I'm confused, what does it mean when you "go into heart block"? I haven't heard that term before, how do they tell when you go above 100bpm you go into this heart block?what happens exactly?
I had an ablation for pvc's and vtach; then had to have a pacemaker/defibrillator - my bpm goes well above 100 several times a day even sitting or sleeping. My settings have been reset numerous times and I still have problems, and the dr's said mine is my pacemaker leads were not set right to begin with and have leaked & started fracturing.
Have you tried another doctor/clinic that deals specifically with pacers?
Are you symptomatic or is the pacemaker keeping you comfortable. After ablating the av node, you would be permanently in heart block. The gateway from the atrium to the ventricles is damaged. That's why you have the PM.
Are you saying the pacemaker is not pacing properly when rates go over 100? That sounds like a problem with the pacemaker then.
Sorry to read of your very unfortunate developments. Maybe your young age will help you adapt as the "system" is fine tuned, I truly hope so.
Your story ads credibility to the concern that the ablation procedure carries risks. My Cardo and the consulting EP refuse to do an ablation on my permanent AFib saying my symptoms are not severe enough to justify the risks associated with AFib ablation.
I have a pacer and I had the AV node purposely ablated due to my AFib. I am 100% dependent on the pacer. I have a very normal life. I go to the gym, I sail on the ocean and I travel extensively. So with that said, I am having difficulty understanding what you mean when you say that you go into heart block when your heart rate go over 100. When I exercise, my HR goes above 110 and I do not have a black sensation. I huff and puff because I have just run on the treadmill. When was the last time you had you pacer interrogated? Maybe your settings need to be adjusted. It took me several times to get the adjustment just right for me.
I am on my second pacer and I LOVE life. I am not free from AFib but life with a pacer is so much more enjoyable.
ksig