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Scalp is covered in white waxy substance that my hair is stuck under

So I broke out with a fungal infection all over my body well my scalp was then infected and the whole ordeal was so weird and nothing I ever seen or heard of before it left me so confused . I can’t find anything online about it which is so frustrating cause I have no idea how to treat this . Anyway it started out with somewhat of an itchy scalp with these tiny little dots all over that felt gritty like sand and were mostly around the crown of my head . The 2 days later the dots were gone and I had these dark little hairs shooting straight up all over my scalp which looked so odd well later on that day I noticed my hair line looked like it was shaved off and within an hour it was even further back with more of my hair all from the front of my head missing and looking like it was shaved my hair appeared thin all over like my hair was falling out . I then for some reason decided to take tweezers and pull at the little hairs shooting out of my scalp and what I never was expecting or thought even possible was to pull a full stand of my bright red dyed hair from my scalp !! I started pulling more and more and thick long tuffs of hair were gliding out from my scalp with hardly any effort and I started pulling the hair from my hairline that vanished earlier and when I pulled on them the hair was back again and I had my hairline back and my thin hair was back to being thick but it wouldn’t stay and my hairline was back to missing and looking like it was shaved . So I pulled at the little stubs again to get my hair back this time filming it so I could show anyone because it was so insane I couldn’t believe what was happening. All night I sat in front of the mirror playing tug of war with my hair scared that I wouldn’t be able to keep my hair permanently. The next day after passing out from doing that all night I instantly ran to the mirror and saw all the missing hair from my crown and went to pull it back out but this time there was some resistance and wasn’t gliding out with ease as the night before . Later on that day I could no longer pull any of my hair out and it was like a normal scalp if I pulled there was pain and pulling any harder would rip the hair from the root . I was devastated I was now stuck with bald patches along my entire hairline in the front of my head one patch going back pretty far with no way to cover it up and my right ear completely exposed with no hair to cover my ear . Within a couple of days I noticed my scalp looked really white and felt almost waxy . I decided to wash my hair and use my husbands tar shampoo. When I got out of the shower and dried my hair I could really see how white my scalp was and the weird film it had over it . It literally felt like candle wax I then pulled on the little stubs of hair coming from the missing patched and with some pulling my hair came out I was freaking out again I started pulling more and more hair came out it was now like it was trapped under this sticky feeling substance. So now I realized my scalp was encased In this thick white waxy sticky film and that a lot of my hair got trapped underneath it . There are even some baby hairs that are coming from my face more than my scalp cause it’s skin and I could actually see the fine hairs trapped under my skin but with some pulling can pull them out . Which makes this weird substance on my head so weird cause it’s obviously thick enough to completely cover tuffs of hair without making them visible but thin enough you can’t see it and it looks just like your normal scalp and skin so I’m extremely baffled. Also every time I pull the hair out of the sticky substance it ends up disappearing again . I’ve been showering a lot and using the tar shampoo and also purchased different fungal shampoos and every time I do the scalp becomes less sticky and now it’s very dry with little flakes of dandruff but barely that much and the hair is still sticking underneath. I was hoping if I got it super dryed out it would start to flake and release the hair but it hasn’t worked and now that it’s dryer it’s getting harder to get the hair out . I am so confused I have no idea what I’m dealing with  or even how to treat it I’m scared I’ll never get my hair back and have bald spots all over and thin hair . I’m even starting to get big bumps now from it becoming infected because of the hair being trapped because these are big wads of hair not one little strand . Around my hair line it looks like I have huge thick veins running along my head when it’s actually hair you can actually rub my scalp and feel large bumps and can feel all the hair underneath it’s so weird . My family is so freaked out they can’t believe what’s going on with me we all tried looking endlessly online and can’t find any help I’m getting so tired of this and just hope I can cure this I also noticed the roots of my hairs are all white now like this fungus that’s all over my scalp is growing up the shaft of the hair now . I hope I can get some answers about this and some serious help . Thank you
And just to clarify there are no scales with this it’s completely one piece and smooth it looks like my scalp but in certain lighting you can see whatever this is on top of my scalp and can tell it’s not my actual scalp but a weird film covering it .
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Avatar universal
I’m having the same issues and started taking it Ketoconizole 200mg. I’ve been on it for four weeks and I am not seeing a lot of improvement. My hair was part of me and I’ve always been a big hair people. This is completely taking away my identity, and I am beyond depressed. Have you had any success in treating this please let me know. Thanks, Jill.
Helpful - 1
1 Comments
I honestly think it’s something called pityriasis amiantacea. I started putting olive oil on my hair to allow me to lossen it a bit and it does seem to help. Im still gathering data to figure out what the treatment entails. But what’s hopeful is that there is a treatment for it. But I’m not 100% sure it’s pityriasis amiantacea. Look it up and let me know what you think. A year ago there was very little info about this, but now there’s a lot more info available because this became an issue for many American women in the last few years aged 25-50. Hang in there Jill, you are definitely not alone and we all know how you feel.

Laura
Avatar universal
I’ve come to the conclusion that this is a biofilm, unfortunately biofilm shave been the sleeping dragon we weren’t aware of thanks to how we culture bacteria. Biofilm poses a huge threat to humanity and have only grown stronger thanks to doctors over prescribing antibiotics. Anywho…that’s a bummer, BUT, I’ve been keeping up on the research being done at Indiana University School of Medicine where they are seeing very positive results from the use of static electricity on biofilms from wounds…there’s steps to treating biofilm, breaking through the biofilm (static electricity, h2O2, etc), then the killing the bacteria inside the biofilm, then removal of the debris. Do some research, stay safe though, don’t do something that will cause more harm than good. Go rub a balloon on your head?
Helpful - 1
1 Comments
I’ve been saying biofilms is what’s causing all this too, I’ve been using red light therapy and also a high frequency wand and taking numerous herbal tinctures parasite killers and enzymes and also moisturizing with olive oil rosehip a and grape seed oil, I try to be very clean and careful as I have twins who are two and I can see the effects appearing on them and it’s like they can almost tel what’s going on and point it out on me point to my eyes and eyebrows and ears a lot as if trying to rub something off it’s crazy, these kids have allowed me to really get in touch and also to distance myself from phone usage etc, I’ve hardwired my internet cus wifi has horrible effects especially 5g with your micro biome and I try to minimize the amount of electricity use and technology use as I feel it doesn’t help either , i also use grounding sheets for sleep, but I encourage everyone to try keeping their wifi Bluetooth and gps off and not sleeping by their phones as that stuff can enhance the activity of the germs aand bacteria etc.
Avatar universal
After very much researching and pictures after pictures I too had long hair I have a swimming pool I live in the desert and I do water haul I do believe there was cross-contamination from the pool to our water Hall tank to the fresh water holding tank. I found out that I have white mold. I found out that two parts of rubbing alcohol one part of dish soap has helped remove it off my body and my scalp however it didn't remove all of it may take a few treatments. I cannot put rubbing alcohol in my eyes though. Does anyone know how to treat the eyes? I have the same symptoms as everyone else on here hair is curling up into the scalp it's really not the scalp it's a bile film it is not dandruff but once I get the hair pulled out of the twist it instantly will dry and very powdery poof this is what I believe to be molds for I have taken pictures of my shower that leaks my swimming pool my water hauling tank my fish water tank all the patterns match. People the answer is white mold I hope this is very helpful I have been through the most miserable time of my life been severely sick for 2 years. All my clothing my camper my vehicle are all contaminated. I'm on my way to the emergency room with my pictures and all my proof and if they refuse to help me I just may go postal. At least I'll get treatment in jail. Please people check into the white mold the alcohol and the dish soap is working. It is two parts alcohol one part dish soap says leave it on for 5 minutes but that is for surfaces I think it needs to be left on a little longer for skin and hair it will help you
Helpful - 1
2 Comments
Rohto All-in-one (blue bottle) eye drops are literally the only things that make my eyes feel clean! Until this got my eyes so clean I didn't even realize how slimy and filmy they felt even though I knew they felt filmy. You know borax really helps a lot on the skin issue and these eye drops have boric acid in them and they help tremendously they also burn a lot but they help tremendously once that wears off after about 5 or 10 minutes.
Tobramycin and Dexamethasone Ophthalmic Suspension, USP
3 times a day each eye
best way to get it outta your hair in a hurry(not permanent) linocain or chloreseptic or even strawberry mouth numbing spray, lol hey it works, squirt and rub into scalp
add: aloe, cedarleaf,cinnamon oil,and the thickest bubbliest soap possible, slap it on your ears and hairline as fast as possible, then fully coat
youll see it start to literally crawl out of your head
coat entire head with vasoline or pure coconut horse coat salve
rip one side of a gallon freezer bag, make it your super duper freezer bag helmet
rock it as long as you can stand
then sit on the edge of the tub with the hottest water possible running
and fine comb or bristle brush the yuck out
rinse every swipe
itll look like wet toliet paper

then magic bubble your entire surroundings ceiling to floor
you get like a day or 2 of freedom from this BS
Avatar universal
ITS WHITE MOLD. After very much researching and pictures after pictures I too had long hair I have a swimming pool I live in the desert and I do water haul I do believe there was cross-contamination from the pool to our water Hall tank to the fresh water holding tank. I found out that I have white mold. I found out that two parts of rubbing alcohol one part of dish soap has helped remove it off my body and my scalp however it didn't remove all of it may take a few treatments. I cannot put rubbing alcohol in my eyes though. Does anyone know how to treat the eyes? I have the same symptoms as everyone else on here hair is curling up into the scalp it's really not the scalp it's a bile film it is not dandruff but once I get the hair pulled out of the twist it instantly will dry and very powdery poof this is what I believe to be molds for I have taken pictures of my shower that leaks my swimming pool my water hauling tank my fish water tank all the patterns match. People the answer is white mold I hope this is very helpful I have been through the most miserable time of my life been severely sick for 2 years. All my clothing my camper my vehicle are all contaminated. I'm on my way to the emergency room with my pictures and all my proof and if they refuse to help me I just may go postal. At least I'll get treatment in jail. Please people check into the white mold the alcohol and the dish soap is working. It is two parts alcohol one part dish soap says leave it on for 5 minutes but that is for surfaces I think it needs to be left on a little longer for skin and hair it will help you
Helpful - 1
1 Comments
You say "white mold" that's not a specific mold which type of mold are you speaking of??
Avatar universal
Sounds like demodicosis

Demodex and mallazessia
Helpful - 1
Avatar universal
White piedra
Helpful - 1
1 Comments
I've often wondered about white Piedra.  I live in the desert and it's not humid so they won't even listen to me the doctors in dermatologist and I'm doing the antifungal shampoos it is not helping at all I even went on one anti-fungal one pill a week for a month and they won't give me any more it seemed to help a little but I'm right back where I started I don't know what else to do
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