Thank you for posting this! My son was on Singulair for 20 days and developed severe tics. He is now off the drug 3 weeks and seems to be recovering. His tics actually got worse the first two days off the drug and then seemed at a stand still for about a week until we noticed slight improvements each day. EEG, MRI, Comprehensive bloodwork x 2- all normal. He is still doing some blinking but the rest of the symptoms (head nodding, constant hand playing, weird neck and shoulder movements) seem to have subsided. I'm praying for a full recovery. Thanks for giving me hope.
This is why I am so against the drugs they pump into children for 'disorders' and in this case for allergies,and asthma. I feel that parents and doctors should really look into what the side effects are before even accepting or dishing out a prescription. We have had many parents telling us about behavioral and physical problems that are worse than the issue the drugs were prescribed for .The internet actually tell you what drugs have side effects ,and before one dose is given its best to do your own research .I know that's hard when you see your child suffering and I do sympathise but its common sense..
I think you posted a long time ago about your son and Singulair. My six year old took Singulair for 2 weeks and develped facial tics, twitches and other odd things. He's now been off for 10 days and we are still seeing it. Neuro appt. this week- so worried. Is your son okay now?
My 11 year old daughter was on Singular for a couple years. Late in the summer she developed an eye blink type tic. Med doctor and eye doctor didn't find a cause. A few months later the doctor upped her singular to 5 mg for her age. Shortly after that she started a throat clearing tic followed by a tic where she would quickly stick her tongue in and out. It was very concerning and noticable. Took her to her doc and she suggested stopping the singular. The last two tics quit almost immediately and the eye blinking is now gone some months later. Now I wonder if some of the stomach paid and leg pain she has had in last few years was because of the singular. We are done with Singular.
Thanks to both of u and just to let everyone know i stoped the singulair.It has only been stoped a couple of days so im not sure yet,however he does to already seem to be acting a little better. He has seemed liked he gets aggitated very easily over the smallest things and gets so angry like he could tear me appart.He is a high tempered child anyway but i think the meds made it worse. He hasnt complained with leg or stomache pain anymore either.Ill just see how it goes and post updates.
MOMOF1SON Did u post anything on the internet about ur experience with singulair it seems like i have read that exact same thing somewhere else oonline.I know that is mostly what u will find if you look up the drug but it seems like I read your exact story somewhere else.
I have alot to say about Singulair but none of it is good, unfortunately. My son was on Singulair for 3 yrs. I finally recognized the side effects he was having and discontinued. He suffered from leg pain, stomach pain, irritability, anxiety, quick to tears, easily frustrated and excessively fearful. At the age of 7, his dosage was increased to 5mg. At that point, it became very clear he was suffering side effects. All of the side effects I mentioned above were multipled x 10. He also began to have hallucinations, facial tics and night terrors. He awoke one morning and his pupils were nearly completely dialated. That got my attention fast and I started researching Singulair. He never took another Singulair after that day.
It took approximately 3 weeks for my son's side effects to completely disappear. His recovery from the Singulair was amazing.
I found valuable information on the websites: medications.com and askapatient.com. Singulair is linked to suicide in teens. For some people, it has horrible side effects such as my son experienced. Good luck to you and your family.
This note is not about the drug. But my brother suffered from asthma for many years - couldn't get his oxygen levels above 91%. He was on all different kinds of medicines to control it. It turned out he had celiac disease, meaning he had to get gluten containing foods out of his diet. Gluten is found in wheat, barley, rye and oats. Within one month, his asthma was 98% gone - he said he felt he didn't need his inhalers or any other medication anymore. He took his one inhaler at bedtime - just one puff - "just in case".
If you would like to try the diet, you will need the doctor's ok. Unfortunately, most doctors will poo-poo the asthma -food connection, but many people will tell you otherwise. Many, many health problems actually originate in the Gastrointestinal tract (you can look that concept up on-line) - be it decreased stomach acids, decreased enzymes to break up the food, leaving the food to ferment in the gut, leaky gut syndrome, etc. It would take a long note to get into all the possibilities. And if the diet helps (or some other food alteration helps) always keep inhalers on hand just in case.
If I'm of no help, I pray that someone will be! Good luck!