So I've decided to actually ask for some advice as I am literally at my wits end! I am a 26 yr old female, who has, for 5years I have suffered from dizziness, lightheadedness, vertigo, headaches, migraines, tinnitus, head pressure, blurred/off-ish vision troubles, 'neurological' type sensory symptoms and general intermittent feeling of being unwell. My story is quite long so I will try and keep it short!
5 years ago when my symptoms began I saw a GP who referred me to an ophthalmologist and a neurologist. I had a standard eye exam at my opticians too. During my eye exam they stopped and said 'We need to send you to the Emergency Department'. They thought I had a brain tumour basically... I went to hospital and they looked in my eyes again, they couldn't see a problem and sent me on my way. I had to wait weeks to see a neurologist.
During this wait my symptoms worsened and I started having severe panic attacks. I eventually saw the neuro and they diagnosed migraines after a clear/normal physical examination (no actual tests). Of course my symptoms then kept getting worse and I demanded a brain scan, (which the opticians had recommended from day one) and I was given a CT scan which showed 'nothing worrying', I was told I had "lateral ventricular asymmetry" and was told I must've been born like It as they couldn't see a cause!
Anyway, two months later I had another funny turn and this time I was really quite scared. I was admitted after having symptoms which mimic'd MS. They done eye exam, neuro exam, blind spot test, etc and I was told they thought I had MS and were going to send me for a full Brain and Spinal MRI. Crazy as it sounds I was so happy I was being taken seriously...
However, the MRI was completely normal..... In a way I wanted it to show something as no explanation for my symptoms is very stressful at this point!
Since my clear MRI I have had intermittent symptoms, Some days worse than others, I get about 5 headaches a week, dizzy spells every day, physical fatigue and blurry vision every now and then. (Sometimes like I am looking through a fishbowl)
I today went for an eye exam (just a check up to see if I needed glasses!) and again the lady (a different one that last time!) is shocked to see such elevated optic nerves, with my history she wasn't going to send me to the emergency department only to get told I am fine, so she has old me to tell my GP again. I would just like to know what is wrong and whether anyone has any idea?
My ophthalmologist me ruined optic drusen but I don't think it's that... Any ideas?? I sometimes feel so dizzy and strange that I think I'm having a TIA or something!!! I'm fed up!!! I get woken up in the night with major head rushes like a warm dizzy feeling and a sense of pressure in my head. It's so odd!
Does anyone think I should press for a lumbare puncture??
So with all my symptoms, elevated optic nerves, lateral ventricular asymmetry but NO obvious causes, where do I go from here???
Thanks for your time, hope you can help.