My 35 yo husband had dx of MVP for the 1st time 7 years ago saying "follow-up on it" and of course he didn't. Then in 2007, out of nowhere has TREMENDOUS swelling of the lips (on no meds at time) and dx of "spontaneous swelling with unknown origin". After complete physical in May 09, cardio said MVP with regurg (and I'm just finding this out!) Aortic Root Dilation. Rx of Lisenopril (spelling?). On meds for 5 months, suddenly starts with crazy swelling thing (one day it's L Hand, goes down, then L forearm, down, next day L forearm, the scrotum). GP says body is rejecting the med (after 5 months??) and rx a prednizone pac. 10 days after d/c meds, swollen lips (to the point of cracking and he looked like a clown). Hubby decides it is a nut allergy since off meds 10 days. Takes Lisenopril again 1/10 (why?? Don't ask!) and severe swollen tongue (cracked & bleeding) to point of causing narrowing of esophagus & difficulty swallowing. Episode of syncope landed us in ER.
So now I find out about this aortic root dilation ("slightly dilated at 4.2cm") and the cardiologist partner says no meds necessary, just check in in 6 months. Who is right????
As far as this Angioedema, might be Drug allergy, might be nut allergy, might be Mammalian Meat Protein allergy.
Questions: 1) Am I right to understand that we really won't know anything about this dilation issue until the follow-up workup in 6 months to see if there is a change? 2) To medicate or not? 3) What is up with this Angioedema that is ALWAYS contained to the L side of the body??? 4) How do I get it through his thick skull that he HAS to lose 30#s in order to be around for our 5 and 2 year olds??????