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523927 tn?1257018704

Reactivated EBV results

My recurring symptoms started up back in February. Over the course of the last few months, I've had a multitude of symptoms: Palpitations, abdominal pain, back pain, numbness/tingling in legs/feet, burning in the feet, chest pain, joint pain, muscle pain, fatigue, low-grade headaches, indigestion, night sweats (but not very many of them and not for awhile now), chills, hot flashes, frequent urination, conjunctivitis, ringing ears, and painful testicles. So basically, I feel whatever I have courses through my body because my symptoms change from week to week. Some days I feel like I'm recovering and then the next day I'm dragging. Or sometimes it works in half-day intervals.

Pretty much all of my testing has come back negative: gobs and gobs of blood work, CT of chest and abdomen, head MRI, EMG of major leg nerves, echocardiogram, heart cath, chest x-ray, lumbar spine x-ray, holter monitor, urine tests, ultrasound on thyroid, and upper GI.

Findings, not much: low potassium (briefly), low vitamin D, moderate acid reflux, mild gastritis in stomach, small kidney cysts. Some numbers on my bloodwork at times were a little out of range, but most of my CBC's have been within range.

The one item that has stood out is my EBV test results. The antibody testing shows that I contracted EBV a long time ago, but all of the current antibodies has high titers.
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Avatar universal
Thanks for the info, will try the Jernigans when it comes in, hope it helps.
Helpful - 0
523927 tn?1257018704
Definitely, thanks for the info. While I know the good path will take awhile, I sure could have used a dose of it last night and today. Chest pain, palpitations, back pain, and abdominal pain. Ugh.

Curious enough, we splurged on some Subway yesterday and the wife and one of my sons also experienced some stomach aches. So I'm wondering if my compromised immune system made me more easily susceptible to some bad food. My guess is "yes".
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Avatar universal

= )))  --- I was also taking many of those herbal tinctures for years... even before I was FINALLY diagnosed with CFS. I found out then that the only thing that helped me was alternative medicine. And the alternative medicine practitioners spent more time with me and didn't accuse me of faking an illness. Unfortunatley many CFS patients have been through that, although I haven't.

It is amazing what some of these homeopathic remedies / herbal tinctures do. I mean Dr. Jernigan formula's are actually killing the bacteria in lyme patients ! He isn't using antibiotics either ! It isn't necessarily the herbs that are in his formulas... he does something called "imprinting"... which is similiar to homeopathy. If you've ever had EAV testing (highly recommended, but very expensive) done.. you'll know what I'm talking about.

Glad you are on a good path, ott ! I hope you found the information I sent helpful.


Helpful - 0
523927 tn?1257018704
Multi-vitamin too, of course.

The herbal tinctures I'm taking are a combination of vitamins and herbs. I don't have the bottles with me at this moment, but they are herbal tinctures. The holistic doctor I am seeing has the mixes made specifically for him, so they are proprietary and not something purchased locally or off the Internet. However, I believe they are somewhat similar to what some other companies offer for herbal tinctures. I believe PlateletGal sent us both a link that has some type of virus tincture.

For me, I have taken tinctures that are labeled for the adrenals, immune system, detox/lymph, heart/lung, thyroid/brain, kidney/bladder, liver, and some trace minerals. It varies from office visit to office visit on what tinctures I will be taking at the time. The ingredients are a variety of vitamins and herbs that are known to support the certain areas of the body they are labeled for.

My holistic doctor sounds somewhat similar to PlateletGal's in that we are supposedly kicking up a lot of stuff in my system that I have accumulated over the years. The goal is to combat the viruses and bacteria in my system one by one to get the immune system working properly again.
Helpful - 0
Avatar universal
These are the supplements that my Endocrinologist recommended for me. I found out later that many fibro/CFS experts recommend these supplements for CFS:

ACETYL-Carnitine
COQ10
B Complex (sublingual - I buy my drops at Walgreens)
Zinc
Powered Magnesium
Vitamin E & Vitamin C
D-Ribose
Omega 3 Acids (fish oils, flax seed oil, etc.)


Helpful - 0
Avatar universal
Could you share some info on what kind of herbs you are using,  I sure can relate to what you have said about being healthy before this. I did not even have a primary before this thing, had been to a doc maybe 10 times my whole life and most of them were for pre-employment.  I have ordered Jernigans anti-detox 2 will let you know how it goes when it comes in.   Padro*
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