Hi My name is Misty

[Misty12345]

Hi my  name is  Misty . I  have   two rare deseases one called pseudotumor cerebri and the other called Arnold Chiari malformation  . I just recently had a vp shunt installed back in november . I had a shunt complication  folowing this surgery where i got a locolized infection over the shunt tubing wich was call cellucelitus. I was having really fast pulse problems .  The dr told me that it was due to my infection. Well i am well now and i am still having this problem . I was diagnosed with a arotic valve prolaps when i was young.  I have never had any problems out of my heart .  I have only  had problems keeping my intercrainal preshures down in my head even with a shunt . they were in the 300 range on spinal tap or 30 . These preshures in my head would cause my botom number on blood preshure high but only in the  high 80 . Well i have been  recently taking my blood preshure because  i felt a fluter and it feels like my heart is slowing down. but it desides to keep beeting fast.
after being up all day i  did a blood preshure read and it  was  140 over  99 and my pulse was  135 . what is causing it . could it be from my shunt tubing being ran down the  left side. They had a hard time getting it to thread through my neck . or could it be pressing on soemthing in my neck and causing my heart to act this way ?  I am verry concerned because my blood preshure  monoter came with a irrigular heart beat dection  . and  i have that symbol light up alot.
I also have hypothryoidism and i take levoxyl . I have had three surgerys last year . Please help

[PikaPika88]

What surgery are you going in?  You don't have to tell if you want to keep it privately.  Let me know what your heart Dr said.  Take care.  

[ireneo]

Morning Pika - I actually don't get reports when I get a monitor (holter or event type). The doctor just tells me I have this and that and we're done. I'm not all that interested in  how many PAC's, PVC's and tachy times I have in a day or month. I know I have them but keeping a tally doesn't do anything for me.

I am going to see the cardio this morning to hear how my last 30 day event monitor went. I only recorded 4 things out of a bunch (42 tachys and 11 chest pains). They all seem like the same old stuff I've had for years so I just chose a few for samples. I'll see what the doc says today. He has to clear me for surgery next week.

[PikaPika88]

Hi Ireneo,

What is your holter report said?  Have you read mine?

[ireneo]

I'm glad you have the monitor on. Glad your BP machine is close to the doctor's. The monitor will be able to record the irregular beats and they can "see" what the heart is trying to do. It's amazing how much they can tell from all those random spikes. Some heart arrhythmias, though not normal, are very harmless. They may tell you something like that. Ask them to explain more clearly what's going on, what is it called and what can be done for it if anything. Think hard between now and when you see the doctor again. Write down any questions that pop into your mind. That's their job to help you, even if it just means giving you some peace of mind. Good luck.

[Misty12345]

yes i do have alot going on . I now have a halter monoter on . on  the blood preshure thing  it has to be right because i took it after coming back form the dr and  it said the same thing  mine did.  

I am 32 years old and have  had alot of problems .  When i was born i was  a premie  i came  2 months early .  They thought i was a water head babie .  Back in the  70's they just watched kids  with big heads . that is all they did to me and since i grew into my head i was ok until my late 20 's  then everything hit.  I am verry conserned.  I just got my problems fixed and now this.

[ireneo]

You do have a lot going on. I'm not a doctor so these are just my random thoughts. I've read that certain valve conditions can cause arrhythmias and you have a valve problem. The shunt runs "down the left side" but where exactly? You have a vagal nerve that runs down the chest area and certain things can stimulate it. Although I use vagal stimulation to slow my heart beat when it's going too fast. I'm wondering if the vagal nerve is involved somehow. You take meds for hypothyroidism - perhaps that needs to be adjusted to a lower dose. One last thing, maybe your BP monitor is off. They do need to be calibrated occasionally. So, with all that said, when was the last time you saw your doctor or better yet, a cardiologist? It might be time. Take care.