Scalp is covered in white waxy substance that my hair is stuck under

[VVSFrick_1314]

So I broke out with a fungal infection all over my body well my scalp was then infected and the whole ordeal was so weird and nothing I ever seen or heard of before it left me so confused . I can’t find anything online about it which is so frustrating cause I have no idea how to treat this . Anyway it started out with somewhat of an itchy scalp with these tiny little dots all over that felt gritty like sand and were mostly around the crown of my head . The 2 days later the dots were gone and I had these dark little hairs shooting straight up all over my scalp which looked so odd well later on that day I noticed my hair line looked like it was shaved off and within an hour it was even further back with more of my hair all from the front of my head missing and looking like it was shaved my hair appeared thin all over like my hair was falling out . I then for some reason decided to take tweezers and pull at the little hairs shooting out of my scalp and what I never was expecting or thought even possible was to pull a full stand of my bright red dyed hair from my scalp !! I started pulling more and more and thick long tuffs of hair were gliding out from my scalp with hardly any effort and I started pulling the hair from my hairline that vanished earlier and when I pulled on them the hair was back again and I had my hairline back and my thin hair was back to being thick but it wouldn’t stay and my hairline was back to missing and looking like it was shaved . So I pulled at the little stubs again to get my hair back this time filming it so I could show anyone because it was so insane I couldn’t believe what was happening. All night I sat in front of the mirror playing tug of war with my hair scared that I wouldn’t be able to keep my hair permanently. The next day after passing out from doing that all night I instantly ran to the mirror and saw all the missing hair from my crown and went to pull it back out but this time there was some resistance and wasn’t gliding out with ease as the night before . Later on that day I could no longer pull any of my hair out and it was like a normal scalp if I pulled there was pain and pulling any harder would rip the hair from the root . I was devastated I was now stuck with bald patches along my entire hairline in the front of my head one patch going back pretty far with no way to cover it up and my right ear completely exposed with no hair to cover my ear . Within a couple of days I noticed my scalp looked really white and felt almost waxy . I decided to wash my hair and use my husbands tar shampoo. When I got out of the shower and dried my hair I could really see how white my scalp was and the weird film it had over it . It literally felt like candle wax I then pulled on the little stubs of hair coming from the missing patched and with some pulling my hair came out I was freaking out again I started pulling more and more hair came out it was now like it was trapped under this sticky feeling substance. So now I realized my scalp was encased In this thick white waxy sticky film and that a lot of my hair got trapped underneath it . There are even some baby hairs that are coming from my face more than my scalp cause it’s skin and I could actually see the fine hairs trapped under my skin but with some pulling can pull them out . Which makes this weird substance on my head so weird cause it’s obviously thick enough to completely cover tuffs of hair without making them visible but thin enough you can’t see it and it looks just like your normal scalp and skin so I’m extremely baffled. Also every time I pull the hair out of the sticky substance it ends up disappearing again . I’ve been showering a lot and using the tar shampoo and also purchased different fungal shampoos and every time I do the scalp becomes less sticky and now it’s very dry with little flakes of dandruff but barely that much and the hair is still sticking underneath. I was hoping if I got it super dryed out it would start to flake and release the hair but it hasn’t worked and now that it’s dryer it’s getting harder to get the hair out . I am so confused I have no idea what I’m dealing with  or even how to treat it I’m scared I’ll never get my hair back and have bald spots all over and thin hair . I’m even starting to get big bumps now from it becoming infected because of the hair being trapped because these are big wads of hair not one little strand . Around my hair line it looks like I have huge thick veins running along my head when it’s actually hair you can actually rub my scalp and feel large bumps and can feel all the hair underneath it’s so weird . My family is so freaked out they can’t believe what’s going on with me we all tried looking endlessly online and can’t find any help I’m getting so tired of this and just hope I can cure this I also noticed the roots of my hairs are all white now like this fungus that’s all over my scalp is growing up the shaft of the hair now . I hope I can get some answers about this and some serious help . Thank you
And just to clarify there are no scales with this it’s completely one piece and smooth it looks like my scalp but in certain lighting you can see whatever this is on top of my scalp and can tell it’s not my actual scalp but a weird film covering it .

[Hmmmamanda]

Wow, we need to talk. I don’t know that you’ll receive this message even, as maybe it’s cleared up by now… but I AM GOING THROUGH THIS AND NO ONE KNOWS WHAT IS HAPPENING. I’m on Month 10 of this dreadful experience that’s manifested itself in so many other strange isn’t even the word ways… I’d  like to give you my email if you get this. Take care

[Lotus1101]

I've been suffering for five years with this. I don't see where anyone has said how they think this started. Mine started one evening walking my dog who wanted to check out a tree in the yard of the new duplex we had just moved to. I noticed quite a few dragon flies and didn't think much of that but something BIG flew towards me and started to what felt like drilling on my head. I ran into the house and started itching but I felt like I was getting hit by sparks all over falling from my head. My boyfriend only saw a small bump.
I learned that the people who lived on the other side of the duplex had two dogs and a cat and they all regularly spent time near the tree at a fire pit. And when they would leave raccoons would hang out there.

I kept feeling the"sparks" and when showering it felt like they were bouncing off the walls and right back to me. I found diatramethious earth and sprinkled it on my bed and hair but I was sooo exhausted I could have slept through anything.

I went to the doctor and was laughed at. The doctor did do a biopsy but said it was only my hair. (Seemed like they made the biopsy more painful than necessary).  Went to the emergency room and was told to put Vaseline on it- already tried that! Went to a dermatologist my mom's doctor recommended. She "inspected' from a distance. After making me get undressed, she told me- "come back when you stop doing meth' ! I've never done drugs in my life.

I finally got a doctor that rx ivermectin and doxycycline- for three days. It seemed to help- until day three. The moment the meds wore off, I felt like Medusa! I hadn't felt anything wiggle until then.  Well I couldn't get the doctor to prescribe more. So here I am.

I've done research and think the hair and scalp are suffering from "piedra". I think these things are making a paste out of my skin and using that for covering.

I went to a trichologist who saw nothing. But- if I go again I will tell her to get the hair wet. That's how I discovered that all my hair is still there. I have a swimming pool I get in every day because I get overheated easily- feeling like I am wearing a wool hat. The water loosens it and I can untangle my hair. But as soon as I stop my hair goes right back. At the start of this um.. adventure my hair was waist length. Now it's above my ears and hurts all the time. It's like having your ponytail waaay to tight.

I've been using apple cider vinegar and diatramethious earth and ponds cold cream helps but it's getting worse.
I read where a woman was going through the same thing and she said she did all the same stuff. Then one day she woke up and it was gone. I'm really hoping for the same outcome but I don't think so soon. I've been waking up nauseous- and I absolutely know it's not that sort of morning sickness. I've also been waking up more exhausted than when I went to bed. I have purple marks on my legs that look like something under the skin stitched itself up nicely under my skin. I feel like I have needles or skinny toothpicks under my skin that snap when I move. My boyfriend did pull what looks like hooks from my scalp. But taking anything you might find to show a doctor is pointless. They tried to send me to a psychiatrist but I insisted that isn't the problem. I have marks all over my shoulders and arms that are either dark spots or lighter than my skin spots- or lines or c shaped with lines.

Now I'm having stomach pains very sharp. I suspect they are in my gallbladder and moving on. I woke up last week feeling like I am wearing heavy droopy sox and the brains are bulging. But other places on my legs feel the same- the places where there are purple lines+ pairs of lines that curve at the ends.

I've been waking up lately with a super stiff neck and feel like these are hanging in my glands. Today I noticed one side seems like it got empty because it curves in now instead of bulging out like it has been.
I want to see a doctor especially with the pain in my stomach but I don't want to have my gallbladder removed- when removing parasites would do the trick much better.
Oh and I've developed a strange cough
Why doctors ignore the possibility that we can get parasites, is just unbelievable. I'm in Florida. Seems they only have parasitologists- for crops! Like no people can get this?!
Any suggestions or help would be greatly appreciated

[Lotus1101]

I saw where someone suggested noxema. It definitely just made mine worse. I've used with the apple cider vinegar when not using tea tree oil so I thought it might work. Also because I've been using ponds original cold cream. I woke up with what felt like my hair shorter. So today I'm trying they shampoo. Feeling like a n experiment

[Imnotalone131022]

Right!

[Newlifeash18]

I am experiencing these symptoms right now as well!. I have these black waxy hard strands on my scalp...my hairline looked like it was shaved off...my hair is twisting up in this weird pattern. When I come my hair...it snaps back down like elastic...I have also discovered this thin film coming my skin. Whenever I get the film off, hair is found underneath it. It is all on my face and when I rub what I thought where acne scars, turns out to be hair from my scalp on my face. I am freaking out and nobody believes me!

[Ts1202_]

I believe you! Same thing here. 4 yrs now.

[Imnotalone131022]

Me too!

[Sassystacie]

Oh i belive.  I've been having same issues for 2 years. Had 3 ft long hair.  Had beautiful blue eyes with long eyelashes had good skin my hair I shaved off bald a year later I finally have some hair that has the same crud in it as when I cut it off my skin appears to have a film of some sort that's sticky will not come off I don't care what cleaner you use I've tried every trick in the book I've done culture I've done apple cider vinegar Green Tree medicated shampoo you name it I've done it all nothing cheers it I have been flagged as a crazy I have lost friends I have been accused of being a druggie when the whole time I have been very sick I spent hours a day just trying to get my hair out from my scalp it just keeps growing over it and then if you get it out it's so wet it'll never dry it doesn't absorb water I've been to two dermatologists for five doctors been thrown out of ER thousands and thousands of dollars later no diagnosis I even had a scout biopsy said it was consistent with dermatitis I have no red scally patches. Fungal testing was done with the biopsy I'm not sure wh. I have requested for blood test or or scrapings to see if there's a yeast in what strain and how to treat it I don't know why but they won't do the testing my eyes ooze white liquid out of them it's very painful it builds up pressure behind my eyes half the time I can't see. I do believe it is a biofilm of some fungi I too also have a swimming pool that got very bath water warm which would allow for anything to grow I'm also water haul I live out in the desert I need to see about testing the water that I have to haul to the home I hope we find a cure people I have gone downhill so fast in 2 years I don't look anything like I used to look I look terrible I feel terrible people criticize it make you feel even more terrible I can so relate may God help us

[Newlifeash18]

So I don't know how safe it is...but I finally just said F it. I shaved my head  completely bald and I washed my hair with the fish tank cleaner and algae growth stuff and it has worked wonders. My hair is growing back thicker and faster than it ever has! My skin is glowing and I feel like as if I have gotten my life back! I truly feel beautiful again. All after a 10$ fix at Walmart.

[pmcfarland4]

Greetings Fellow Sufferer,

I realize that it’s been over here since you posted disinformation and I’m not sure if you’ve already been able to treat it but it’s not, I received some amazing information from a very intelligent educated individual and I’m going to share the treatment options that was you it with me. This is by No means, to be considered a sure fire cure, since everyone is different & I am by no means a professional doctor or specialist.

Yes it’s just what I’ve done so far and have experience finishing in the affects my condition. I’m going to link a few things BELOW and you can do with it what you want with this information, I really hope that this works for you, as well for you as it has for me.

Reference 1:
https://www.amazon.com/hz/wishlist/ls/8CD09G5T49U9?ref_=wl_share

Reference 2:
https://health-matrix.net/2011/03/15/dmso-the-real-miracle-solution/

Reference 3:
https://organicbiomama.com/dmso-safety-handling-recipes

[Bballgirl25]

Do you have some directions how to use?

[Spacecrazy0023]

I've tried Albendazole (parasite stuff), but it doesn't seem to make too much of a difference.   I got Dermarest Psoriasis, that seems to work better than anything else. Also a combo of rosemary, lavender, oregano and jojoba oil. Neem oil is great in general, as is triphala. Turmeric mixed with jojoba or coconut oils.
I was also prescribed doxycycline and some steroid, but would rather not use the steroid due to side effects.
As for scleroderma, that's a possibility, but not my issue, as I was tested for it earlier this year (different medical issue, though now I'm convinced it's all related).
Yes, the docs treating me like I'm nuts definitely sucks...

[Lotus1101]

I'm thinking it's a t least one worm/nematode that's coiled and may be sticky so it's taking our hair with it. I've heard that they gmo"d nematodes which may explain why there's no getting rid of it. I also think I'm getting sick as a reaction to the parasite. I spray apple cider vinegar at night and let it dry a bit then sprinkle diatramethious earth. My hair seems to be in one big swirl around my head but it seems to be slowly coming undone. My hair was down my back but now it's above my ears

[Ts1202_]

I thought the same as you in the beginning  ..a nematode but no...I have done every test and they show nothing. It took me until this year to figure out that this is a beetle insect. There is no test for it and these beetles use mimicry to hide themselves..its their defense mechanism. I also believe there is a black mold along with it and it has a connection to morgellons.  I take activated charcoal. I also use bentonite clay on my skin to pull this crap out. Oh and Epsom salt baths. But I think it will continue to start over and over in our body until the adult beetles are dead. The infective larvae stage I think is the hardest...

[Imnotalone131022]

I have scratched and dug into my scalp for hours, and a couple times I had a single dead oval dark brown buggy  Looked the size of a ric grain but with legs

[Theens]

I have seen these bugs as well, quite frequently now actually. Vinegar, while being helpful in moving the cells away from an area, also seems to bring these bugs to the surface. I can’t stomach seeing one of them pop out anymore so I try to avoid vinegar unless absolutely necessary. But I do use a spray of ACV and filtered water on my glasses. If I don’t use it my glasses fall off and hair is twisted all over the arms. But the worst part is that it’s as if the arms are a path for it to travel with. I developed deep creases from my ears to my eyes and on my nose where my glasses sit I now have an internal opening for the hair. My nose, which was perfectly fine before this, looks like it’s been broken 10 times and never treated by a “dr.” I can’t blow my nose even though it’s  constantly f red inning it dripping. I I can feel a rubbery strip from the corner if my mouth to my nose thst nothing will penetrate. Honestly, after all the experiences I’ve had with drs concerning this, it probably wouldn’t help to see one if I did break my nose in reality. They don’t examine anything and I wonder how many people walk around with lice or conditions like it because a dermatologist decided from 10 feet away that because they couldn’t see anything then nothing existed.

[Theens]

Also, I don’t know if anyone else notices this but my phone gets covered in skin flakes and various other disgusting things when I use it. I  was replacing phones every six months or so until I finally realized it was blocking areas of it. I have a brand new phone in its box because it won’t enter the number I tap for the passcode. It just brings up a different number or doesn’t redd add pins at all. After carefully experimenting with it, I now coat my glove with peroxide or vinegar and that keeps any areas of contact free of this crap. If I set my phone on a paper towel (which I don’t advise using paper anymore than absolutely necessary) sprayed with peroxide or vinegar it all rises to the top where I wipe it with a screen cleaner. I always get the extra warranty but with the amount of “accidents” ranging from an obstructed port needing replacement to it “slipping” out of my hand I’m afraid I will probably be rejected soon from further coverage.

I believe my condition is quite advanced at this point and to be perfectly honest I’m just counting the days now because I just want to be at peace. It will come to time that showering is one if the most painful events of the day. And least productive. I dread it because I know what I will be going through. The pain of adjusting to the excruciating pain of dry skin and the various infections everywhere when I am done is a torture I think about all day. Once the film has adjusted and is hardened that particular pain is gone but it’s replaced with terrible burning all over. And just like that, magically all of the sores and areas of  infection disappear.  

That’s why everyone thinks I’m crazy, they can’t see anything. And I lost all credibility when I first became aware of this. I was so confused and they all got tired of looking at something I was “imagining” because they couldn’t see it. I am an atheist but I do wonder at times if I’m in a hell created by the universe. Maybe I won’t ever escape this.

[Lotus1101]

Beatles can carry filarial worms that carry the bacteria causing Lyme or a form of Lyme disease

[LivefromHell]

Have you tried a shampoo with Ketoconizole?  It works a lot better than coal tar shampoo for fungal infections.  But in all honesty, you really need to see a doctor because from the symptoms you describe you will need a oral antifungal as well as topical treatment.  Medication has to be determined by the type of fungus you have and that requires sample testing. You will feel a lot less anxious about what you are going through once you start taking action through a medical professional.  Trust me, you will just drive yourself batty trying to manage this on your own.  

[Labtechs66]

I have had the exact same thing with addition of my facial skin will turn to extreme orange peel like texture and then the white, grainy, waxy sun stand sheets down my face from scalp descending to my chin.  Afterward there are blister along my forehead hairline filled with the same substance.  The same for my eyebrows and any are on my face that had open skin.  The substance build up around the corners of my mouth, above my eyebrow on the bones ridge and my lips.

I feel awful and antibiotics don’t treat as they only treat the secondary infection.  I’m mentally cloudy, poor memory, night sweats,  feeling of floating, intestinal bloating and gas, headache, blurry vision, double vision, scalp infections, skin infections, waxy skin, white waxy skin on ears, scabs have one to two hole around them which furry substance grows out.  

[Allgone1]

Okay everyone after 30 plus years of having this cb web on my scalp and face . Waxy substance on face and scalp and oily skin, pimples you name it . And more also 5 biopsies on scalp , told I need psych help and blah blah blah! I found out how to help u all out. I was on fluconizola 1 x for 6 weeks and I bought cold pressed pure neem oil . I’m finally feeling I almost like I got my life back. I shaved my head for years. Wore wigs, I’ll feel whole if my hair comes back in and eye brows and lashes . But I no longer have that cob web feeling anymore . That hard layer of skin on top of our real skin anymore. I truly believe it’s a form of black mold on us. The neem oil I just used a little bit on my scalp for three days straight and on my face diluted with water not much the tiny hairs come off after about third day on face and scalp after I was on the fluconazole for a month . Took long time to get the neem oil in mail. But I’m so glad I got it. Be careful please. I still use it on myself and sprayed it in my home by bed and outside as well. I also put a little in my dogs shampoo My dogs skin is now pink like it should be not a brown red color now . Please be careful with your dog only use it on dogs not cats etc... and very very little is needed. I put about a teaspoon in their shampoo. Thank god for all of you guys . I was first one who posted something in about hairs coming off skin so many years ago little by little I heard from you all w same symptoms . . You all kept me going . Cuz I really felt alone for many years. Have a great day. P.s. I got my fluconazole through doc on internet. Just told them I’m itching all over and oily skin and hair falling out. Didn’t mention the white hairs . Told them I’ve been exposed to black mold 4 times which is true and I cleaned the first one  I found on our porch w brush and bare hands  before I found out that was a big no no! After that is when I got the feelings on crawling and like a wet feel of wet hair running down my legs. And first two times I used the med I itches like crazy first 3  times I took it for 2 days after. You might too.

[EGuidance]

I'll try been oil. I'm having exact same situation. It's been 8 months now. Repeated er visits. 4 dermatologist appointments. Not a single culture or biopsy. Told I need psych help. Have developed ocd traits. Very distressing.

[Dmazz]

Hi, thank you so much for sharing.
How many mg of fluconazole?

[Imnotalone131022]

Want my freedom and hair back. Feels strange, like I've been taken over by things...

Been to many years

[Issabissh_87]

I believe you were suffering with white piedra of scalp and candidiasis on your skin

[harsh2000]

you are not crazy
Alkalized hair is the cause
Use acidic shampoo
Wash your hair and use conditioner everyday
use hair vinegar