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WELCOME
WELCOME TO THE HEART RHYTHM FORUM!
Were you recently diagnosed with a heart rhythm disorder? Would you like more information on the heart’s electrical system? Are you feeling overwhelmed, frightened and/or confused? Are you scheduled for EP tests, procedures, and or surgery? Is your arrhythmia medication giving you trouble? If you answered “yes” to any of these questions, you are in the right place!
The Heart Rhythm forum is comprised of a group of people who share an interest in learning more about arrhythmias. The forum covers an array of topics including: Afib, Aflutter, PVCs, PACs, SVT, WPW, palpitations, pacemakers, ICDs, procedures, tests, medications, post procedural/surgical expectations, and much more. If it is related to your heart’s rhythm, chances are we can help.
Some of us have been living with arrhythmias for years while others are new to the world of electrophysiology. Regardless of why YOU are here, welcome! Here are a few suggestions for making the most of the forum.
1) Check out the "Health Pages." The link can be found in the upper right hand corner of your screen. The “Health Pages” address topics relevant to cardiology. Among the pages is a great resource for common cardiology acronyms.
2) Please join the community. Once you have had a chance to look around, why not create a profile and tell us a little about yourself? Your profile can be as simple or as complex as you like. In any event, you will meet people from around the globe! You will have the opportunity to learn and share experiences with members who share your concerns.
3) Consider posting to a current discussion, or try staring one of your own. Don’t worry - you’ll get the hang of it very quickly. You’ll find that you will want to come back often to check up on your new friends. If you’ve got something on your mind, please don’t be shy. There are no dumb questions and we are all here to learn.**
4) Get acquainted with other members. There are several ways to “Add a friend” but one of the easiest is to scroll over the member’s name and click on “Add a friend”.
5) Consider keeping a journal. Your journal can be private, public, or available only to those people you have added as a friend. Journals are a great way to share your story, frustrations, experiences, history, etc. You will probably find there are others who can relate to your story.
6) Want to speak privately to another member? Send a private message (PM) by scrolling over the member’s name and clicking on “Send Message”.
7) Only have a minute and want to welcome a member, or send good luck wishes? Scroll over the member’s name and click on “send a note.” Unlike PMs, everyone can view “Notes”.
8) Once you’ve created a profile, click on “My MedHelp” (indicated by a little red heart at the top of your screen) and check out the many great features and setting options.
9) Lastly, we would like to point you to the TRACKERS!! There are a number of trackers available to our members, but we would especially like to point out the ‘Cholesterol, Blood Pressure and Heart Rhythm trackers. You can add them to your profile by clicking on "My MedHelp" (top) and then go to the Tracker Widget -- At the bottom of the Tracker Panel click on "Add Tracker" which will take you to the tracker page, where you can select the BP, Cholesterol and/or Heart Rhythm tracker. You can begin using your trackers today! Keeping track of your cholesterol and blood pressure are great ways to do your part to manage your heart health!! The rhythm tracker is an excellent tool for you to document symptoms, frequency, treatments and procedures relevant to your heart rhythm!
**Please read the Terms of Use at the bottom of your screen. There are a few general posting guidelines that are for the benefit of all community members.
Please do not hijack another member’s thread. If your comments are relevant with the current discussion, post away. If you have a new topic of interest, please begin a new post.
We are so glad you found us! Please don't forget to join our community! We would love to have you! Pull up a chair, get comfortable and get ready to meet a great bunch of people!
If you are already a member, won't you please take a minute to welcome our new members as well as those who are lurking. Would you mind sharing your story to let others know how the forums have helped you.
Your Community Leaders
Were you recently diagnosed with a heart rhythm disorder? Would you like more information on the heart’s electrical system? Are you feeling overwhelmed, frightened and/or confused? Are you scheduled for EP tests, procedures, and or surgery? Is your arrhythmia medication giving you trouble? If you answered “yes” to any of these questions, you are in the right place!
The Heart Rhythm forum is comprised of a group of people who share an interest in learning more about arrhythmias. The forum covers an array of topics including: Afib, Aflutter, PVCs, PACs, SVT, WPW, palpitations, pacemakers, ICDs, procedures, tests, medications, post procedural/surgical expectations, and much more. If it is related to your heart’s rhythm, chances are we can help.
Some of us have been living with arrhythmias for years while others are new to the world of electrophysiology. Regardless of why YOU are here, welcome! Here are a few suggestions for making the most of the forum.
1) Check out the "Health Pages." The link can be found in the upper right hand corner of your screen. The “Health Pages” address topics relevant to cardiology. Among the pages is a great resource for common cardiology acronyms.
2) Please join the community. Once you have had a chance to look around, why not create a profile and tell us a little about yourself? Your profile can be as simple or as complex as you like. In any event, you will meet people from around the globe! You will have the opportunity to learn and share experiences with members who share your concerns.
3) Consider posting to a current discussion, or try staring one of your own. Don’t worry - you’ll get the hang of it very quickly. You’ll find that you will want to come back often to check up on your new friends. If you’ve got something on your mind, please don’t be shy. There are no dumb questions and we are all here to learn.**
4) Get acquainted with other members. There are several ways to “Add a friend” but one of the easiest is to scroll over the member’s name and click on “Add a friend”.
5) Consider keeping a journal. Your journal can be private, public, or available only to those people you have added as a friend. Journals are a great way to share your story, frustrations, experiences, history, etc. You will probably find there are others who can relate to your story.
6) Want to speak privately to another member? Send a private message (PM) by scrolling over the member’s name and clicking on “Send Message”.
7) Only have a minute and want to welcome a member, or send good luck wishes? Scroll over the member’s name and click on “send a note.” Unlike PMs, everyone can view “Notes”.
8) Once you’ve created a profile, click on “My MedHelp” (indicated by a little red heart at the top of your screen) and check out the many great features and setting options.
9) Lastly, we would like to point you to the TRACKERS!! There are a number of trackers available to our members, but we would especially like to point out the ‘Cholesterol, Blood Pressure and Heart Rhythm trackers. You can add them to your profile by clicking on "My MedHelp" (top) and then go to the Tracker Widget -- At the bottom of the Tracker Panel click on "Add Tracker" which will take you to the tracker page, where you can select the BP, Cholesterol and/or Heart Rhythm tracker. You can begin using your trackers today! Keeping track of your cholesterol and blood pressure are great ways to do your part to manage your heart health!! The rhythm tracker is an excellent tool for you to document symptoms, frequency, treatments and procedures relevant to your heart rhythm!
**Please read the Terms of Use at the bottom of your screen. There are a few general posting guidelines that are for the benefit of all community members.
Please do not hijack another member’s thread. If your comments are relevant with the current discussion, post away. If you have a new topic of interest, please begin a new post.
We are so glad you found us! Please don't forget to join our community! We would love to have you! Pull up a chair, get comfortable and get ready to meet a great bunch of people!
If you are already a member, won't you please take a minute to welcome our new members as well as those who are lurking. Would you mind sharing your story to let others know how the forums have helped you.
Your Community Leaders
I just joined tonight (this morning). Just experienced an episode tonight and am scared to go to sleep. so am up at 3:37am writing about it to try to get it off my mind. Waiting to see if my pulse and bp wil come down. I'm glad I found this place after reading all the posts I feel a little better knowing that I'm not alone when I have a episode like this. Yes, indeed, it is extremely scary and makes me worry incredibly. I hope to make some friends.
I'm so grateful I found this forum! My 25 year old daughter has been dealing with continuous runs of pvcs bigenimi and couplets for 5 weeks. She has been taking 100 mg of beta blocker a day with no relief in sight. Today at her cardiologist appointment, she was told that she is throwing 30,000 pvcs a day. I was floored. She was immediately referred to the cardiac specialist who performs ablations and told they hope to have her done in three weeks. I live in California and she is in law school in Chicago so I feel somewhat out of control. Luckily her health insurance covers Northwestern University Hospital so I am confident she is with a good system. The doctor told her that the pvcs are from an unknown orgin and are ventricular and not atrial. Anyone with similar circumstances?? Thanks
Having been right where your daughter is, I can tell you first hand how helpful this site was/is for me. One thing that you might do to generate more response is to start your own thread. Readers may see your post here, but they are more likely to see a post if you start a new topic. You can copy and paste your comment above, but try to put it into a topic all its own. You will probably get more responses that way : )
If your daughter has her procedures done by an experienced EP (electrophysiologist), she may find she has more energy and feels better than she has in a long time. In 2003, I had 2 ablations for frequent PVCs, and now I only get a few PVCs (compared to 20,000+ per day). As for the beta blocker, some people find they help a lot, others not so much. I would imagine Northwestern has a great program where she will be under excellent care. If they do an EPS (electrophysiological study), they may be able to pinpoint the place where the PVCs are being generated. In my case, the EPSs were done at the same time as the ablations. Please feel free to ask any questions, send me a private message, etc. if I can help. Hope that helps at least a little : )
Connie
If your daughter has her procedures done by an experienced EP (electrophysiologist), she may find she has more energy and feels better than she has in a long time. In 2003, I had 2 ablations for frequent PVCs, and now I only get a few PVCs (compared to 20,000+ per day). As for the beta blocker, some people find they help a lot, others not so much. I would imagine Northwestern has a great program where she will be under excellent care. If they do an EPS (electrophysiological study), they may be able to pinpoint the place where the PVCs are being generated. In my case, the EPSs were done at the same time as the ablations. Please feel free to ask any questions, send me a private message, etc. if I can help. Hope that helps at least a little : )
Connie
Welcome - this is a great place for support and answers; I have found in the past few months more help than all of my doctors together :)
You will find every aspect of all heart rhythms here and how we each experience them and deal with can be vastly different.
For me - I was shocked I had over 54,000 pvc's daily (sometimes more) I knew I had these things, but doctors told me for years nothing was wrong with me. I dismissed how I felt as everything else - stress, job, family, kids, being overweight, out of shape etc etc etc
So far; they found no reasoning for mine and nothing caused them to worsen, except when I get aggravated; but that still happens.
I had an ablation last month and had some complications during surgery that showed I had other problems VTach & my heart went into Vfib 3 times, so I had to have a pacemaker/icd implanted.
You will find every aspect of all heart rhythms here and how we each experience them and deal with can be vastly different.
For me - I was shocked I had over 54,000 pvc's daily (sometimes more) I knew I had these things, but doctors told me for years nothing was wrong with me. I dismissed how I felt as everything else - stress, job, family, kids, being overweight, out of shape etc etc etc
So far; they found no reasoning for mine and nothing caused them to worsen, except when I get aggravated; but that still happens.
I had an ablation last month and had some complications during surgery that showed I had other problems VTach & my heart went into Vfib 3 times, so I had to have a pacemaker/icd implanted.
Hello,
Female now 53 years old...
Back in 1997 or 98 my heart rate began to race... Did not think anything of it... do to the fact it stopped within 5 mins... Then one day it did it again I was very relaxed washing the dog and it started... I finished the dog went to lay down to relax... and it stopped after 30mins... that was the longest... At one point I walked into a immediate care sometime during one of fast rates, told someone, by the time they hooked me up it was gone. So for years I never knew what it was... One day I mentioned to a girlfriend and she said I was having Anixety attach, did know what that was... never felt anixety before... I have had them here and there... but it would go away pretty quick...So I did not think anything of it again... 9 years later I am getting married at the age of 51 2nd marriage... A big life change... My husband lives in another country which is a 2nd world... So we marry on Sept 8, 07 all is well... Then one day while we were back in the states at our home there... on Dec 8 3month aniversary... I was accepting a friend so I was cleaning the house and trying to fit everything thing in for the day... and then there goes the heart rate... I took a shower washed my hair, dryed it... laid down... and it picked up pace... Now I am worried this is 1 hr now... and it is not getting any better... I am pee a lot... I called my husband and told him i think I need to go to ER... Picked him up at one of our friends house... while picking him up I need to use the rest room again... Finally got to the hospital, by then, my neck was stiffing up, I was not feeling very well and not know what was going on and my husband is feaking out with the hospital check in.. they finally get me to a bed. put me on a montior and all faces changed and everyone was working so fast it started to scare me even more... Everyone in the ER room was at my bed, They ask me questions and that was hard to answer my brain was not working so good... They are sticking me with IV in both arms... and now they are talking to me letting me know what they are going to do... Just keep breathing while they dosed me with Adesoine 5 mg... That was horrible feeling... my rate was up to 268 when they hooked me up... The hospital has never had anyone come in like that... They asked me if i take Drugs...NO, Drink NO, Caffine NO... I eat organically and excise regularly... I am so health... all blood test came back just fine... I was Dignosed with PVST which did not mean anything to me still... So I made an appt with a Cardi in Newport Beach, CA ... Took test on a treatmill, ultra sound... Everything perfect... Accept he said I have AVNRT which still did not mean anything to me... Of course you have to get yourself educated now... and get pro-active... Since then I had another one Dec 31,07... every 6months I am in the ER 2008 2 times... 2009 3 times... Two people asked me maybe it is hormonal... I did not think anything once again... and then I am looking back on the first time... I went thur a horrible divoice like all of us... do... and when the dust settle is when this heart rate started... Just out of the Blue... Now I am in another life change getting married after living alone for 15years... and cultur shock in another country adjusting to that, whick is very difficult... Now I have my first appt with a dr in NJ who accutally does the procedure... and I have 22 questions for him based on my last surgery I had on my knee which did not go well... That has taking a toll on me ... So I do beleive it is emontionally related... When I get upset and a after a couple of days I settle down... The SVT starts... Right Now I have not been in the ER... for 2 1/2 months...
CAN ANYONE OR DR LET ME KNOW THE ANSWER TO THIS QUESTION...
My question is how harmful can that Medicine that they inject Adensione be for the body and heart..?
I am going the direction of not having the surgery at the moment do to the fact I want to know ...what is the RISK FACTOR if I DO NOTHING and keep going to ER for 5mg to stop the heart from going to fast...
Thank you, J
Female now 53 years old...
Back in 1997 or 98 my heart rate began to race... Did not think anything of it... do to the fact it stopped within 5 mins... Then one day it did it again I was very relaxed washing the dog and it started... I finished the dog went to lay down to relax... and it stopped after 30mins... that was the longest... At one point I walked into a immediate care sometime during one of fast rates, told someone, by the time they hooked me up it was gone. So for years I never knew what it was... One day I mentioned to a girlfriend and she said I was having Anixety attach, did know what that was... never felt anixety before... I have had them here and there... but it would go away pretty quick...So I did not think anything of it again... 9 years later I am getting married at the age of 51 2nd marriage... A big life change... My husband lives in another country which is a 2nd world... So we marry on Sept 8, 07 all is well... Then one day while we were back in the states at our home there... on Dec 8 3month aniversary... I was accepting a friend so I was cleaning the house and trying to fit everything thing in for the day... and then there goes the heart rate... I took a shower washed my hair, dryed it... laid down... and it picked up pace... Now I am worried this is 1 hr now... and it is not getting any better... I am pee a lot... I called my husband and told him i think I need to go to ER... Picked him up at one of our friends house... while picking him up I need to use the rest room again... Finally got to the hospital, by then, my neck was stiffing up, I was not feeling very well and not know what was going on and my husband is feaking out with the hospital check in.. they finally get me to a bed. put me on a montior and all faces changed and everyone was working so fast it started to scare me even more... Everyone in the ER room was at my bed, They ask me questions and that was hard to answer my brain was not working so good... They are sticking me with IV in both arms... and now they are talking to me letting me know what they are going to do... Just keep breathing while they dosed me with Adesoine 5 mg... That was horrible feeling... my rate was up to 268 when they hooked me up... The hospital has never had anyone come in like that... They asked me if i take Drugs...NO, Drink NO, Caffine NO... I eat organically and excise regularly... I am so health... all blood test came back just fine... I was Dignosed with PVST which did not mean anything to me still... So I made an appt with a Cardi in Newport Beach, CA ... Took test on a treatmill, ultra sound... Everything perfect... Accept he said I have AVNRT which still did not mean anything to me... Of course you have to get yourself educated now... and get pro-active... Since then I had another one Dec 31,07... every 6months I am in the ER 2008 2 times... 2009 3 times... Two people asked me maybe it is hormonal... I did not think anything once again... and then I am looking back on the first time... I went thur a horrible divoice like all of us... do... and when the dust settle is when this heart rate started... Just out of the Blue... Now I am in another life change getting married after living alone for 15years... and cultur shock in another country adjusting to that, whick is very difficult... Now I have my first appt with a dr in NJ who accutally does the procedure... and I have 22 questions for him based on my last surgery I had on my knee which did not go well... That has taking a toll on me ... So I do beleive it is emontionally related... When I get upset and a after a couple of days I settle down... The SVT starts... Right Now I have not been in the ER... for 2 1/2 months...
CAN ANYONE OR DR LET ME KNOW THE ANSWER TO THIS QUESTION...
My question is how harmful can that Medicine that they inject Adensione be for the body and heart..?
I am going the direction of not having the surgery at the moment do to the fact I want to know ...what is the RISK FACTOR if I DO NOTHING and keep going to ER for 5mg to stop the heart from going to fast...
Thank you, J
my question is ... Risk Factor with SVT/AVNRT if I do nothing? 1-1000
2nd ? Does the adensoine meds that are used in the Hospital life threatenign to your heart each time you are injected?
3rd? I have had from 2007-2009 7 attacks and had to go to Emergency Room each time... Is this enough times to say I should have the surgery...?
I am on no meds... 2 Doctor's have said I am not a canidate for Meds... Tried one and I felt worse than better...
So no meds and have been out of Emergency rooms for 2 1/2 months now...
4th? If I have had 2 attacks in one year do I want to put myself thur the surgery?
There are risk factors doing the surgery...?
Thank you J
2nd ? Does the adensoine meds that are used in the Hospital life threatenign to your heart each time you are injected?
3rd? I have had from 2007-2009 7 attacks and had to go to Emergency Room each time... Is this enough times to say I should have the surgery...?
I am on no meds... 2 Doctor's have said I am not a canidate for Meds... Tried one and I felt worse than better...
So no meds and have been out of Emergency rooms for 2 1/2 months now...
4th? If I have had 2 attacks in one year do I want to put myself thur the surgery?
There are risk factors doing the surgery...?
Thank you J
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