Long Term Dizziness after BPPV

[cpyles]

I have experienced chronic dizziness for 2 years after having BPPV. The severity varies from day-to-day, but on bad days I feel lightheaded, easily get dizzy, will have mild visual disturbances [e.g. when staring a striped object I will see the stripes vibrate], and am very senstive to rapid head movements particularly in the dark. I am posting in hopes that someone else may have had a similar experiences and can share their diagnoses or successes.

History
37yoM.  Two yrs ago I had sudden attack of BPPV. After 6 weeks untreated it was diagnosed as both posterior and horizontal canal bppv and sucessfully treated at UCSF. Post treatment I have not had any nystagmus or "spinning attacks"

Post treament I was given vestibular rehab exercises which i did religiously for 45 min/ day for 6 mos. This helped but did not stop the symptoms.  I added daily Yoga and got significant relief but still no resolution

In the past yr I've seen two oto-neurologists.  Who were both stumped. MRI and MRA were normal.  One suspected some residual loose otoliths and prescribed epleys for two weeks. This didn't help. The second suspected migraine associated vertigo, since I usually have headaches that come w/dizzy attacks [though I think these are CAUSED by the dizziness].He put me on nortryptiline 25mg/day. After about 1month I did seem to improve, but after few weeks the same symptoms returned.  I am now upping the dose to see if that helps but I feel that I am barking up the wrong tree and the migraine assocation might be a red herring

Appreciate hearing from others

[fliss4]

Hi, 10 days ago woke up with full on spinning after stretching out in bed. After 4 days of spinning, went to the docs who told me to do these manouvres to bring on the spinning. Spinning stopped, but now have constant dizziness and unsteadiness. Spent the last 4 days in hospital. I'm scared that this won't go away. I have 3 young kids and need to be able to drive. I'm sure that people around me think I'm going insane. My head has started to wobble and I can't look up or down. Please if anyone has had any resolve, please tell me how.

[Tinkerbear]

I have the same symptoms as you.  Have you found out anything that helps? I have had this since Feb 2012 and have had the Eply done three times and the dizzy and vertigo keeps coming back. I have good days and bad days but every day there is an episode of dizzy of some sort. I cannot sleep through the night as I turn over in my sleep and the vertigo wakes me up.  Have you heard of the Dizzy Fix cap?  I am thinking of buying one of those as it replicates the Eply maneuvers that you can do in your own home.

[Chuck777398]

so how are you dealing with this now? I am interested because what u are describing is how i feel too. I am not sure what i should do either..they told me i have meniere s disease but? please email me at ***@****

[zulka180]

hi
i dont know what to do any more
i feel dizzy since april, cant stand this any more
feel like i m drunk all the time, fell so angry and annoid.
doc just did 2 times my blood test all is fine
give me a inner eyer infection tablets ,taht helped for a fue days ann it all the same again, back to dizzinessss
any idia
thanx

[BADder]

I had my first episode about 1 month ago the first thing that happened was when I woke and opened my eyes the room looked like a strobe light was on -darkness than the room -darkness than the room very fast than the spinning.I have had the spinning 2 times now but not the strobe effect since and have not been able to find anyone else who has.My doctor thought it was some side effect of a medication that I had just started taking but then it happened again and I was told it was bppv. I am looking for some answers but all I am finding is some things work for some people and some for  others and just more questions.

[NikoS]

Hi,
Just wondering if you have any update? I have had BPPV since a flight in May 2008, it initially lasted for 2 months & then went away with a few random attacks - in the last 9 weeks I have been dizzy nearly everyday, have epley done weekly now but it only lasts for 2 days, saw ENT last week & he told me there was nothing he could do to help. Am depressed & worried about the future, this effects everything, especially my ability to work.
Would love to hear from anyone that can give me any advice - every medical person I speak to tells me they can't give me any answers. And the wait list to see a proper specialist is 6mths to 2 years.
I have been through long term illness before & it was never as hard as this.
Nik