what is the news with replicor?

[veteranB]

2013 and they are all awfully quiet. I think it is time people for a massive online action against these companies. What in the hell are they doing not releasing cures now.  At least.to expose them.  People are not aware of hbv or how much we suffer and what is really going with with these companies  how they go about saving lives.

We dont need more Baraclude or simvastin to remedy it. We need cure or best available which they have but wont release it hiding behind eugenics laws that violate human rights - and delay cures.  

I am just saying if we will be silent nobody will help us.  This  forum should be about this. Taking an action and making these companies accountable. And also raise public awareness.  So in 2013 lets all make a push - those of  us that want live.

[veteranB]

You are over there with Dr.Gish have all the info.

I can take charge alright. I just need to know who to talk to so we can put a team of people like me for them to test these drugs. I would even pay. And I am sure many people will too.

But to me it just does not make any sense whatsoever that regulations stop cure developments or better treatments.

Think about it. They give anti HIV agents that are highly toxic and that happen to damage our immune system too because of it. But clearing HBV or containing it requires a strong immune system.

The new agents that you listed offer a lot of promise but at this current rate of development is just to slow.

I think Replicors drug is ready for use based on the data they showed. Like I would have no problem paying 24000 and going through treatment if they are willing. These companies need to understand that some people with advanced hbv disease are desperate.  

[veteranB]

Drug companies see it as a business. And that is fine and they should make money. But what I hope CEOs of these companies realize that saving lives is really not the same as making - developing a new car model.

Why talk about FDA and blaming them? Their decisions are influenced by lobbyists in many ways. People that sit on that  board of members approve drugs for many diseases without looking into specifics. I really doubt if a company or a group of doctors approaches them and tells them I think I have a cure for HBV just give me green light - I doubt that they would deny it. After all we the patients are grown adults and can decide to enter the trial or not.

I would like to see larger human trials that are open for volunteers. We can even pay some portion of treatment too to make the process go faster.

What bothers me is this. Why there is no regulations regarding software and electronics development but making advances in medicine  in treatment of incurable disease is?

[veteranB]

And a lot of it is do to us patients. We seem to be ok labeled as low social economic groups - or injecting drug users.

I am really tired I tell you reading about Etv and TDF. For us interferon was better anyway.

[Cjb3695]

I totally agree with you, I think we deserve better and they are playing with peoples lives. The only thing thatll help is getting this out to the public and rallying behind it. If somehow we can get someone in the right profession to create a non profit organization and a petition soley towards pushing these drugs quicker I bet we'll see some action

[veteranB]

Yeah it is all so sick. Cancer is an industry. Hiv and  our virus. Which is btw in the old days was treated better. At least they did.not waste time and treated us with interferon.

Now these news anti aids drugs only complicate things.

[imdrew]

I respectfully disagree. Antiviral is an option that is not better nor worse than Interferon. Plus it is cheaper with less sides for naive patients. And without it how can we do combo which is arguably better than mono?