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Scalp is covered in white waxy substance that my hair is stuck under
So I broke out with a fungal infection all over my body well my scalp was then infected and the whole ordeal was so weird and nothing I ever seen or heard of before it left me so confused . I can’t find anything online about it which is so frustrating cause I have no idea how to treat this . Anyway it started out with somewhat of an itchy scalp with these tiny little dots all over that felt gritty like sand and were mostly around the crown of my head . The 2 days later the dots were gone and I had these dark little hairs shooting straight up all over my scalp which looked so odd well later on that day I noticed my hair line looked like it was shaved off and within an hour it was even further back with more of my hair all from the front of my head missing and looking like it was shaved my hair appeared thin all over like my hair was falling out . I then for some reason decided to take tweezers and pull at the little hairs shooting out of my scalp and what I never was expecting or thought even possible was to pull a full stand of my bright red dyed hair from my scalp !! I started pulling more and more and thick long tuffs of hair were gliding out from my scalp with hardly any effort and I started pulling the hair from my hairline that vanished earlier and when I pulled on them the hair was back again and I had my hairline back and my thin hair was back to being thick but it wouldn’t stay and my hairline was back to missing and looking like it was shaved . So I pulled at the little stubs again to get my hair back this time filming it so I could show anyone because it was so insane I couldn’t believe what was happening. All night I sat in front of the mirror playing tug of war with my hair scared that I wouldn’t be able to keep my hair permanently. The next day after passing out from doing that all night I instantly ran to the mirror and saw all the missing hair from my crown and went to pull it back out but this time there was some resistance and wasn’t gliding out with ease as the night before . Later on that day I could no longer pull any of my hair out and it was like a normal scalp if I pulled there was pain and pulling any harder would rip the hair from the root . I was devastated I was now stuck with bald patches along my entire hairline in the front of my head one patch going back pretty far with no way to cover it up and my right ear completely exposed with no hair to cover my ear . Within a couple of days I noticed my scalp looked really white and felt almost waxy . I decided to wash my hair and use my husbands tar shampoo. When I got out of the shower and dried my hair I could really see how white my scalp was and the weird film it had over it . It literally felt like candle wax I then pulled on the little stubs of hair coming from the missing patched and with some pulling my hair came out I was freaking out again I started pulling more and more hair came out it was now like it was trapped under this sticky feeling substance. So now I realized my scalp was encased In this thick white waxy sticky film and that a lot of my hair got trapped underneath it . There are even some baby hairs that are coming from my face more than my scalp cause it’s skin and I could actually see the fine hairs trapped under my skin but with some pulling can pull them out . Which makes this weird substance on my head so weird cause it’s obviously thick enough to completely cover tuffs of hair without making them visible but thin enough you can’t see it and it looks just like your normal scalp and skin so I’m extremely baffled. Also every time I pull the hair out of the sticky substance it ends up disappearing again . I’ve been showering a lot and using the tar shampoo and also purchased different fungal shampoos and every time I do the scalp becomes less sticky and now it’s very dry with little flakes of dandruff but barely that much and the hair is still sticking underneath. I was hoping if I got it super dryed out it would start to flake and release the hair but it hasn’t worked and now that it’s dryer it’s getting harder to get the hair out . I am so confused I have no idea what I’m dealing with or even how to treat it I’m scared I’ll never get my hair back and have bald spots all over and thin hair . I’m even starting to get big bumps now from it becoming infected because of the hair being trapped because these are big wads of hair not one little strand . Around my hair line it looks like I have huge thick veins running along my head when it’s actually hair you can actually rub my scalp and feel large bumps and can feel all the hair underneath it’s so weird . My family is so freaked out they can’t believe what’s going on with me we all tried looking endlessly online and can’t find any help I’m getting so tired of this and just hope I can cure this I also noticed the roots of my hairs are all white now like this fungus that’s all over my scalp is growing up the shaft of the hair now . I hope I can get some answers about this and some serious help . Thank you
And just to clarify there are no scales with this it’s completely one piece and smooth it looks like my scalp but in certain lighting you can see whatever this is on top of my scalp and can tell it’s not my actual scalp but a weird film covering it .
And just to clarify there are no scales with this it’s completely one piece and smooth it looks like my scalp but in certain lighting you can see whatever this is on top of my scalp and can tell it’s not my actual scalp but a weird film covering it .
i have the exact same thing. closest i could find out is trichmiosis and bugari pulmini. its ridiculous. dont waste your time with regular dr.s and specialists. you gotta get the biofilm down with a green and collogen diet then atack it with a trifecta: antibiotic(forever seems like) anti-fungal(strong AF) and a anti helminthic/parasite. Im on doxycycline/Flucanozole/albendazole/nitaoxide. ridiculous exspensive like $800/month. easier to order the stuff for your delusional herd of cattle to cure your delusional disease. i want my infectious disease PA in prison and act like shes too good to be there. how many girls pulled the trigger when the feeling of hoplessness took over because a trained specialist lied to her face. thats called soul harvesting for the devil. they got the wrong girl right here, you can bet farm on that. stay strong be light GOD is gangster
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uv bacteria killing light. little hand held bad mama jama from walmart busted open fibrid nests in 2 days.
I can't believe I found this. I have googled so many things so many times and never come across this. I feel so much better just after reading this knowing I'm not alone and not CRAZY.
I have been experiencing everything everyone else here has for about 18 months now. It started with my scalp, then my neck, face, then my entire body.
It has taken over my life, I have no life anymore. It's all I think about 24 hours a day because it is so uncomfortable.
We really should start a support group. I know it would help me so much.
I have been experiencing everything everyone else here has for about 18 months now. It started with my scalp, then my neck, face, then my entire body.
It has taken over my life, I have no life anymore. It's all I think about 24 hours a day because it is so uncomfortable.
We really should start a support group. I know it would help me so much.
I’m having the same issues and started taking it Ketoconizole 200mg. I’ve been on it for four weeks and I am not seeing a lot of improvement. My hair was part of me and I’ve always been a big hair people. This is completely taking away my identity, and I am beyond depressed. Have you had any success in treating this please let me know. Thanks, Jill.
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I honestly think it’s something called pityriasis amiantacea. I started putting olive oil on my hair to allow me to lossen it a bit and it does seem to help. Im still gathering data to figure out what the treatment entails. But what’s hopeful is that there is a treatment for it. But I’m not 100% sure it’s pityriasis amiantacea. Look it up and let me know what you think. A year ago there was very little info about this, but now there’s a lot more info available because this became an issue for many American women in the last few years aged 25-50. Hang in there Jill, you are definitely not alone and we all know how you feel.
Laura
Laura
Several years ago I noticed my scalp felt like it was way "too tight": like the old fashioned rubber swimming caps. It has the same white waxy film allover it
Over the years it has gotten much worse..the " bugs", bacteria. fungus or whatever..camps on my hairline and come out,especially at night & invade all the skin on my body It is also in my eyebrows. It also manifest as a strange film over my eyes. And painful subacious gland swelling( especially in my ears.
The hot humid weather exacerbates the problem.
I have.jumped.out of bed and scratched my hair like a crazy woman. lately I do the same with my body. My cat appears to have similar symptoms. we both have changes in our hair texture. Bites have became a bigger part of this. Always very allergic to bugs.this has gotten so neither my cat can relax.before a sharp pain attracts one of us . Sleeping is difficult..It feels as though these "things" like to feed from my eyes ,nose, & mouth(mainly for water?)
Maybe this is a combo of bacteria.bugs, or some fungus?
I have had plumbing leaks..the dampness is difficult to totally get rid of. I clean out springjacks. Silverfish. Some creepy wet moths. I clean constantly until I drop from pain and/or exhaustion.
My immune system has been weak since I was a child. I do all types of both "natural" , & OTC.& Rx. Meds.
My brother put me in a psych unit for almost a month for those symptom several years ago.. I think being out of my infested house helped. But no thing else they did. Most everyone thinks it is "all in my head" But it is also so much in my poor body
Thanks for listening. As I am sure you understand. I could keep rattling on. . but I am grateful to have found this community. Any help would be appreciated. I live in SE Iowa....It is winter, so am stuck indoors which is hard for me & kitty. God Bless You All. I will pray for you.
Over the years it has gotten much worse..the " bugs", bacteria. fungus or whatever..camps on my hairline and come out,especially at night & invade all the skin on my body It is also in my eyebrows. It also manifest as a strange film over my eyes. And painful subacious gland swelling( especially in my ears.
The hot humid weather exacerbates the problem.
I have.jumped.out of bed and scratched my hair like a crazy woman. lately I do the same with my body. My cat appears to have similar symptoms. we both have changes in our hair texture. Bites have became a bigger part of this. Always very allergic to bugs.this has gotten so neither my cat can relax.before a sharp pain attracts one of us . Sleeping is difficult..It feels as though these "things" like to feed from my eyes ,nose, & mouth(mainly for water?)
Maybe this is a combo of bacteria.bugs, or some fungus?
I have had plumbing leaks..the dampness is difficult to totally get rid of. I clean out springjacks. Silverfish. Some creepy wet moths. I clean constantly until I drop from pain and/or exhaustion.
My immune system has been weak since I was a child. I do all types of both "natural" , & OTC.& Rx. Meds.
My brother put me in a psych unit for almost a month for those symptom several years ago.. I think being out of my infested house helped. But no thing else they did. Most everyone thinks it is "all in my head" But it is also so much in my poor body
Thanks for listening. As I am sure you understand. I could keep rattling on. . but I am grateful to have found this community. Any help would be appreciated. I live in SE Iowa....It is winter, so am stuck indoors which is hard for me & kitty. God Bless You All. I will pray for you.
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Bugs love mold and some love cats and other mammals. There's a few things it could be but probably the best thing you can do is strengthen your immune system. Have you taken the cat to the vet? They're usually better equiped to diagnose something in a cat than the doctors are with humans. There's Information available on Facebook with groups of people suffering from morgellens. Also there was a site called ************ with lots of information but I'm not sure it's up still. I do believe that the sooner it gets treated the better chance of success.
I’ve come to the conclusion that this is a biofilm, unfortunately biofilm shave been the sleeping dragon we weren’t aware of thanks to how we culture bacteria. Biofilm poses a huge threat to humanity and have only grown stronger thanks to doctors over prescribing antibiotics. Anywho…that’s a bummer, BUT, I’ve been keeping up on the research being done at Indiana University School of Medicine where they are seeing very positive results from the use of static electricity on biofilms from wounds…there’s steps to treating biofilm, breaking through the biofilm (static electricity, h2O2, etc), then the killing the bacteria inside the biofilm, then removal of the debris. Do some research, stay safe though, don’t do something that will cause more harm than good. Go rub a balloon on your head?
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I’ve been saying biofilms is what’s causing all this too, I’ve been using red light therapy and also a high frequency wand and taking numerous herbal tinctures parasite killers and enzymes and also moisturizing with olive oil rosehip a and grape seed oil, I try to be very clean and careful as I have twins who are two and I can see the effects appearing on them and it’s like they can almost tel what’s going on and point it out on me point to my eyes and eyebrows and ears a lot as if trying to rub something off it’s crazy, these kids have allowed me to really get in touch and also to distance myself from phone usage etc, I’ve hardwired my internet cus wifi has horrible effects especially 5g with your micro biome and I try to minimize the amount of electricity use and technology use as I feel it doesn’t help either , i also use grounding sheets for sleep, but I encourage everyone to try keeping their wifi Bluetooth and gps off and not sleeping by their phones as that stuff can enhance the activity of the germs aand bacteria etc.
After very much researching and pictures after pictures I too had long hair I have a swimming pool I live in the desert and I do water haul I do believe there was cross-contamination from the pool to our water Hall tank to the fresh water holding tank. I found out that I have white mold. I found out that two parts of rubbing alcohol one part of dish soap has helped remove it off my body and my scalp however it didn't remove all of it may take a few treatments. I cannot put rubbing alcohol in my eyes though. Does anyone know how to treat the eyes? I have the same symptoms as everyone else on here hair is curling up into the scalp it's really not the scalp it's a bile film it is not dandruff but once I get the hair pulled out of the twist it instantly will dry and very powdery poof this is what I believe to be molds for I have taken pictures of my shower that leaks my swimming pool my water hauling tank my fish water tank all the patterns match. People the answer is white mold I hope this is very helpful I have been through the most miserable time of my life been severely sick for 2 years. All my clothing my camper my vehicle are all contaminated. I'm on my way to the emergency room with my pictures and all my proof and if they refuse to help me I just may go postal. At least I'll get treatment in jail. Please people check into the white mold the alcohol and the dish soap is working. It is two parts alcohol one part dish soap says leave it on for 5 minutes but that is for surfaces I think it needs to be left on a little longer for skin and hair it will help you
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Rohto All-in-one (blue bottle) eye drops are literally the only things that make my eyes feel clean! Until this got my eyes so clean I didn't even realize how slimy and filmy they felt even though I knew they felt filmy. You know borax really helps a lot on the skin issue and these eye drops have boric acid in them and they help tremendously they also burn a lot but they help tremendously once that wears off after about 5 or 10 minutes.
Tobramycin and Dexamethasone Ophthalmic Suspension, USP
3 times a day each eye
best way to get it outta your hair in a hurry(not permanent) linocain or chloreseptic or even strawberry mouth numbing spray, lol hey it works, squirt and rub into scalp
add: aloe, cedarleaf,cinnamon oil,and the thickest bubbliest soap possible, slap it on your ears and hairline as fast as possible, then fully coat
youll see it start to literally crawl out of your head
coat entire head with vasoline or pure coconut horse coat salve
rip one side of a gallon freezer bag, make it your super duper freezer bag helmet
rock it as long as you can stand
then sit on the edge of the tub with the hottest water possible running
and fine comb or bristle brush the yuck out
rinse every swipe
itll look like wet toliet paper
then magic bubble your entire surroundings ceiling to floor
you get like a day or 2 of freedom from this BS
3 times a day each eye
best way to get it outta your hair in a hurry(not permanent) linocain or chloreseptic or even strawberry mouth numbing spray, lol hey it works, squirt and rub into scalp
add: aloe, cedarleaf,cinnamon oil,and the thickest bubbliest soap possible, slap it on your ears and hairline as fast as possible, then fully coat
youll see it start to literally crawl out of your head
coat entire head with vasoline or pure coconut horse coat salve
rip one side of a gallon freezer bag, make it your super duper freezer bag helmet
rock it as long as you can stand
then sit on the edge of the tub with the hottest water possible running
and fine comb or bristle brush the yuck out
rinse every swipe
itll look like wet toliet paper
then magic bubble your entire surroundings ceiling to floor
you get like a day or 2 of freedom from this BS
ITS WHITE MOLD. After very much researching and pictures after pictures I too had long hair I have a swimming pool I live in the desert and I do water haul I do believe there was cross-contamination from the pool to our water Hall tank to the fresh water holding tank. I found out that I have white mold. I found out that two parts of rubbing alcohol one part of dish soap has helped remove it off my body and my scalp however it didn't remove all of it may take a few treatments. I cannot put rubbing alcohol in my eyes though. Does anyone know how to treat the eyes? I have the same symptoms as everyone else on here hair is curling up into the scalp it's really not the scalp it's a bile film it is not dandruff but once I get the hair pulled out of the twist it instantly will dry and very powdery poof this is what I believe to be molds for I have taken pictures of my shower that leaks my swimming pool my water hauling tank my fish water tank all the patterns match. People the answer is white mold I hope this is very helpful I have been through the most miserable time of my life been severely sick for 2 years. All my clothing my camper my vehicle are all contaminated. I'm on my way to the emergency room with my pictures and all my proof and if they refuse to help me I just may go postal. At least I'll get treatment in jail. Please people check into the white mold the alcohol and the dish soap is working. It is two parts alcohol one part dish soap says leave it on for 5 minutes but that is for surfaces I think it needs to be left on a little longer for skin and hair it will help you
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You say "white mold" that's not a specific mold which type of mold are you speaking of??
Hi, all.
This is the first place online I’ve found anything resembling what’s going on with me.
It started for my in my lady-bits area, with little folds of skin on the exterior that seemed to get “stitched” together with what I assumed at the time was hair. It progressed to flattening down the body hair and covering it in some places, or getting it all snarled up under the surface of something that felt like rubbery skin but wasn’t my skin. Sometimes hairs would grow through my skin trying to get out, though. Then it deformed and glued together some anatomy inside the labia and grew a rubbery film over my leg creases that trapped hair there.
Other places on my body would get a film-like patch that was textured oddly, or strands of kind of gummy film. It could be peeled off to relieve itching, which works for a while and then it would come back.
It finally got on my head, where it is the most reactive and aggressive. I’m bald in some spots now. My dermatologist thinks I’m pulling my own hair out. I’m not! I get hair stuck under “skin” (?) on the back of my neck, my cheeks and forehead, the corners of my eyes, behind my ears, IN my ears… in some places I can nick a fingernail under and peel a hair out. In others (the big bald spots) the hair really seems to all be gone, and a lot of the follicles too.
How many of you are still dealing with this? I feel like we need some way of keeping in touch better so we can talk about what works/doesn’t and share information. Maybe a Facebook group, idk. What do you think?
This is the first place online I’ve found anything resembling what’s going on with me.
It started for my in my lady-bits area, with little folds of skin on the exterior that seemed to get “stitched” together with what I assumed at the time was hair. It progressed to flattening down the body hair and covering it in some places, or getting it all snarled up under the surface of something that felt like rubbery skin but wasn’t my skin. Sometimes hairs would grow through my skin trying to get out, though. Then it deformed and glued together some anatomy inside the labia and grew a rubbery film over my leg creases that trapped hair there.
Other places on my body would get a film-like patch that was textured oddly, or strands of kind of gummy film. It could be peeled off to relieve itching, which works for a while and then it would come back.
It finally got on my head, where it is the most reactive and aggressive. I’m bald in some spots now. My dermatologist thinks I’m pulling my own hair out. I’m not! I get hair stuck under “skin” (?) on the back of my neck, my cheeks and forehead, the corners of my eyes, behind my ears, IN my ears… in some places I can nick a fingernail under and peel a hair out. In others (the big bald spots) the hair really seems to all be gone, and a lot of the follicles too.
How many of you are still dealing with this? I feel like we need some way of keeping in touch better so we can talk about what works/doesn’t and share information. Maybe a Facebook group, idk. What do you think?
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I’m so sorry you are having to deal with this awful affliction. I’m 4 years in and even though mine is seemingly reversing and coming out, it is excruciating and slow going. No doctors have helped and all think I’m doing this to myself somehow. You can private message your email on here if you want to talk more about it.
**** This is a bit all over the place, tired not in the mood to edit, the content is all there, everything you need to know is here, experiment/feel free to PM me! I want to help!! ****
Note (this isn’t about or not about Morgellons it works its way in there but more just for the sake of conversation. Maybe I have it but it turns out what it is is a “syndrome,“ brought on by what I explained. below. Just a way to get give something a name, what’s needed is the missing piece, an overgrowth/spiral of hair seems to be the missing link to the symptoms/ body loaded with word keratin/collagen activity.
Problem solved!!!! It’s hair! The major clue was it’s reaction to Nair!
The “Morgellons,“ fibers came flying right out of my skin. when I applied the Nair! I don’t know that everybody else but if The lesions/fibers etc. react to depilatory and your head is overgrown, it isn’t Morgellons, it would mean Morgellons is a bunch of bored housewives who just didn’t know what to think. I’m not saying it exists or if it doesn’t, I just know that I have all of the symptoms and what I explained below is what happened. If you know anything about engineering etc. or just basic science you can look online at some of the women’s experiments with the Morgellons hairs and you will see what the skeptics are saying. Then again the people who are making some of the videos and talking about it may not actually have Morgellons, it’s just something. Watch all of the stuff reacts to depilatory, make sure of include oxygen (moving around) and had a tiny bit of water. It doesn’t say to do that in the instructions but you got a mess of a little bit.
Unfortunately I am not a believer in more jealous, not in my case. If it reacts to NAIR (Or other depulatoratory, I like the Nair “face” formula the best) it is hair and byproducts collagen stomach breaking down and just growing and everything over the years. I gave her a message I didn’t say I have excellent hygiene and I don’t even have a beer, I am cocaine cut,“ I did have my hair in a ponytail and used pomade etc. but I was like 20 something, I think it locked down then and the pomade kept it down while it tightened up my regular hair continue to grow right through it.
Not “mostly,” “oo%,” “pretty much,” or “virtually,” solved… It’s fully solved. Mind you, there are residual effects incl. trauma of all most of then stuff you guys have listed- included is a 72 hour “voluntary” hold at a psyche hospital because of my “delusion”/”psychosis” involving a “scalp under my scalp,” (it was hyperbole not literal) I made the mistake in thinking that someone (most people) at the ER would have done idea about what I was complaining about- I honestly forgot what initially brought me the their.
It is HAIR!
. The way it reacted to Nair! was the giveaway. I’m a pilot and have a background in engineering- this was the biggest mystery of my entire life,
, it will take a few weeks/ month+, you want to work slow, and prevent irritation.
It’s ALL hair. Start with NAIR, it needs oxygen so make sure to Rob it in/use your nails a bit to reallly get it in there. The hair is a big SWIRL 10,20, 30+ year old swirl, MINE covered my whole body that’s the “slime” people are taking about. Your hair is oily after a week, a decade, lifetime will yield “waxy” (to say the least) yes you have been washing but you haven’t paid attention to the giant swirl that has/is continuing to twist on your head. For me it has been, overall, the most maddening, frustrating and simply life ruining/pausing evehts of my entire 45 years.
people who describe the “holes,” on the scalp, that is the center of the swirl. Nair, a bunch of high quality disposable razors, a high quality electric razor (with the screen not rotary, a VERY high quality WHAL/Andis brand buzzer. Start from the outside (margins) and work in. Around the ears, even onto the ear. Go way way outside the edge of your hairlines, like two inches.
Use the high quality “trimmer” abd grab a “buzzer” as well. The thing that finally worked for me was when I used the guides (start with the size #1, this way it doesn’t have to bite into it, you want the sharp/powerful buzzer to just be skimming the surface. However for the first cut just start from the front’ abd use the trimmer Rob bites into it, once you make a goood cut into it you with start to feel, the first of many, releases of tension yiu didn’t know was there.
It’s probably all over your body, don’t start low. Down on your body, if you cut into the “slime” (hair) on (for guys) your chest, it will get pulled up, perhaps around your neck (I felt pressure on the side of my neck, oh yeah that’s how I wound up in the ER, I thought I was getting strangled, it (the hair) settled/balanced out, felt pressure on my carotid artery so I freaked out. I figured it was better to save my life… A little bit of pressure around your neck can be pretty damn scary.
Oh by the way if you’re having some dental issues, look into this.
Look up “hair tourniquet,” and relation to
dental issues.
The damn thing wrapped around one of my teeth, I didn’t have a receding gum line, I had hair pulling, that’s just one of the many “highlights,” if you have suddenly started having some dental issues maybe even kind of symmetrical looking cuts into your teeth look into
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INLRTANT.
OH BY THE WAY,,, the hairs are mostly INVISABLE, nothing “magic” just really long “Vellus” hairs. Maybe THAT is the secret to what “Morgelens” is, really long hairs that shoul be “peach fuzz,” again with a good tweezer the will slide, you feel it you just wonder, “where the heck did it go?” Whose you shouldn’t/can’t “shave” with depilatory, you will need to move them around, tell me your method, I still have some more left. You obviously need to shave, your head and keep it that way, I want to grow my hair back.
I said I had the cure/answer, still not done though. Oh, I have Cortizone cream, I got it so irritated that I wound up on prednisone for a bit. Get some prescription Cortizone cream he will wind up screwing up and irritating things. I’ll share with an air, when it crisps,” up, shake it was the razor with the screen (electric) again tell me your method. We will beat this. The question is why does your body produce these tiny little hairs?
I’m pretty sure that all of the hair that got into the spiral eventually just had the follicles get out (fortunately not all the way) these tiny little “Vellus,“ hairs as opposed to “terminal,“ which other ones you can see.
Uggggh! Hey, at least we know what it is now!
fully transparent and REALLY thin. Nair or something that works well for you “magic” brand as well. They are so tiny that when they get the slightest bit compacted down they congegele and feel like rubber/wax,
You can “feel” them by using (get a bunch h high quality (“Tweezerman” brand) teeezers. You can SLIDE them but you can’t pluck them. Absolutely ideal would be to pull them onto a piece of paper
OH BY THE WAY,,, the hairs are mostly INVISABLE, nothing “magic” just really long “Vellus” hairs. Maybe THAT is the secret to what “Morgelens” is, really long hairs that shoul be “peach fuzz,” again with a good tweezer the will slide, you feel it you just wonder, “where the heck did it go?” Whose you shouldn’t/can’t “shave” with depilatory, you will need to move them around, tell me your method, I still have some more left. You obviously need to shave, your head and keep it that way, I want to grow my hair back.
I said I had the cure/answer, still not done though. Oh, I have Cortizone cream, I got it so irritated that I wound up on prednisone for a bit. Get some prescription Cortizone cream he will wind up screwing up and irritating things. I’ll share with an air, when it crisps,” up, shake it was the razor with the screen (electric) again tell me your method. We will beat this. The question is why does your body produce these tiny little hairs?
I’m pretty sure that all of the hair that got into the spiral eventually just had the follicles get out (fortunately not all the way) these tiny little “Vellus,“ hairs as opposed to “terminal,“ which other ones you can see.
Uggggh! Hey, at least we know what it is now!
fully transparent and REALLY thin. Nair or something that works well for you “magic” brand as well. They are so tiny that when they get the slightest bit compacted down they congegele and feel like rubber/wax,
You can “feel” them by using (get a bunch h high quality (“Tweezerman” brand) teeezers. You can SLIDE them but you can’t pluck them. Absolutely ideal would be to pull them onto a piece of paper
DISCLAIMER: I AM NOT A DOCTOR. I HOLD NO CERTIFICATIONS FOR COSMETOLOGY NOR HAVE I WORKED IN THAT FIELD. THIS INFORMATION IS NOT INTENDED TO TREAT, CURE OR DIAGNOSE ANY DISEASE. I’M NOT RESPONSIBLE FOR ANYTHING THAT MAY HAPPEN AS A R LOLESULT OF TAKING TAKE MY ADVICE AS CONING FROM “JUST SOME GUY” TALKING ABOUT ANECDOTAL EVIDENCE.
THIS INFORMATION HAS BEEN COMPILED BY MYSELF OVER THE COURSE OF ROUGHLY 6 MONTHS. I’M NOT GOING TO BE DESCRIBING MY SYMPTOMS,AND EXPERIANCED THEY ARE YOURS.
NEVERTHELESS HERE IS A “HIGHLIGHT” OF MY EXPERIENCE- THIS WILL CERTAINLY LET YOU KNOW I’M PART OF THE “CLUB.”
AS I WAS FIGURING EVERYTHING OUT/TRIAL & ERROR I WAS BRIEFLY HOUSED IN NYC’S FAMOUS BELVUE PSYCHIATRIC HOSPITAL. I HAD COME IN WITH CHEST TIGHTNESS
WITH MY NEVK BEING SCRAPED UP FROM A RAZOR AND “RAMBLING” ABOUT “HAIR UNDER MY SCALP. I WAS “VOLUNTARILY” (TO PREVENT INVOLUNTARY i.e. COERCION AND INTIMIDATION) (COMMITTED FOR BEING “PSYCHOTIC. I MADE A STUPID BUT PURPOSELY NON THREATENING COMMENT.”
(Caps got annoying,,for all of us I’m sure)!, just wanted to use them for the “disclaimer”)
Anyway I was having chest tightness (anxiety), this was from my overall level of angst being through the roof. The fact is when you are being inadvertently “gaslit” by literally everyone you can certainly question your sanity, you think “maybe I really am ‘crazy,” you’re not.
Ok so what is it?
OK SO HERE IS HOW TO FIX IT:
It is a tangle of VERY VERY fine “vellus hairs.” They have fused/keratonized over many, maybe most of your life.
Did you ever have dreads?
Super tight braids?
A tangle of some sort that was so tight it just kinda became “part of your scalp,” it was tied down in the back, top, everywhere. It made it so tight I couldn’t even tell that it was there, my hair was (I don’t know how) growing through it.
When I shaved it off, it extremely hard to start the buzzer. When I thought it was done I would discover an other layer like a week later . The hairs looked like they were my “scalp” because the invisible, Vellus hairs intertwined and just kinda held everything in place, the whole thing was very close to flesh tone.
Mine started off with what must have been 20+ years of tangle. The hair tied itself down to my scalp in an in credibly intricate way. Like two spirals If you take a tweezer and grab some of does it move around like a weird solid but not go anywhere?
So essentially this is your hair with a decades old literal network of Vellus hairs holding them together. The hairs are super soft and fine so they just kinda stay in place. In the places they are woven down side by side they look like a solid wax.
Ok so HERE is how to fix it. So here is what you need to get all off!
• NAIR (the magic ingredient!) the “face” variety is more gentle on your skin, you can try different depilatories if you wish, but this is what I used.
• A HIGH QUALITY BUZZER, the “Whal Peanut,” or better. We want it sharp and precise, it’s just better this way,
• A HIGH QUALITY ELECTRIC RAZOR, the kind with a screen (not the circles or whatever) I like Braun.
• DISPOSABLE RAZOR W/plenty of extra blades. The Gillette “Fusion Sensitive” was ideal for me. You want everything to be as
non irritating as possible.
• SHAVING CREAM
• VASOLINE (to provides lunrication for getting out knots)
• CORTISONE CREAM(make sure to use very little, if you have/get strong Rx cream and you put on too much it can literally make you jittery/heart race. Like everything else I learned “the hard way.” In that case I used soap and water, washed it off and took a Klonipin or Xanax (get some).
• A “TWEEZER MAN” SLANTED TWEEZER (keep it clean with Alcohol so it grabs better)
• A “TWEEZERMAN” pointed tweezer, I really liked the (unusually shaped) “splinter model.”
• “TEND SKIN” you will be using this to remove the ingrown hairs on the margin.
First, if you haven’t you need to shave your head, just do it. The good news is that the “bald spots” will be revealed as exactly what they are- hair. It’s all hair.
OK, because you are dealing with hair, and pretty much only hair you will be dissolving it with -NAIR- this will be a wonderful moment. You should work from the edges up, this way you won’t mess up the “ballance.”
The balance is very important if it is super tight, that’s how mine “plastisized,” (seems like a good name) it will pull on one side and maybe even feel scary on your neck. Remember you may have slot of ingrown (white) hairs around your neck, expose and get rid of these with the Nair and razors. If you have these they came from tiny hairs collecting over the years, they traveled down your body with sweat/gravity and got into different creases and seem to have hardened with something. That’s what I came up with.
If they are around your neck/shoulders it is way more important than your head. Slowly get rid of it, get help from somebody who has a better feel for this type of stuff if you don’t get it. Remove keep it balanced, this includes the back. DO THIS SLOWLY! ANYTIME I WENT TO FAST/CARELESS (mostly during trial and error) something put pressure around my neck and I (nearly) panicked. Keep your high quality, buzzer, shaver and blades at the ready.
These hairs are acseoerstr issue but if the overgrowth/knowingness got to this level on your head it is probably doing stuff elsewhere. Put a small amount of Nair on your chest (sweat runs down your chest). If there are a lot GET HELP from a Dr. take video etc.
The ingrown hairs around your neck is one of the places where the electric razor will help out. If it got this tight around your head for the tight spouse then use the electric razor to slow log and carefully even it out, If this is your case it will take practice.
So for your head, a put some Nair in the small area you are ready to talkie.,work in small patches from the margins up. For example 2 inches up left side burns then 2 inches right sideburn.
The Nair will immediately expose and remove hairs, follow the instructions, move with a hot towel etc. You will then see the hair get kinda “crisp” (I hate that word) this will just keep happening.
So as the hair hardens/gets crispy or whatever this is where your choice of razors comes in. Just keep Naring and removing, slowly,
Use the other stuff as you see fit. The powder is to put all over yourself if it gets tight around your neck while wet, it will loosen it a bit. Again because this comes from hair that got tight that didn’t know about, the ingrown (mine were thick and white) are prob part of it.
Remember, your scalp has been covered for a long, maybe very long time. Get it checked by a Dermatologist, oh avd here is a tip. Just show the doctor(s) your symptoms, let them figure it out. Don’t mention the waxy feeling, they are wearing gloves and it will just add to their BS.
Hope this helped. Good Luck!
Feel free to opt paste this as you wish
I’m not asking for money but if this info saved you the way it did for me, feel free to send me some. II would have paid anything for this info and I could really use some help with med. etc. expenses. Again I’m not selling medical advice, but if my story inspires you to lol :-)
I’d really really appreciate it!
PayPal: ***@****
Feel free to use that email to say hi if you wish, I’d love to hear how this worked for you.!
THIS INFORMATION HAS BEEN COMPILED BY MYSELF OVER THE COURSE OF ROUGHLY 6 MONTHS. I’M NOT GOING TO BE DESCRIBING MY SYMPTOMS,AND EXPERIANCED THEY ARE YOURS.
NEVERTHELESS HERE IS A “HIGHLIGHT” OF MY EXPERIENCE- THIS WILL CERTAINLY LET YOU KNOW I’M PART OF THE “CLUB.”
AS I WAS FIGURING EVERYTHING OUT/TRIAL & ERROR I WAS BRIEFLY HOUSED IN NYC’S FAMOUS BELVUE PSYCHIATRIC HOSPITAL. I HAD COME IN WITH CHEST TIGHTNESS
WITH MY NEVK BEING SCRAPED UP FROM A RAZOR AND “RAMBLING” ABOUT “HAIR UNDER MY SCALP. I WAS “VOLUNTARILY” (TO PREVENT INVOLUNTARY i.e. COERCION AND INTIMIDATION) (COMMITTED FOR BEING “PSYCHOTIC. I MADE A STUPID BUT PURPOSELY NON THREATENING COMMENT.”
(Caps got annoying,,for all of us I’m sure)!, just wanted to use them for the “disclaimer”)
Anyway I was having chest tightness (anxiety), this was from my overall level of angst being through the roof. The fact is when you are being inadvertently “gaslit” by literally everyone you can certainly question your sanity, you think “maybe I really am ‘crazy,” you’re not.
Ok so what is it?
OK SO HERE IS HOW TO FIX IT:
It is a tangle of VERY VERY fine “vellus hairs.” They have fused/keratonized over many, maybe most of your life.
Did you ever have dreads?
Super tight braids?
A tangle of some sort that was so tight it just kinda became “part of your scalp,” it was tied down in the back, top, everywhere. It made it so tight I couldn’t even tell that it was there, my hair was (I don’t know how) growing through it.
When I shaved it off, it extremely hard to start the buzzer. When I thought it was done I would discover an other layer like a week later . The hairs looked like they were my “scalp” because the invisible, Vellus hairs intertwined and just kinda held everything in place, the whole thing was very close to flesh tone.
Mine started off with what must have been 20+ years of tangle. The hair tied itself down to my scalp in an in credibly intricate way. Like two spirals If you take a tweezer and grab some of does it move around like a weird solid but not go anywhere?
So essentially this is your hair with a decades old literal network of Vellus hairs holding them together. The hairs are super soft and fine so they just kinda stay in place. In the places they are woven down side by side they look like a solid wax.
Ok so HERE is how to fix it. So here is what you need to get all off!
• NAIR (the magic ingredient!) the “face” variety is more gentle on your skin, you can try different depilatories if you wish, but this is what I used.
• A HIGH QUALITY BUZZER, the “Whal Peanut,” or better. We want it sharp and precise, it’s just better this way,
• A HIGH QUALITY ELECTRIC RAZOR, the kind with a screen (not the circles or whatever) I like Braun.
• DISPOSABLE RAZOR W/plenty of extra blades. The Gillette “Fusion Sensitive” was ideal for me. You want everything to be as
non irritating as possible.
• SHAVING CREAM
• VASOLINE (to provides lunrication for getting out knots)
• CORTISONE CREAM(make sure to use very little, if you have/get strong Rx cream and you put on too much it can literally make you jittery/heart race. Like everything else I learned “the hard way.” In that case I used soap and water, washed it off and took a Klonipin or Xanax (get some).
• A “TWEEZER MAN” SLANTED TWEEZER (keep it clean with Alcohol so it grabs better)
• A “TWEEZERMAN” pointed tweezer, I really liked the (unusually shaped) “splinter model.”
• “TEND SKIN” you will be using this to remove the ingrown hairs on the margin.
First, if you haven’t you need to shave your head, just do it. The good news is that the “bald spots” will be revealed as exactly what they are- hair. It’s all hair.
OK, because you are dealing with hair, and pretty much only hair you will be dissolving it with -NAIR- this will be a wonderful moment. You should work from the edges up, this way you won’t mess up the “ballance.”
The balance is very important if it is super tight, that’s how mine “plastisized,” (seems like a good name) it will pull on one side and maybe even feel scary on your neck. Remember you may have slot of ingrown (white) hairs around your neck, expose and get rid of these with the Nair and razors. If you have these they came from tiny hairs collecting over the years, they traveled down your body with sweat/gravity and got into different creases and seem to have hardened with something. That’s what I came up with.
If they are around your neck/shoulders it is way more important than your head. Slowly get rid of it, get help from somebody who has a better feel for this type of stuff if you don’t get it. Remove keep it balanced, this includes the back. DO THIS SLOWLY! ANYTIME I WENT TO FAST/CARELESS (mostly during trial and error) something put pressure around my neck and I (nearly) panicked. Keep your high quality, buzzer, shaver and blades at the ready.
These hairs are acseoerstr issue but if the overgrowth/knowingness got to this level on your head it is probably doing stuff elsewhere. Put a small amount of Nair on your chest (sweat runs down your chest). If there are a lot GET HELP from a Dr. take video etc.
The ingrown hairs around your neck is one of the places where the electric razor will help out. If it got this tight around your head for the tight spouse then use the electric razor to slow log and carefully even it out, If this is your case it will take practice.
So for your head, a put some Nair in the small area you are ready to talkie.,work in small patches from the margins up. For example 2 inches up left side burns then 2 inches right sideburn.
The Nair will immediately expose and remove hairs, follow the instructions, move with a hot towel etc. You will then see the hair get kinda “crisp” (I hate that word) this will just keep happening.
So as the hair hardens/gets crispy or whatever this is where your choice of razors comes in. Just keep Naring and removing, slowly,
Use the other stuff as you see fit. The powder is to put all over yourself if it gets tight around your neck while wet, it will loosen it a bit. Again because this comes from hair that got tight that didn’t know about, the ingrown (mine were thick and white) are prob part of it.
Remember, your scalp has been covered for a long, maybe very long time. Get it checked by a Dermatologist, oh avd here is a tip. Just show the doctor(s) your symptoms, let them figure it out. Don’t mention the waxy feeling, they are wearing gloves and it will just add to their BS.
Hope this helped. Good Luck!
Feel free to opt paste this as you wish
I’m not asking for money but if this info saved you the way it did for me, feel free to send me some. II would have paid anything for this info and I could really use some help with med. etc. expenses. Again I’m not selling medical advice, but if my story inspires you to lol :-)
I’d really really appreciate it!
PayPal: ***@****
Feel free to use that email to say hi if you wish, I’d love to hear how this worked for you.!
3 Comments
This is very interesting: did you say it started as a response to nair? I seriously used nair on my face and close to hairline right before this problem arose in 2020. I feel like it’s in my throat somehow
It is in your throat! And in your mouth, around your teeth, gums and tongue!! Mine is coming unraveled and the hair in the mouth is pulling my teeth crooked.
It’s also in your eyes and ears and up the nose into the sinuses. I didn’t realize all of this until it really started coming out.
White piedra
1 Comments
I've often wondered about white Piedra. I live in the desert and it's not humid so they won't even listen to me the doctors in dermatologist and I'm doing the antifungal shampoos it is not helping at all I even went on one anti-fungal one pill a week for a month and they won't give me any more it seemed to help a little but I'm right back where I started I don't know what else to do
Please I fear this is going to kill my partner and myself. Suffering from this exact same symptoms I have had to cut
All my hair off including my scalp (I am female) it grows back black and thick and matted together and stuck under this waxy transparent like film I have felt sick physically now for around 10 months it started with loss of some of my eyebrows and lesions appearing to full blown lesions no eyebrows just now block dot like hairs that grow back all drs miff us off make us feel like we are crazy it’s deformed my partners neck with scarring from lesions and giant hairs that come from seemingly no where and black thick hairs that fight to stay In with large black gooey bulbs some even look like legs of bug burrowed in I can’t explain it alls I know is it’s killing us and I don’t know what else to do this is emotionally killing me and my partner also we don’t want to hardly leave the house because of fear of spreading whatever this is and or someone noticing and assuming we are just crazy or druggos which we aren’t neither off I wish it was something that simple then we could get help and get better! With this I see a bleak outlook and I’m scared. Tired. Drained I have disabled child who needs me and I’m scared of what this could do if affects other people close to me please someone help
All my hair off including my scalp (I am female) it grows back black and thick and matted together and stuck under this waxy transparent like film I have felt sick physically now for around 10 months it started with loss of some of my eyebrows and lesions appearing to full blown lesions no eyebrows just now block dot like hairs that grow back all drs miff us off make us feel like we are crazy it’s deformed my partners neck with scarring from lesions and giant hairs that come from seemingly no where and black thick hairs that fight to stay In with large black gooey bulbs some even look like legs of bug burrowed in I can’t explain it alls I know is it’s killing us and I don’t know what else to do this is emotionally killing me and my partner also we don’t want to hardly leave the house because of fear of spreading whatever this is and or someone noticing and assuming we are just crazy or druggos which we aren’t neither off I wish it was something that simple then we could get help and get better! With this I see a bleak outlook and I’m scared. Tired. Drained I have disabled child who needs me and I’m scared of what this could do if affects other people close to me please someone help
2 Comments
After recently noticing my hairline was starting to move back again, I began using only THIS body wash ( https://www.amazon.com/dp/B082V7Y2M6/ref=cm_sw_r_cp_api_i_CNA5MYBMWBAAKWRM9H6V ) & white distilled vinegar in the shower, Going from head to toes letting my head soak as long as possible with the soap. I wear gloves as to not spread it any further from skin to skin contact, and a body scrubber to help remove the layers of skin.
The first couple washes will look like an extreme case of dandruff, but after blow drying its easier to hide. After a week my hairline is back to where it should be.
I’m considering adding vinegar into my regular shampoos and washes. And wearing gloves during these flareups has helped tremendously with keeping it from affecting my infant son.
The first couple washes will look like an extreme case of dandruff, but after blow drying its easier to hide. After a week my hairline is back to where it should be.
I’m considering adding vinegar into my regular shampoos and washes. And wearing gloves during these flareups has helped tremendously with keeping it from affecting my infant son.
Black piedra is probably what you're dealing with. I suffer from white piedra. It's been frustrating asf
So Im 27 F , & I have been dealing with this problem for almost a year. I actually went through an entire pregnancy while it progressively got worse.. my doctor used to pull me aside to ask if I was using drugs while pregnant, and I had never been so embarrassed and mortified. But I couldn’t blame her for asking, I looked awful! Waxy skin from head to toe that only seemed to get thicker after every shower. Red ulcerated lesions covered my arms, legs, and even my belly. Peroxide, apple vinegar, tea tree oil.. I tried them all!
And then my son was born and immediately we noticed that he had some white patches in his mouth. Asking the nurse of it, she says it was oral thrush (yeast infection of the mouth.)
I went home and thought nothing of it until a couple months later, we bought a humidifier to help the baby breathe. After a few days, my son’s whole body began to break out in red bumps and sticky skin. My own rash got even worse to where I looked like I had gotten extremely sunburnt everywhere. my boyfriend wrote it off as regular allergies, but I knew better. I began searching my home for whatever my sons skin was reacting to, and then I discovered mold scattered around here and there.
Immediately we all went to the doctors and I asked if it was possible that both our rashes were related. TMI, but He asked me if tended to have frequent yeast infections. Which I had had several through out my pregnancy..
He said that with pregnancy, my immune system was compromised, thus making me prone to any infections, especially fungal. And with mold in my home, it would’ve only amplified my infection by causing a yeast overgrowth covering my entire body. My son being born with yeast, as well as breastfeeding with constant skin contact, when we used that humidifier, it only applied our infections by creating moisture in the air. Systemic candidiasis.
I was given 1 dose of oral fluconozole. I bought a couple boxes of “Monistat: Vaginal Yeast Infection cream” and applied it after bathing to both of our entire bodies. His son cleared up in just hours. My own was a bit tougher to crack, so I also began taking daily AZO Yeast Plus tablets. After a week, my skin has calmed down tremendously. My hair looks slightly fuller, and still using apple cider in the shower, I now can feel the thick coating falling off my skin when I rinse. I’m almost hopeful that in a couple weeks, I might be my old self again.
Just thinking how most of us are women, and Yeast is far more common with us then men. Having fungus in your home, could very well make a fungal infection more severe. Hope this helps someone!!
And then my son was born and immediately we noticed that he had some white patches in his mouth. Asking the nurse of it, she says it was oral thrush (yeast infection of the mouth.)
I went home and thought nothing of it until a couple months later, we bought a humidifier to help the baby breathe. After a few days, my son’s whole body began to break out in red bumps and sticky skin. My own rash got even worse to where I looked like I had gotten extremely sunburnt everywhere. my boyfriend wrote it off as regular allergies, but I knew better. I began searching my home for whatever my sons skin was reacting to, and then I discovered mold scattered around here and there.
Immediately we all went to the doctors and I asked if it was possible that both our rashes were related. TMI, but He asked me if tended to have frequent yeast infections. Which I had had several through out my pregnancy..
He said that with pregnancy, my immune system was compromised, thus making me prone to any infections, especially fungal. And with mold in my home, it would’ve only amplified my infection by causing a yeast overgrowth covering my entire body. My son being born with yeast, as well as breastfeeding with constant skin contact, when we used that humidifier, it only applied our infections by creating moisture in the air. Systemic candidiasis.
I was given 1 dose of oral fluconozole. I bought a couple boxes of “Monistat: Vaginal Yeast Infection cream” and applied it after bathing to both of our entire bodies. His son cleared up in just hours. My own was a bit tougher to crack, so I also began taking daily AZO Yeast Plus tablets. After a week, my skin has calmed down tremendously. My hair looks slightly fuller, and still using apple cider in the shower, I now can feel the thick coating falling off my skin when I rinse. I’m almost hopeful that in a couple weeks, I might be my old self again.
Just thinking how most of us are women, and Yeast is far more common with us then men. Having fungus in your home, could very well make a fungal infection more severe. Hope this helps someone!!
1 Comments
I've been experiencing scalp and body itching with most of the same symptoms. I keep my hair short and still have a hard time combing out tangles that never existed until sometime near the end of 2020. It started with a case of athlete's foot symptoms that I struggled to get rid of since 2018 or so. Within a few months or so I started getting sticky patches of dark colored wax spots that would stick to my feet. and inner soles of shoes. It didn't hurt but wasn't sure what it was exactly. Had a raised crusty area in the scalp near forehead that started getting short hairs. My dog, come to find out, had itchy bald patches with strange black course corkscrew like hairs coming out. I didn't know what to think and husband told me they were part of some plant debris outside. My cat had it too along with a bald patch on his neck that almost got infected. I couldn't afford 2 new vet bills at the time so tried a few different shampoos,one for cats and one for dogs, and mashed it into their scalps using a silicone brush. Sulphur seems to work well for this along with an acid that can take the top layers of dead skin cells off. 3-4 times a week, I bathed them at first. Husband argued that it was mange and not a fungal infection. The symptoms are so similar, even the vet couldn't tell but put them on antiparasite meds. Woods lamp light test couldn't see enough to make a call, I guess. The shampoos were working, she said . I started using the antiparasitic/antifungal dog shampoo by Veterinary Formula. Salicylic acid, sulphur and coal tar together helped the itching a lot, especially when using my own silicone scalp brush. Dries my hair out though.Brushing or combing your hair out before washing is helpful as well. I do it over the bathtub to prevent dreading anything and disinfect areas where hair has been in contact Mine got so bad that my ears, nose and eyelashes were also effected. I used Tiger Balm with a q-tip lightly above lash line to soothe and kills pathogens. Worked great.
After a lot of trial and error solutions, Borax is a must have for laundry and carpet steam cleaning. At least half a cup in either with hot water/highest heat dry, soak mode cycle for 20 min+ in wash.This and vinegar work better than anything on fungi or molds. Used it to clean the strange cobweb things off the walls and ceilings too. Colloidal silver and probiotics for internal parasites and immune health. Silver works better than any of these antifungal meds but be sure to choose a quality product like Sovereign Silver . I spray it on my scalp before applying tea tree and castor or coconut as carriers for my dry hair. meningitis. Silver cI can't use much silver on my dog because it interfere with his thyroid medication.
After a lot of trial and error solutions, Borax is a must have for laundry and carpet steam cleaning. At least half a cup in either with hot water/highest heat dry, soak mode cycle for 20 min+ in wash.This and vinegar work better than anything on fungi or molds. Used it to clean the strange cobweb things off the walls and ceilings too. Colloidal silver and probiotics for internal parasites and immune health. Silver works better than any of these antifungal meds but be sure to choose a quality product like Sovereign Silver . I spray it on my scalp before applying tea tree and castor or coconut as carriers for my dry hair. meningitis. Silver cI can't use much silver on my dog because it interfere with his thyroid medication.
Has anyone looked into pityriasis amiantacea? After years of researching scalp problems I just stumbled upon this scalp condition and it sounds oddly familiar to what I might have. However, I’ve had these thoughts before so who knows. Thought I’d share. Here’s the link to the article that I found https://www.consultant360.com/articles/what-are-these-thick-clumps-scalp-scales-binding-boy-s-hair
1 Comments
Nothing you're suggesting is working. My symptoms started when I was attacked by a flying insect six years ago. I've never used Nair. I and many people, wish it was as easy as you claim.
Wish I could have answered you sooner. The following video explains the infection and describes a protocol to alleviate and even cure the condition. Listen carefully and take notes, nobody is going to help you fix this but yourself so be diligent. "2017 The End of Electronic Harassment Symptoms" on youtube by channel "lookoutfacharlie."
Curious is this site just a forum or are there actually medical doctors reading these ,sitting back like were some weird experiment? It's called WebMD! Maybe someone empathic, knowledgeable doctor would find a cure and help milio s from this suffering. I do not think it morgellons because I do not pull threads out more like I am a sticky fly strip and all th crap in the air lint and dust velcro to my scalp and skin. Inflammation decrease and increase with excessive sebum and keratin oils layering up over time causing creasing which residue hardened and feel like a binding sensation. I do believe sugar and processed food is a huge part of it. I take no medications and I am deficient in vitamins D ,potassium and glucose levels are off. Hydration electrolytes are key. I bought a woodslamp and found pink coral dots on every follicle.
12 Comments
Hi also I am going through this!! I’m 40 years old and I’ve been dealing with this for probably a year and a half I’d say when the pandemic even began. It started for me when my hair started to look like it was shaved on the sides. And then on the back of my scalp. So I started scrubbing my hair really good thinking maybe I had ingrown hair or something growing over my scalp here. And then I realized it went around my armpits this weird stretchy sticky kind of hair like substance and went down around my toes. From my backside. I started breaking in sores and I noticed black pointy hairs. And that my hair was basically retracting into a weird pattern on top of my head. I also had long thick hair that went past my shoulders. It was to the point where my ankles were swollen and my fingers get swollen and I lose feeling on one side of my arm. Until I stretch whatever this crap is on my skin around and get feeling back. I try not to be in the bathroom for hours sometimes because my family gets upset but it is so hard not to try to make my skin comfortable and not to feel like I am gross. I can relate to finding broken hair in Lynn and fuzz under these layers. Also it goes around my eyes around my ears into my fingers like the nail bed. Also I feel like it goes up my nose and down into my gumline. I have seen Dermatologist who wouldn’t give me a chance when I went in there in tears crying and crying . My doctor referred me to my therapist who is trying to diagnose me with the some sort of delusional problem. But the thing is when you look at it sometimes it looks like a long black hair that is trapped under my skin and goes over my skin and under my skin around my neck. My mother has seen it and my boyfriend has seen it. And I have been told the same thing leave it alone don’t touch don’t pick don’t pull. But again when I leave it alone and think oh maybe it will just go away don’t touch it still there and it wraps around my toes and fingers sometimes so bad that it swells up like sausages. I understand everybody’s stories on here because I relate to every single one of them. And I hate to say it but if it wasn’t for my family I probably would’ve lost it by now and would’ve admitted myself to a mental health facility. It aggravates my every day living I cannot live my days to the fullest like I want to. And I also deal with this and I also deal with anxiety depression I have ADHD also I have back problems that are extremely bad and I have nerve pain everywhere. I hope someday somebody can take this seriously and figure out even if it is a mental thing or a physical thing and treats it and gives a lot of us some relief. That’s all I want is relief I’ve already come to the fact that I’m probably stuck with whatever this is the rest of my life. Thank you for reading this I’m glad there are people out there who can relate
I believe you about it wrapping around you. I know that people that deal with livestock have felt with this, so why we are having such a difficult time being helped I just don't get. But maybe you can find out where your local cattleman and farmers get help. I've spoken to people at the local feed store and gotten some helpful suggestions. But I think I'm going to go back and see if they can recommend a doctor
I can relate to everyone here. I've been trying to deal with it for at least a year. One of my inlaws is a dermatologist and she told me everything was normal and to stop touching it and that I probably have ocd and trichotilomania which is a hair pulling disorder. This upset me because I knew I wasn't pulling out my hair. But apparently it also means picking. I went to a different dermatologist who diagnosed me with trichoptilosis and neurodermatitis. He prescribed Doxepin Hydrochloride capsules to be taken before bed to help calm the nerves, and a topical ointment called Duobrii (halobetasol propionate and tazarotene) Lotion, which helps with itching and irritation and also contains vitamin A which almost immediately helped with calming and smoothing out those "short hairs" that shoot up and have every crazy type of split end which just makes everything worse. What I have found out and have had confirmed by a dermatologist is that it starts with any kind of trauma to the scalp. Maybe I scratched it too hard or picked at some little bump and this trauma caused my body (or at least the scalp) to produce more keratin, which is that clear film that grows over the hair and hardens like that Magic Shell ice cream topping, but much harder! (Apparently turtle's shells are made of keratin, so yeah, it is incredibly hard but also smooth). This over reactive keratin response is what causes all this crazy stuff to happen on the scalp and then starts spreading. Around my ears, into my face, even my eyelids! This is not a delusion. The hair is there, and I think that's where most doctors make the problem worse by not taking the time to actually validate that what the patient feels and sees is actually happening. They seem to skip over that or maybe even say outright that it's a psychological problem, and tell us to just stop touching it. We then go away feeling more isolated and trapped and like we have to keep trying to figure this out on our own. So we keep trying to free the hair that is trapped and it is very hard to stop because sometimes it gives you relief. But it always ends up coming back and the cycle goes on and on. Even though I know now that touching it and picking at it is only helping the problem continue, it is very hard not to get sucked back into that cycle because as soon as you scratch your head or anything like that, you get a little relief, and a lot more itching and irritation and it just feels counterintuitive to stop trying to fix it and to live in turmoil and discomfort. This is the hardest part that I am trying to navigate. I will say that when I have stopped touching it for a day, it stops bothering me and I can tell that it is healing and softening and my scalp is no longer in that traumatized, protective keratin producing mode. After about a day and a half it almost feels like part of the healing process is itchiness, and this is where I haven't been able to get past this point and start over again. It is psychological torture. I feel ashamed for not being able to leave it alone even though I know I am not helping it. Staying busy during the day helps, but it has become such a habit at night, especially since laying down and having those prickly hairs poking back in from being smashed is itchy and irritating. I can immediately feel the keratin go into protective mode which causes more irritation and discomfort. I am going to keep trying and not get too upset with myself when I get sucked back into the cycle. It's very addicting. Think of it like trying to quit smoking. I think we all need a support group.
Here’s a weird question...do you get extremely bad armpit odor when you’re messing with your hair (I don’t pick but I’m constantly messing with my scalp trying to untwist some mysterious tangle)...when I mess with my scalp too much I get this body odor armpit smell that smells like cat pee...I don’t do drugs and I don’t have a cat...it reminds me of the book of Isaiah when he talks about the daughters of Zion - sores on their scalp, baldness, and a putrid smell...I think were living through some weird times guys...
That’s insane .. mines the same from the scalp, eyes, eyes brows, gum line, backside and toes - all feels connected EVERYWHERE. I am so glad to see this comment !!!!
In the nostrils, sides of my nose, even on top tine of lips
It is all connected! I take epsom salt baths and hair comes out of my skin all the time while I soak. One day 2 long pieces came out from my back that were at least 3 feet long and the hair was like looped together. I’m 4 years in and it seems the more the hair is coming out and unraveling, the more painful it’s becoming, pulling so incredibly hard everywhere!! It is coming undone though and I recommend trying to soak in epsom salt baths. It seems to help the hair come out.
After my baths I use tea tree oil, it seems to help break down that weird film that seems to coat the skin, I think the body is producing it to try to protect the skin from the irritation of the twisted hair. Then I use jojoba oil and on the bad scabby and calloused areas I use Vaseline to try to soften everything up so the hair can come out. Not a cure but seems to be helping.
I used to do the exact same thing, full the tub with Epsom salts, with the tree oil, peroxide, I was even so desperate I used bleach once but yes Epsom salts seems to help but only very slightly.
I 100% agree I think the skin is reacting to a foreign body and trying to fight against it giving us all these bizarre symptoms
I’m sure that that it’s the hair from our head that for some reason has twisted itself extremely tightly around the head and into the skin. It has to be something that has affected the hair follicles because hair can’t just self animate. I really think it is a fungal infection down in the follicle that caused this twisting. I convinced one doctor to give me some anti fungal medication that I took for 2 months and for me that’s when it seemed to stop getting tighter but then the hair was just stuck in this crazy tangled and twisted situation and now is having to work it’s self out. I just know that the more you try to untwist and mess with it, the more it hurts. Like if you get one spot looser it just ends up tighter somewhere else.
It’s hair, a huge, like long overgrowth the waxy aspect is the buildup of dirt oils. Your head probably had a VERY tight spiral of hair, look for “holes” these are the center of the spiral, many of these hairs like the black line you mention are extremely thin, that line you mention- it’s probably 100 +/-
Have used everything from Apple cider to peroxide and in between for a year now. Have recently been putting povidone iodine 10% on my scalp. Just my own experience, it seems to help for the first time. I have a post here too. I believe there are many similar posts to mine w some additional problems. I believe Morgellions is real and also fungus infections of the skin that spread to scalp. I definitely know I have problems from fly strike in Texas. I have also waxy film on scalp plus noticed hard string like shapes too last few months. Yes this also seems to have spread to my ears especially behind my ear. This acts like fungus to me, spreading this way. I’ve been on Ivermectin to several lice and dandruff shampoo, w not much help, alcohol and peroxide too. The povidone Iodine now for a week, 2 time a day spot treatment. Some relief and seems help symptoms for me.
5 Comments
I was just reading that tobacco made into a paste may help. I know awhile ago I made a tea from tobacco and rinsed my hair. It seemed like it did something that whatever this is, didn't like. I'm going to try it again. I thought of using it before because my grandson got a bee sting and I used tobacco. It's an old remedy and it draws the stinger out. So I'll try again
Did the tobacco leave a stronger ordor?
No probably because I rinsed the hair out well. I haven't used it in awhile but I'm going to try again. Lately I've been soaking eyewash on my scalp and it's helping allot because it's got boric acid
Bayer school of medicine in Texas has a parasitology department.
I think mine is filarial worms in the lymph nodes of the neck - and basically anywhere else there's lymph nodes. I can feel this by sprinkling baking soda in the hair and rub a bit to the scalp.then spray apple cider vinegar..it will fizz and loosen this some. Be prepared with Neem oil in case it gets tight again, but you only need a little. I'm learning that many parasites need to be taken care of early, and ivermectin should be used with other medications .
OP finally here ....
The last time i posted I wanted to make sure that my next post was a solution to get rid of this i was hopeful that i would of figured out a name and a treatment for this and refused to return empty handed . well That never happened and I nervously came back to read my post and let me tell you how god damn upset and horrified I am to see response after response page after page of identical stories and no name or cure just a huge question mark . I m in literal tears reading these comments and reliving the terror when this first happended and being able to feel the fear from all of you and the disbelief of this mystery disease . Im so sorry I dont have any miraculous story of a cure or it disappearing as suddenly as it started... I do have a better understanding of what this could be and how it could of happened . I dont know if my situation will be relevant but i hope you find something useful .
So when this first manifested I did nothing but research every possible skin and hair condition known to man . I read field journals of every medical fungal infection there is and parasites and rare or weird skin diseases . nothing matched with what I was dealing with . there were countless times when i thought i had it pinpointed and then BAM! It completely changed on me and manifested into something else . I literally had to dissociate from the reality of what i was witnessing my body doing because if i didn't i think i would of lost my mind . I had become 100% isolated I had lost all of my confidence and not to toot my own horn but I was a very attractive girl and now i cant even stomach to look in the mirror . my skin is disgusting and aged and covered in lesions . I have no eyebrows or eyelashes because they are covered in a thick film . I wear wigs every day because i have no hair . the hair i do have as of now is wirey dry and completely white or grey (im 30 btw) I buy 300$ human hair wigs every 3 months because whatever this is it eats holes in the lace of the wig and the hair becomes webbed together and literally has the life and color drained from it . it also seems to be able to animate the hair strands on the wig and i can watch them move around . mostly navigating towards my mouth or eyes or even a cup of whatever liquid im drinking, its disgusting! . I also have this film coating my actual eyeballs . inside my nasal cavity and my gums and teeth . its a nightmare and has destroyed every aspect of my life . So back to my constant web searches ... I did see one thing constantly come up and that was morgellons but I remember when this first started I only read a tad bit into it and was terrified of it and also was misinformed by the countless websites claiming it was a mental disorder not a disease . So I ignorantly avoided ever looking further into it. Till one day on a forum I saw somebody talking about the waxy film on thier skin like we all have and actually having a name for it they said it was called" biofilm" . After doing a quick google search of what was biofilm i fell down a rabbit hole and finally felt like i knew what i was dealing with finally . This did lead me to the dreadful morgellons disease but this time with actual information and not ******** . I seriously couldn't believe that this "disease" matched every symptom I had . I 100% say for certain that all of you girls are dealing with biofilm but I am not gonna say its morgellons . So biofilms are actually a colony of bacteria that resemble the slippery pond scum you find on a rock . so biofilms are a slime mold of sorts . they can be found in the bathtub or shower curtains or the bathroom sink . they also dwell in hospitals and medical devices. So biofilm is a nightmare to get rid of because it is completely resistant against any antibiotics , can withstand extreme heat and chemicals . biofilms are protected by a shield of that waxy film we get covered in , and the bacteria thrive underneath unaffected by any treatments because of thier impenetrable shield . biofilms can also mix with other bacterias and fungus which teams up to really wreak havoc on our skin and hair . So doctors are as of now becoming educated on biofilms but not enough to know how to destroy them . Biofilms are actually found in many different diseases infecting different areas of the body . One of those diseases being lyme disease where the biofilm infects externally as well as internally . Morgellons has also been heavily linked with lymes bacteria with 98% of morgellons suffers being positive for the lymes bacteria . Now I really found this info useful because I suffer from chronic lyme disease and have contacted lymes 3 times one time being so bad i was hooked up to a I.V all summer with a home nurse . since having lymes my entire life i suffer from a compromised immune system like everyone else . So I think the reason that I have been inflicted with this curse of a disease is because of a beaten down immune system especially after going through a very unfortunate event in my life and being at a very low state plus with a ton of stress on me and working insane hours every day . I believe my body was open to attack from a opportunistic fungus . then not to long after came in contact with biofilm from my grandparents old shower and the combination is causing my body to go nuts in an attempt as a response from my immune system and is causing insane amount of inflammation which in turn my skin is producing an excessive amount of keratin and that mixed with the biofilm and fungus is causing crazy symptoms . I also advised that you take a blacklight and look over your skin and hair and clothes . you most likley will see fluorescent blue hairs or bluish green ones everywhere . i know its not a official wood lamp like they use to detect fungal infections but primarily bacterias and fungals glow fluorescent under blacklights so that should be a big clue to what your dealing with .
So another thing I highly recommend is to immediately join the facebook group morgellons and mold . even if you do not believe you have morgellons join anyway because this is a community of thousands of people all over with identical stories and symptoms to us . I know how isolating this issue is and how it destroys your mind and makes you feel crazy and alone and like no one knows whats wrong with you , but i promise joining this group will help tremendously with those feelings . It has also been the biggest life saver when it comes to information . I have learned so much about this and also awesome remedies to help with the insane symptoms . Like cutting sugar and processed foods from your diet can help a ton . also soaking in the tub with sea salt , baking soda and borox mixture for an hour 3 times a week will literally start melting off the buildup of biofilm . Using liquid collidal silver topically over time has been studied in labs to be the only thing effective with breaking down the biofilms shield. Also Iodine SSKI works tremendously externally and internally to relieve the terrible skin issues and help fight it from inside as well . also one more recommendation . please look into the F.I.R.M protocol , i wont lie its very expensive but it is the number one thing recommended from suffers alike and has been known to keep symptoms away for years and possibly all together for some ...
Im really sorry i dont have a solution for all of you like I hoped but I hope some of what I said helps you in anyway finding out what the issue is and maybe how to get on top of it . I know the shoe wont fit for everyone but if all of you have the same symptoms as I do then hopefully the info helps you the same it did for me .
Also if any of you want to reach out for any reason you can email me at ***@****
The last time i posted I wanted to make sure that my next post was a solution to get rid of this i was hopeful that i would of figured out a name and a treatment for this and refused to return empty handed . well That never happened and I nervously came back to read my post and let me tell you how god damn upset and horrified I am to see response after response page after page of identical stories and no name or cure just a huge question mark . I m in literal tears reading these comments and reliving the terror when this first happended and being able to feel the fear from all of you and the disbelief of this mystery disease . Im so sorry I dont have any miraculous story of a cure or it disappearing as suddenly as it started... I do have a better understanding of what this could be and how it could of happened . I dont know if my situation will be relevant but i hope you find something useful .
So when this first manifested I did nothing but research every possible skin and hair condition known to man . I read field journals of every medical fungal infection there is and parasites and rare or weird skin diseases . nothing matched with what I was dealing with . there were countless times when i thought i had it pinpointed and then BAM! It completely changed on me and manifested into something else . I literally had to dissociate from the reality of what i was witnessing my body doing because if i didn't i think i would of lost my mind . I had become 100% isolated I had lost all of my confidence and not to toot my own horn but I was a very attractive girl and now i cant even stomach to look in the mirror . my skin is disgusting and aged and covered in lesions . I have no eyebrows or eyelashes because they are covered in a thick film . I wear wigs every day because i have no hair . the hair i do have as of now is wirey dry and completely white or grey (im 30 btw) I buy 300$ human hair wigs every 3 months because whatever this is it eats holes in the lace of the wig and the hair becomes webbed together and literally has the life and color drained from it . it also seems to be able to animate the hair strands on the wig and i can watch them move around . mostly navigating towards my mouth or eyes or even a cup of whatever liquid im drinking, its disgusting! . I also have this film coating my actual eyeballs . inside my nasal cavity and my gums and teeth . its a nightmare and has destroyed every aspect of my life . So back to my constant web searches ... I did see one thing constantly come up and that was morgellons but I remember when this first started I only read a tad bit into it and was terrified of it and also was misinformed by the countless websites claiming it was a mental disorder not a disease . So I ignorantly avoided ever looking further into it. Till one day on a forum I saw somebody talking about the waxy film on thier skin like we all have and actually having a name for it they said it was called" biofilm" . After doing a quick google search of what was biofilm i fell down a rabbit hole and finally felt like i knew what i was dealing with finally . This did lead me to the dreadful morgellons disease but this time with actual information and not ******** . I seriously couldn't believe that this "disease" matched every symptom I had . I 100% say for certain that all of you girls are dealing with biofilm but I am not gonna say its morgellons . So biofilms are actually a colony of bacteria that resemble the slippery pond scum you find on a rock . so biofilms are a slime mold of sorts . they can be found in the bathtub or shower curtains or the bathroom sink . they also dwell in hospitals and medical devices. So biofilm is a nightmare to get rid of because it is completely resistant against any antibiotics , can withstand extreme heat and chemicals . biofilms are protected by a shield of that waxy film we get covered in , and the bacteria thrive underneath unaffected by any treatments because of thier impenetrable shield . biofilms can also mix with other bacterias and fungus which teams up to really wreak havoc on our skin and hair . So doctors are as of now becoming educated on biofilms but not enough to know how to destroy them . Biofilms are actually found in many different diseases infecting different areas of the body . One of those diseases being lyme disease where the biofilm infects externally as well as internally . Morgellons has also been heavily linked with lymes bacteria with 98% of morgellons suffers being positive for the lymes bacteria . Now I really found this info useful because I suffer from chronic lyme disease and have contacted lymes 3 times one time being so bad i was hooked up to a I.V all summer with a home nurse . since having lymes my entire life i suffer from a compromised immune system like everyone else . So I think the reason that I have been inflicted with this curse of a disease is because of a beaten down immune system especially after going through a very unfortunate event in my life and being at a very low state plus with a ton of stress on me and working insane hours every day . I believe my body was open to attack from a opportunistic fungus . then not to long after came in contact with biofilm from my grandparents old shower and the combination is causing my body to go nuts in an attempt as a response from my immune system and is causing insane amount of inflammation which in turn my skin is producing an excessive amount of keratin and that mixed with the biofilm and fungus is causing crazy symptoms . I also advised that you take a blacklight and look over your skin and hair and clothes . you most likley will see fluorescent blue hairs or bluish green ones everywhere . i know its not a official wood lamp like they use to detect fungal infections but primarily bacterias and fungals glow fluorescent under blacklights so that should be a big clue to what your dealing with .
So another thing I highly recommend is to immediately join the facebook group morgellons and mold . even if you do not believe you have morgellons join anyway because this is a community of thousands of people all over with identical stories and symptoms to us . I know how isolating this issue is and how it destroys your mind and makes you feel crazy and alone and like no one knows whats wrong with you , but i promise joining this group will help tremendously with those feelings . It has also been the biggest life saver when it comes to information . I have learned so much about this and also awesome remedies to help with the insane symptoms . Like cutting sugar and processed foods from your diet can help a ton . also soaking in the tub with sea salt , baking soda and borox mixture for an hour 3 times a week will literally start melting off the buildup of biofilm . Using liquid collidal silver topically over time has been studied in labs to be the only thing effective with breaking down the biofilms shield. Also Iodine SSKI works tremendously externally and internally to relieve the terrible skin issues and help fight it from inside as well . also one more recommendation . please look into the F.I.R.M protocol , i wont lie its very expensive but it is the number one thing recommended from suffers alike and has been known to keep symptoms away for years and possibly all together for some ...
Im really sorry i dont have a solution for all of you like I hoped but I hope some of what I said helps you in anyway finding out what the issue is and maybe how to get on top of it . I know the shoe wont fit for everyone but if all of you have the same symptoms as I do then hopefully the info helps you the same it did for me .
Also if any of you want to reach out for any reason you can email me at ***@****
10 Comments
Ty for info, will try the suggestions and check out FB.
I’m really sorry to hear that you’re still sinking further into this hell on Earth...not only is it hell, it’s as if nobody else has ever heard, much less experienced, this hell except for a few people on this forum and some fb groups.
Thank you so much for the pointers on biofilm and lyme disease. I’m considering addressing it with my dermatologist next week since I set up my first appointment with her since this all began, but I’m afraid of people not taking this more seriously than a “mental illness” of ours. Either way, I want you to know that I appreciate your story and the glorious clues fo what this could be for us all. But not everyone is kind enough to listen, especially the first (and last) time I’ll ever be calling any medical emergencies in relation to this hell disease.
Just last month I had to take an ambulance for the first time in my life because of this ****. I was driving home from my step mother’s house and was spending the might in a hotel because I couldn’t be without a shower more than every 5 hours or so because the biofilm grew so quickly. Of course the front portion of my entire scalp was buried deep beneath this film and my skin and out of sight. My boyfriend, who I was video chatting after arriving at the hote (he knows about and is so supportive of my struggles with this mystery illness...bless his heart; we’re getting married in a couple of weeks) and he asked if I was wearing makeup because I looked so different than usual. I don’t wear makeup anymore because it makes this mold even more agitated and my skin looks bumpy and wrinkly and cracked with all of the hair and mold and lesions on my face. But it was not makeup at all, it was the biolfilm. And this was the first time the film had spread completely over my face and neck in one quick sweep. It actually made my skin look much nicer than usual, but I couldn’t appreciate looking decent for once because there was an entire helmet of this **** over all of my facial orifices. The film had gotten so bad that I couldn’t hardly move my facial muscles and when I tried to take a shower to wash it out of my hair & off my skin, the entire hotel bathroom & bedroom I was in completely filled with a a white dust which must definitely have been the biofilm / bacteria mold. So I couldn’t wash it off of me and I didn’t dare run out of the hotel room and have a bunch of strangers possibly witness one of the lowest points / aspects of my life. My boyfriend, who knows absolutely nothing about this issue as wel, could only watch in horror and begged me to call 911.
I was quickly being choked by this mold inside my chest from the lungs outward. And of course, my nostrils will blocked with the thick waxy biofilm and so was my mouth and throat. So I ended up giving in and called 911 for the first time in my life.
And of course, the best looking cop, andd probably the best looking dude in this entire little town I was staying outside of my hometown city at, showed up and witnessed this episode of Hell. He was actually really kind and understanding despite my hysterical mannerisms and sounding absolutely batshit crazy describing what I had thought at the time, was a fungal infection covering my whole body (which is generally more or less one of the usual guesses in this discussion page). I know it’s TMI, but damn, this was definitely NOT a good time for the sexy cop to answer my call. This illness has also plagued every other asect of my health, social health included. It’s bad enough that I didn’t get to wear shorts for a single day this entire summer because my legs are so messed up from the scratching and picking and excessive scrubbing.
But the paramedics really killed my self esteem if I had any left. I just turned 22 years old, and am also a pretty attractive young lady I’d like to think. But since this whole mystery disease, my skin has turned to complete ****— nearly every inch of it— including my vagina lips. My hair hasn’t turned to complete ruins (yet) but I’m definitely starting to bald around the front of my hairline, though most of it might still just be from getting stuck under my skin all the time.
After giving the paramedics my medical information, including my medication list, which was only a single medication at the time (Effexor, an antidepressant) he immediately stopped giving any ***** and just resorted to scoffing at me about how this is all just a side effect of my antidepressants and I just need to get them adjusted a bit.
The female paramedic wasn’t much better at all, and she constantly rolled her eyes at me when I was struggling to swallow the buildup of mold in my mouth to be able to answer her questions and talk at all. After I insisted on going to the hospital (no way was I going back into that hotel room before the mold at least settled a bit) she only asked one question on the ambulance ride; “Are you a methhead?”
I am always juggling my multitude of fears including other people seeing my lesions on my skin and thinking that I’m on drugs, especially stimulates and the sorts. This fear is so painful because I know that I would think the same thing if I saw myself from a stranger’s eyes without any additional information. And it sucks that I’ve come to look like this without ever even having tried meth before...it’s not fair!
Anyways, I just whimpered “no..” and started to cry silently inbetween gagging and gulping on the cot for the rest of the ride. At least the salt in the tears kind of helped momentarily reduce a few streaks of it on my face.
The doctor ended up coming in, taking a full 5-second glance at me, and diagnosed me with ezcema- unspecified.
Thank you so much for the pointers on biofilm and lyme disease. I’m considering addressing it with my dermatologist next week since I set up my first appointment with her since this all began, but I’m afraid of people not taking this more seriously than a “mental illness” of ours. Either way, I want you to know that I appreciate your story and the glorious clues fo what this could be for us all. But not everyone is kind enough to listen, especially the first (and last) time I’ll ever be calling any medical emergencies in relation to this hell disease.
Just last month I had to take an ambulance for the first time in my life because of this ****. I was driving home from my step mother’s house and was spending the might in a hotel because I couldn’t be without a shower more than every 5 hours or so because the biofilm grew so quickly. Of course the front portion of my entire scalp was buried deep beneath this film and my skin and out of sight. My boyfriend, who I was video chatting after arriving at the hote (he knows about and is so supportive of my struggles with this mystery illness...bless his heart; we’re getting married in a couple of weeks) and he asked if I was wearing makeup because I looked so different than usual. I don’t wear makeup anymore because it makes this mold even more agitated and my skin looks bumpy and wrinkly and cracked with all of the hair and mold and lesions on my face. But it was not makeup at all, it was the biolfilm. And this was the first time the film had spread completely over my face and neck in one quick sweep. It actually made my skin look much nicer than usual, but I couldn’t appreciate looking decent for once because there was an entire helmet of this **** over all of my facial orifices. The film had gotten so bad that I couldn’t hardly move my facial muscles and when I tried to take a shower to wash it out of my hair & off my skin, the entire hotel bathroom & bedroom I was in completely filled with a a white dust which must definitely have been the biofilm / bacteria mold. So I couldn’t wash it off of me and I didn’t dare run out of the hotel room and have a bunch of strangers possibly witness one of the lowest points / aspects of my life. My boyfriend, who knows absolutely nothing about this issue as wel, could only watch in horror and begged me to call 911.
I was quickly being choked by this mold inside my chest from the lungs outward. And of course, my nostrils will blocked with the thick waxy biofilm and so was my mouth and throat. So I ended up giving in and called 911 for the first time in my life.
And of course, the best looking cop, andd probably the best looking dude in this entire little town I was staying outside of my hometown city at, showed up and witnessed this episode of Hell. He was actually really kind and understanding despite my hysterical mannerisms and sounding absolutely batshit crazy describing what I had thought at the time, was a fungal infection covering my whole body (which is generally more or less one of the usual guesses in this discussion page). I know it’s TMI, but damn, this was definitely NOT a good time for the sexy cop to answer my call. This illness has also plagued every other asect of my health, social health included. It’s bad enough that I didn’t get to wear shorts for a single day this entire summer because my legs are so messed up from the scratching and picking and excessive scrubbing.
But the paramedics really killed my self esteem if I had any left. I just turned 22 years old, and am also a pretty attractive young lady I’d like to think. But since this whole mystery disease, my skin has turned to complete ****— nearly every inch of it— including my vagina lips. My hair hasn’t turned to complete ruins (yet) but I’m definitely starting to bald around the front of my hairline, though most of it might still just be from getting stuck under my skin all the time.
After giving the paramedics my medical information, including my medication list, which was only a single medication at the time (Effexor, an antidepressant) he immediately stopped giving any ***** and just resorted to scoffing at me about how this is all just a side effect of my antidepressants and I just need to get them adjusted a bit.
The female paramedic wasn’t much better at all, and she constantly rolled her eyes at me when I was struggling to swallow the buildup of mold in my mouth to be able to answer her questions and talk at all. After I insisted on going to the hospital (no way was I going back into that hotel room before the mold at least settled a bit) she only asked one question on the ambulance ride; “Are you a methhead?”
I am always juggling my multitude of fears including other people seeing my lesions on my skin and thinking that I’m on drugs, especially stimulates and the sorts. This fear is so painful because I know that I would think the same thing if I saw myself from a stranger’s eyes without any additional information. And it sucks that I’ve come to look like this without ever even having tried meth before...it’s not fair!
Anyways, I just whimpered “no..” and started to cry silently inbetween gagging and gulping on the cot for the rest of the ride. At least the salt in the tears kind of helped momentarily reduce a few streaks of it on my face.
The doctor ended up coming in, taking a full 5-second glance at me, and diagnosed me with ezcema- unspecified.
I've woken up to having a web being sprayed across my face. I'm starting to wonder if this web ( all insects make webs at different stages), is a big part of the problem. If it's covering the skin then the skin and hair won't get enough sunlight. Wouldn't that creat mold? And if they spray a web outside the skin and hair- I can only imagine what it's doing inside the body. I've been thinking morgellons but knew people that suffer from it are decidedly diagnosed as in need of mental help. Do of course I was in denial. But I've thought when reading about it, that just about anything could be caught up in a web. These creatures are sticky so I think that could be a possibility. I also have a friend with fibromyalgia and listening to her made me think that maybe it could be involving a parasite.
I'm actually starting to think that there's probably allot of diseases that could possibly be caused by parasites.
I'm actually starting to think that there's probably allot of diseases that could possibly be caused by parasites.
Also talking about going in circles, I started out by getting stung on the head by I'm pretty sure a flying insect. When I went to the emergency room I told them it's something like a bot fly. (Well nothing involved with a bit fly has worked) I was told to use Vaseline (didn't work). Anyway I've been leaning towards miasis. Well come today I googled scree worm and came again to -" similar to catanius migraines
OMG me too
This is some amazing information. I have found NOTHING in 5 years of obsessively researching this (I mean 5 hours a night for years) that even remotely reflects the symptoms however you describing biofilm already rings true to everything I have been going through.
Like you (even though I refused to see it at the time) I was really quite attractive, I had a large social group of friends, I had a really fun and fulfilling life but it all came crashing down & I’ve isolated myself from everyone for 5 years, I still work because I have to, it’s bloody hard.
Thank you so much for sharing your research, its amazing work & you are helping a lot of people.
Like you (even though I refused to see it at the time) I was really quite attractive, I had a large social group of friends, I had a really fun and fulfilling life but it all came crashing down & I’ve isolated myself from everyone for 5 years, I still work because I have to, it’s bloody hard.
Thank you so much for sharing your research, its amazing work & you are helping a lot of people.
Demodex
Research all you can about them.
Anti parasite meds
Research all you can about them.
Anti parasite meds
Hey
I’m a bit older than you 37 been suffering for 7years I experience absolutely everything you do i
It is covering me from my head to toe in and outside vagina
Up nose in ears mouth eyes teeth I also experience the pressure suffocating feeling in chest
I have done the same thing went to the emergency and they just treated me like I was batshit crazy and were like this is the emergency department
I’m a bit older than you 37 been suffering for 7years I experience absolutely everything you do i
It is covering me from my head to toe in and outside vagina
Up nose in ears mouth eyes teeth I also experience the pressure suffocating feeling in chest
I have done the same thing went to the emergency and they just treated me like I was batshit crazy and were like this is the emergency department
I have had blood tests and they always show high inflammation markers and low vit d
I suffer bone and muscle aches along with everything you mention
I suffer bone and muscle aches along with everything you mention
This is 1000% Morgellons. It’s hell and I have alllllll of these identical symptoms. It feels almost electric too.. has anyone else experienced the snap crackle lol feeling and sounds that it makes as well? If I squeeze mine a particular way they SNAP Loudly over and over again..
Morgellons and u have morgellons and u have it.. And u and u and yep u too. It gets better. Read and listen. Follow. Leave it alone. It acts alive if u mess with it
6 Comments
This…I am starting to believe this! How long do I not mess with it before it gets better? I’m actually so over all of it that I am ready to not mess with it if that makes sense? The more I pull the worse it gets…so like…what if I stop pulling and picking haha.
I think the more you mess with this, the more of this film it will create. Just my opinion but I think it feels threatened and creates the"film". This could be possibly like say a paste it makes out of our skin and it's"saliva"? Or I believe it may be able to create keratin like we do. That would help it practically disappear or mix with or skin and scalp.
I haven't found anything to get rid of it but to me it gets sticky after a bit. That's how it sticks to our scalp. I find that Pond's cold cream works at that point.
I had used sulphur shampoo but it seems to dry out the skin. But I think it helped them because it seemed to make a really really tough shell they use for armor.
I haven't found anything to get rid of it but to me it gets sticky after a bit. That's how it sticks to our scalp. I find that Pond's cold cream works at that point.
I had used sulphur shampoo but it seems to dry out the skin. But I think it helped them because it seemed to make a really really tough shell they use for armor.
Yes, I’ve noticed the same thing myself. Any petroleum based product seems to be used against me. Oils, Vaseline etc form a coating like… fried chicken is the only way I can describe it. It’s as if it’s not soaking in, but adding a very uncomfortable layer to the film. To others it looks like it’s soaked in though, which is one of the most frustrating things about this. No one believes it exists because they can’t see it. Well, I can’t see if a person has a bad liver either but that doesn’t mean they’re imagining the symptoms they’re experiencing.
Anyone see any improvements with aloe Vera
I think you have white piedra on scalp and sounds like a yeast infection on skin
The film is hair, VERY VERY fine hair (like cilia) you can see it though. I y is from an extremely tight overgrowth of hair which seems to have quite literally become my outer layer of skin, check, feel exam your scalp, it will probably be “waxy,” remember as soon as you remove/shave away a piece it will move bind in others. This can be terrifying, ***@****
Let’s talk about it
I have most of the answers to the how/what of the matter, fixing it has been horrendous, every time I think I’ve got it figured out there is some other hell attached to it, the “hell” makes sense afterwards. If this seems psychological it is because certainly started to be highly upsetting/anxiety producing, it’s not psychosis
though sometimes I wish it was…
Let’s talk about it
I have most of the answers to the how/what of the matter, fixing it has been horrendous, every time I think I’ve got it figured out there is some other hell attached to it, the “hell” makes sense afterwards. If this seems psychological it is because certainly started to be highly upsetting/anxiety producing, it’s not psychosis
though sometimes I wish it was…
…..It’s been over a year since you posted this and I’m hoping that you’ve already heard it but if you’re still battling with it, I think I might have the answer to your question so what’s going on with you!
2 Comments
Is it morgellons
What's the answer?
Greetings Fellow Sufferer,
I realize that it’s been over here since you posted disinformation and I’m not sure if you’ve already been able to treat it but it’s not, I received some amazing information from a very intelligent educated individual and I’m going to share the treatment options that was you it with me. This is by No means, to be considered a sure fire cure, since everyone is different & I am by no means a professional doctor or specialist.
Yes it’s just what I’ve done so far and have experience finishing in the affects my condition. I’m going to link a few things BELOW and you can do with it what you want with this information, I really hope that this works for you, as well for you as it has for me.
Reference 1:
https://www.amazon.com/hz/wishlist/ls/8CD09G5T49U9?ref_=wl_share
Reference 2:
https://health-matrix.net/2011/03/15/dmso-the-real-miracle-solution/
Reference 3:
https://organicbiomama.com/dmso-safety-handling-recipes
I realize that it’s been over here since you posted disinformation and I’m not sure if you’ve already been able to treat it but it’s not, I received some amazing information from a very intelligent educated individual and I’m going to share the treatment options that was you it with me. This is by No means, to be considered a sure fire cure, since everyone is different & I am by no means a professional doctor or specialist.
Yes it’s just what I’ve done so far and have experience finishing in the affects my condition. I’m going to link a few things BELOW and you can do with it what you want with this information, I really hope that this works for you, as well for you as it has for me.
Reference 1:
https://www.amazon.com/hz/wishlist/ls/8CD09G5T49U9?ref_=wl_share
Reference 2:
https://health-matrix.net/2011/03/15/dmso-the-real-miracle-solution/
Reference 3:
https://organicbiomama.com/dmso-safety-handling-recipes
1 Comments
Do you have some directions how to use?
Has anyone had any luck with this issue? You all have described everything I am going through for the past year and a half. It’s devastating. I’ve resorted to head wraps and am saving up for a high quality wig.
I was reading through this thread last night and it honestly put me in such a foul mood. To read that everyone else suffering with this weird issue received nothing but mockery from the medical community breaks my heart (it honestly feels like there is a spiritual aspect to it at times, like I’m under attack. I have definitely become Christian through out this whole ordeal). I stopped going to the doctor, because every time I went they didn’t even look at my scalp, they just prescribed me antidepressants and anti anxiety medication. I have felt suicidal with how much this mystery disease has disfigured me. I used to be beautiful and now I have this weird mullet hairdo. Anyways, I have found the salycilic acid works a bit, but high strength salycilic acid. The 2% or 3% found in shampoos and toners don’t do the job. I started buying, believe it or not, wort remover, it has 17% salycilic acid. I put coconut oil on my scalp (which is hard because my scalp is covered by the same kind of “net” you all talk about) I let the oil sit for 30 minutes, then I apply the wort remover and let it sit for 10. I will have this white sheet like papery substance fall from my scalp. I comb out what I can then I wash the rest off with warm water. Has it fixed my problem? No, but it is removing something. I’m sure it’s terrible for my hair, but at this point I don’t really care, I just want this crap off my scalp. I am willing to do anything honestly, I feel trapped and consumed by this mystery disease. Oh I also found the heat helps a bit, I will sometimes run a flat iron through my hair close to the root and it causes the wax to melt, but, per usual, it doesn’t get rid of it.
I was reading through this thread last night and it honestly put me in such a foul mood. To read that everyone else suffering with this weird issue received nothing but mockery from the medical community breaks my heart (it honestly feels like there is a spiritual aspect to it at times, like I’m under attack. I have definitely become Christian through out this whole ordeal). I stopped going to the doctor, because every time I went they didn’t even look at my scalp, they just prescribed me antidepressants and anti anxiety medication. I have felt suicidal with how much this mystery disease has disfigured me. I used to be beautiful and now I have this weird mullet hairdo. Anyways, I have found the salycilic acid works a bit, but high strength salycilic acid. The 2% or 3% found in shampoos and toners don’t do the job. I started buying, believe it or not, wort remover, it has 17% salycilic acid. I put coconut oil on my scalp (which is hard because my scalp is covered by the same kind of “net” you all talk about) I let the oil sit for 30 minutes, then I apply the wort remover and let it sit for 10. I will have this white sheet like papery substance fall from my scalp. I comb out what I can then I wash the rest off with warm water. Has it fixed my problem? No, but it is removing something. I’m sure it’s terrible for my hair, but at this point I don’t really care, I just want this crap off my scalp. I am willing to do anything honestly, I feel trapped and consumed by this mystery disease. Oh I also found the heat helps a bit, I will sometimes run a flat iron through my hair close to the root and it causes the wax to melt, but, per usual, it doesn’t get rid of it.
6 Comments
I discovered heat as well! I fire lighters let them get hot, then I press on scalp where I feel strong tension on my scalp. The burn actually feels good to me.
That can't be good. Right?
That can't be good. Right?
I don’t even feel the heat from lighters, water etc. I keep waiting for a burn but nothing so far. Sometimes when I’m not “webbed” tightly, I do feel the heat so I have to always be aware of that day’s progression. But my feet feel strangely…magnetic, or staticky I’m not aiew how to describe it.
I’m not sure* how to describe it. Sorry about the typo.
Try soaking your scalp with eyewash, it's got boric acid. It's helping me allot..
Is the eye wash soak making the hair loosen?
Yes. First I soak my scalp with eyewash and let it dry a bit. Then run my fingers through in an upward direction..then sprinkle diatrametheus earth in at all angles and run the fingers through again. It's not an overnight cure but it seems to help me allot
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