touching ur neck...to help retrain those mucles...I had this done and it helps...even the lordosis curve was back a little better....but u have to ask to make sure they know and understand they can not manipulate ur neck....but the thoracic part of ur back, ur scapula...they should be able to help.

To check for EDS there r some clinical things they look for, and then u would be sent for some testing...

They look at ur eyes for the Blue sclera.....and check u for hyper mobile joints....there is also a questionnaire ....do u bruise easy, are u slow  to heal...etc....
We have a group on MH for EDS and we have a pic for some of the joints that r hyper...do take a look-http://www.medhelp.org/forums/Ehlers-Danlos-Syndrome/show/417?camp=msc

Once they dx u for EDS u go to a rheumatoid dr for further tests and even a geneticist....as there r many types of EDS.

"selma"
Helpful - 0
798548 tn?1237503653
it is me again sorry to bother you  i forgot to tell you I also have bad myofacial pain with trigger points in my shoulder region.  had it for years from an old whiplash injury.  causes me a lot of chronic pain.  any suggestions?
Helpful - 0
798548 tn?1237503653
can you tell me how the they check for EDS?
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620923 tn?1452915648
COMMUNITY LEADER
Well if u have an increase b4 that u should cal ur dr.

I look forward to the updates : )

"selma"
Helpful - 0
798548 tn?1237503653
i do get another CINE flow study in April and will let my NS know about the pounding headaches when i wake up in morning and the pulsatile tinnitus.
Helpful - 0
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