Long Term Dizziness after BPPV

[cpyles]

I have experienced chronic dizziness for 2 years after having BPPV. The severity varies from day-to-day, but on bad days I feel lightheaded, easily get dizzy, will have mild visual disturbances [e.g. when staring a striped object I will see the stripes vibrate], and am very senstive to rapid head movements particularly in the dark. I am posting in hopes that someone else may have had a similar experiences and can share their diagnoses or successes.

History
37yoM.  Two yrs ago I had sudden attack of BPPV. After 6 weeks untreated it was diagnosed as both posterior and horizontal canal bppv and sucessfully treated at UCSF. Post treatment I have not had any nystagmus or "spinning attacks"

Post treament I was given vestibular rehab exercises which i did religiously for 45 min/ day for 6 mos. This helped but did not stop the symptoms.  I added daily Yoga and got significant relief but still no resolution

In the past yr I've seen two oto-neurologists.  Who were both stumped. MRI and MRA were normal.  One suspected some residual loose otoliths and prescribed epleys for two weeks. This didn't help. The second suspected migraine associated vertigo, since I usually have headaches that come w/dizzy attacks [though I think these are CAUSED by the dizziness].He put me on nortryptiline 25mg/day. After about 1month I did seem to improve, but after few weeks the same symptoms returned.  I am now upping the dose to see if that helps but I feel that I am barking up the wrong tree and the migraine assocation might be a red herring

Appreciate hearing from others

[dalu554]

Please what can be done to terminate this dizziness once and for all, apparently no one has an answer. Please answer and help others. I had this condition shortly after head injury in dec.2011. I am suffering because it affects my work. I am just 18

[dalu554]

Please what can be done to terminate this dizziness once and for all, apparently no one has an answer. Please answer and help others. I had this condition shortly after head injury in dec.2011. I am suffering because it affects my work. I am just 18

[Harpasig]

Hi I am sitting here in Iceland with constand dizziness,lightheadness,blurred vision . I fell on my head in February when I slippen on ice. I had the spinning and my ENT doc did the Epley and the wild spinning got away when laying and turning in bed. Since then I have felt like I am all the time on the children merry go round . Like a slow spinning and unsteadyness all the time. Often bad when I am in the gym looking up or down. It is worse when I am surrounded by a lot of moving people or cars. Hard to focus on things.I have tried to not think about it but it is hard. I is good to read your stories to see that I am not alone.
:)

[Harpasig]

Hi

[sukh73]

I am 39 yrs M. In dec 2011 I started getting initial symptoms of BPPV where I felt slight spinning while looking up towards right side. After two weeks  while siiting at home I had a sudden intense attack when I felt like passing out and nauseated. I went to a nearby walk in clinic and he told its called Vertigo and he gave me 10 days medicine and said it would go away. He didnt specified it being BPPV. Since that day my actual BPPV started where I felt spinning while going to bed, or rolling over and getting up in morning. I didnt have any other symptoms for another two weeks. It was on internet that i found that the kind of vertigo I have is called BPPV and through internet i learned about epley. I performed it and the spinnig symtoms went away next day. I was happy that I am fine now. But after few days the symptoms of nausea came back. I had difficulty driving, ringing in ears, difficullty focussing specially moving objects, some kind of fullness in ears. My family doctor had not much knowledge about it and gave prescribed the same antidizzines medicine (beta histine) with higher dose. This didn't help at all. Then I went to ENT specialist. He checked and found no nystagmus and hearing test was normal. He said the symptoms may come and go and didnt provide any permanent solution. Now after 7-8 my symptoms are still there. There are some days when I feel like I am getting better and the symptoms will go away completely, but so far this has not happened as the same symptoms come and go in circular manner.My job involves lot of driving plus bending down. Few weeks back I felt little spinning while going to bed. With Epley it went away again. I am trying to getting used to these symptoms. I am still hoping  that I may totally get to normal one day.

[annaone]

I feel the same way,Some days you are fine ,other days I am dizzy from the time I get up till bed,I am tired, fell like I can't bend over or make sudden turns, just feel bad all over .Doctor does not know what it is, I would like to know what started it.