24/7 visual disturbance

[scrouch]

For 11 months now my 18 year old daughter has had visual disturbances that are severly affecting her, she also has dizziness at times. She sees stationary objects in motion, she says they seem to "teeter" up and down like a see-saw.  This vision issue never stops it continues 24/7.  She says when she drives and everything is in motion she doesnt notice the disturbance.  She has seen a Neurologist who ran a EEG, and MRI.  The MRI has a small spot in the temporal lobe area that is undiagnosed ; however, the Neuro-surgeon says it would not cause the vision issues.  MRI is being repeated to see if any growth.  She has seen a ENT and had all of the inner ear testing, everything was fine.  We saw a Medical eye doctor (Opthalmologist?) who says everything is OK.  We have been to a cardiologist who ran a tilt table test, holter monitor, and heart echo ultrasound , all were fine.  Neuroopthalmologist, everything was ok.  Gynocologist- thinking it was hormonal as its worse when crying or angry; however, she said its not hormonal.  I do not know what to do for her next or what physician to see.  Everything has been unremarkable and the issues persist.  She has been overall a healthy child, the only thing I can correlate to the change is health is a Gardisil shot in Sept. 2010 (issues started the first week or so in Nov. 2010).  Could a vaccine cause this?  If so how should it be treated?  Where do I go from here for diagnosis/treatment?  Please help. Any suggestions are appreciated.

[Ebbly]

I sincerely doubt you’ll actually read this since it’s been 10 years but I thought I should try. I’ve been having extremely similar issues like the one you mentioned for your daughter. I was wondering if you found anything else out about it? Has it resolved, did they find out what it was, is she doing okay? I’m 17 and also ironically live in Florida. This is the only post I’ve found online that is pretty similar to what I’ve been experiencing. I’m not going to go into details about what I’ve been experiencing because that would take forever, basically all that about things constantly moving in your vision, dizziness, anxiety etc I’ve had. Thank you so much if you’ve read this, it would be extremely helpful to know what’s happened in the last 10 years for your daughter... god that really sounds like a long time, I hope she’s doing alright! I also sent this to your inbox

[Earthboundmisfit22]

Okay, never mind that haha..if you are interested in reading my story I have it saved on my computer I can send it to you some other way. Just let me know.

[Earthboundmisfit22]

haha I don't know why it does that..but you can fill in the stars with *************

[Earthboundmisfit22]

I don't know why the link starred things out but here's the actual link http://www.*************.org/c/Medical_Mysteries/forum/13010296-247-visual-distortions-ten

[Earthboundmisfit22]

Hello, I'm a 21 year old female. I've had visual disruptions like the ones she is having since I was 11. It started when I was on Wellbutrin and took over the counter cough syrup and has been constant ever since. I have yet to find someone who has seen things moving like I do, so this is hopeful that I'm not alone. Everything moves clockwise for me though, I see trails, and many other things. I was wondering if she ever had ear infections? I saw a neuro-opthamologist who believes it could be a vestibular disorder, and when I looked up online people seemed to have similar symptoms. I saw an ENT and had an ENG (balance test) done and am waiting for the results. I've had MRI's, EEG's, a 24 hour heart monitor, a VEP, and much more tests done that haven't really found anything. I've seen opthamologists, neurologists, psychiatrists (please don't take her to a psychiatrist like my mother did to me), infectious disease specialists, a chiropractor, acupuncturists, and was recently treated for neurological Lyme disease (I suggest checking that out too, and you have to take her to a Lyme literate doctor who knows to send the blood work out to a lab who knows how to read it correctly). I saw a massage therapist who gave me Cranial Sacral Therapy which helped with my headaches and lowered my Intracranial Pressure (high ICP often results from brain injuries of any sort). I also had reconnective healing (which is non touch therapy-I know it sounds crazy-where she used her energy to heal mine-she said the energy knows where to go and every time I felt pain and pressure in the back of my head near my brain stem where I have damage.) I'm sorry to say, so far I am still clueless (besides that this is almost definitely caused by some kind of Central Nervous System disorder (brain and/or spinal cord), and have turned to health forums to see where to go next. I would suggest checking her for Lyme, testing her vestibular system (see an ENT), and also..I saw a doctor who does LENS neurofeedback (it's like a more accurate EEG and "reverse EEG). This was very helpful, it found damage to my occipital lobe (visual cortex) and temporal lobe as well. He also does treatment for traumatic brain injury, which he helped me find out I have. I might be fighting an infection as well which is why it doesn't completely help my vision, though it gives me more relief than anything else. There are other types of neurofeedback as well. I suggest researching neurofeedback, as well as T.B.I., Lyme disease, and Vestibular Disorders. I am sorry to say I have not yet found a real diagnosis or cure. I have been diagnosed with TBI, neuro Lyme, and Migraine Aura-or basically I'm stuck in a constant aura of a migraine but don't ever really get a migraine-which personally I think is a cop out diagnosis. I am still trying to find out what is wrong with me, but it might be possible that doctors and science really just don't know what causes this. That's why I'm going to school for neuroscience, so if they really don't know what causes this, I can research it and find out myself and help people like myself and your daughter. I am really interested in seeing how everything works out for you, please let me know, and I will do the same. I am also wondering if this is her only symptom? If you are interested in the hell I've been through with this and many other symptoms (though this is the only one that really bothers me), so you too can feel like you are not alone, I posted my story here. It's a bit lengthy. But I suggest you or your daughter read it, you'd be surprised how much it helps just knowing you are not alone. http://www.*************.org/c/Medical_Mysteries/forum/13010296-247-visual-distortions-ten