Reactivated EBV results

[ott70]

My recurring symptoms started up back in February. Over the course of the last few months, I've had a multitude of symptoms: Palpitations, abdominal pain, back pain, numbness/tingling in legs/feet, burning in the feet, chest pain, joint pain, muscle pain, fatigue, low-grade headaches, indigestion, night sweats (but not very many of them and not for awhile now), chills, hot flashes, frequent urination, conjunctivitis, ringing ears, and painful testicles. So basically, I feel whatever I have courses through my body because my symptoms change from week to week. Some days I feel like I'm recovering and then the next day I'm dragging. Or sometimes it works in half-day intervals.

Pretty much all of my testing has come back negative: gobs and gobs of blood work, CT of chest and abdomen, head MRI, EMG of major leg nerves, echocardiogram, heart cath, chest x-ray, lumbar spine x-ray, holter monitor, urine tests, ultrasound on thyroid, and upper GI.

Findings, not much: low potassium (briefly), low vitamin D, moderate acid reflux, mild gastritis in stomach, small kidney cysts. Some numbers on my bloodwork at times were a little out of range, but most of my CBC's have been within range.

The one item that has stood out is my EBV test results. The antibody testing shows that I contracted EBV a long time ago, but all of the current antibodies has high titers.

[PlateletGal]

I was on the MP and then recently switched to Jernigans... only because Jernigan's does the same thing, but without the antibiotics. And Jernigan's formulas apparently are designed to "mop-up" the toxins that are dying.. so the herxing isn't as bad as some other protocols and that means less stress on your organs.

The vitamin D issue. Wow. Dr. Marshall took a lot of heat for his research, etc. on vitamin D. I can just tell you that an Endocrinologist and a Naturopathic physician told me about the MP. Everyone agress that vitamin D is a seco-steriod hormone and it plays a role in people with chronic illnesses, but nobody understands what that role is. Dr. Marshall's research is relatively new and very controversial. I agree with Dr. Marshall on many issues because it all makes sense to me. I just listen to my body.... I notice that when I'm outside, I'm shielding myself away from the sun. So that tells me what I need to know. I'm currently avoiding vitamin D at this point.

Its funny because several years ago, I quit craving milk. This was before I had a diagnosis.  My personal opinion on this is to listen to your body.

[ott70]

Thanks for that link about L-form bacteria and the MP. That really opened my eyes and now I'm wondering if I should take myself off my 2000 IU daily dose of vitamin D3. Even more creepy is the holistic doctor I'm seeing told me awhile back that my body is telling him I don't need any extra vitamin D.

Did you say you were doing the MP?

[Padro46]

Thanks Ott, My gatro just wanted to make sure because I was approaching that 50 thing, Still no clue on the minor ab pains, as you said I guess CNS, just dont want to take the anxeity meds, to me that will not help the main problem what ever that may be

[ott70]

Endoscopy for myself. Moderate acid reflux in the esophagus and mild gastritis in the stomach. Taking a prescription for the acid reflux. No colonoscopy since I haven't had much change in my bowel movements. I also had an AB CT after a weekend of back and abdomen pain a couple of months ago. Negative results other than a couple of small kidney cysts.

My abdomen pain has subsided for the most part today, but I have some numbness and tingling going on with my right side. Since everything has checked out okay so far, I'm going to have to assume a CNS effect with my nerves. Hopefully it subsides sometime today because it's unnerving (no pun intended). I believe I have read that EBV and CFS can cause numbness and tingling from affecting your CNS.

[Padro46]

I failed to ask you did you have a colonscopy and/or a endoscopy done on your ab pains?  I did along with a AB CT and was told all good rx a anxeity pill for the second time, have not taken any of them.  It seems that if the Dr does not have a positive test it MUST be in your head.

[PlateletGal]

For those of you who wish to actually see CFS patients worst nightmare... L-form bacteria:

http://bacteriality.com/2008/05/07/mpintro/

Highly recommended.