Sphincter of Oddi Dysfunction - need help

[desperatevan]

If this appears twice  - sorry - just getting used to how to use this site.  I need some help from anyone out there in the know.  Having had right quadrant pain for many years.  The doctors finally decided that my gallbladder was at fault.  it was removed in Feb 2013.  The pain did not disappear following a  lap cholecystectomy.  Having been back to the hospital on several occasions since this procedure, usually as an emergency, where I have been fobbed off and made to feel like I was some kind of freak, rolling around on the bed or trying to find a suitable position to put myself in to alleviate the pain, in desperation I sought a second opinion from doctors in Oxford.  They performed a couple of other tests, even though I had been told that I had had everything done - they have now told me that I have Sphincter of Oddi Dysfunction.  Can anyone out there help with advice on what I should eat or anything I can do to ease the pain when it comes on strong.  I am taking nortryptyline, buscopan and a GTN spray and have some oromorph on hand for when it is really bad to see me through for a while until my next appointment.  Please help!

[linkin2012]

Hi there I too have been diagnosed with this and have a huge stomach full of gas and put on a lot of weight,apparently due to not be able to digest food or metabolize fat, I have been on one meds for removing bile from the stomach and on a fat free diet, no meat and no fibrous veges. please let me know if this is anything like you. cheers

[remar]

From what I know the sphincter does not open when it should and it can spasm causing pain. Buscopan is supposed to help with these spasms. Are you getting any relief at all from the med?
I'm so sorry you're going through this. It seems that anything that has to do with the digestive system is so hard to diagnose and treat at times.
You said you had tests done but did you have a scope done yet?