pulsatile tinnitus

[cfinniss]

do any of you guys suffer with pulsatile tinnitus? i had my decompression in 09 and most symptoms are back but the pulsatile tinnitus came after the surgery and it drives me crazy.  i have read that ICP can cause this but do not know weather to press my ns to check my ICP or not?

[cfinniss]

i actually did contact TCI in Long Island and wanted to find out if Dr. B participated wtih my insurance and they said Dr. B does not participate with any insuance.  the institute participates with my insurance so that would be covered but my visit with Dr. B would not be covered.  so i am trying to decide on that...

[selmaS]

Yes, none of the NS at TCI work with insurance...the NL do....that is y when I went for my post op I only saw the NL,..I figured if there was a problem I would see the NS, but otherwise, I could not afford to.....but, I did see him for the first visit and the follow ups as it all is the same visit....but it was five hundred and something to see the NS...I did not have Dr B as my NS, but he was in the OR doing doplar mapping.....

Do a fund raiser to get what u need for the NS...and then the NL is just ur co-pay what ever ur insurance is....mine was $35.00....

[cfinniss]

thank you for all your help and taking the time to answer my questions.

i just got so depressed after my last visit to cleveland clinic I did not want to see doctors, just feel they do not know all the symptoms that are related to Chiari.

have a blessed day
Cathy

[cfinniss]

i do get another CINE flow study in April and will let my NS know about the pounding headaches when i wake up in morning and the pulsatile tinnitus.

[selmaS]

Well if u have an increase b4 that u should cal ur dr.

I look forward to the updates : )

"selma"

[cfinniss]

can you tell me how the they check for EDS?