57 years old
1a Stage 3/4 around 39 years infected
Treatment March 08 to August 09 72 wks tx w/Pegasys 180mcg & Copegus1000mg
3 mo post tx PCR - relapse vl 137,000 AST and ALT normal
6 mo post tx AST 21, ALT 25
No post tx side effects
Waiting for the PI's and if it looks like they will not be released next year I will look into a trial. The combination of Protease and Polymerase looks very promising.
Trinity
Cheers Trinity, similar situation to me. Fingers crossed eh.
Anyone else out there ?
Infected at least 16 years, 4 failed treatments, 1a, early Cirrhosis. Waiting, waiting, waiting, waiting, waiting for PI's...
Magnum
57 years old
Genotype - 1a
Treated in 2008 - null responder
Biopsy - Stage 4 (compensated until operation summer of 2009. Now have edema, mHE and ascites which I try to manage with my meds).
40 years infected
I am waiting for Telaprevir to come to market. Since I am starting to decompensate I hope I will be able to treat once more. (fingers and toes crossed!) If not, then I will need a transplant to live. I am currently in the process of getting list on a transplant list.
Cheers!
HectorSF
I am:
Female
48 yrs old
10 x of TX, non-responder or partial responder w/o viral clearance ever...
Stage 2 Grade 3 bridging fibrosis x 7 yrs.
Proposed treatment options for the future? Don't know what will do the trick at this point.., probably a miracle from the most high! I am hoping for a polymerase clinical trial that will accept a Telaprevir failure patient into their protocol. Or, if I have a way to pay for Boceprevir when it becomes available, I'd be wanting to try that. And there's also the possibility that a HCV vaccine will be developed that would be able to help to clear alot of us. I'm definitely not giving up hope.
Susan400
I forgot to add, I was previously a genotype 1A/1B dual genotype and somewhere along the way with the 10 TX's, I lost the 1B and now only have the 1A.
Most definitely infected in 1982-1983 time frame and diagnosed with non-A/non-B hepatitis in 1985. Formally diagnosed w/Hep C in 1994. 1st TX was in 1997.
Susan400
Wishing you the best Susan. There is always hope...
Mag
Me:
Geno 1b
Treated with:
Intron A
Intron A + Riba
Infergen high dose + Riba
Pegasys + Riba
Pegasys + Riba + Zadaxin
Many years of half dose maintenance until it wiped out my bone marrow and can never use inf again.
Infected for 44 first biopsy 1992 - still well-compensated
Oops...infected for 44 years.
thnks, we must all keep hopeful !!
You courageous people are in my heart. Sending out a lot of positive vibes, warm wishes and prayers. May you all get rid of this monster really soon!
Hugs, Marcia
51 tried TX once 4 years ago, had breakthrough during TX and pulled after 10 months. Pre-TX VL 92 million, end TX 4 million, TX low 1.3 million. Severe Anemia during TX.
Type II DIabetes only known Post TX effect.
Geno 1A
Early Cirrhosis
Stage 1 varices
6 month vists for LFT, AFP, and Meld calculation.
Annual CTScan, Endoscopy, bi-annual bone density scan
So far all indicators are showing compensated with no further advancement.
Standing on faith
1A. Failed Mono tx nealy 20 years ago, and dual tx about 8 years ago Contracted approximately 36 years ago, 55 y.o. Cirrhotic with: Grade 2 esophageal varices and ambiguous encepholopathy, chronic mild anemia, thrombocytopenia, enlarged spleen, 1 1/2 year old twins, a teen age daughter, and unemployment. What a list! My best to us all. d
Thnks Dennis you are also dealing with plenty there, am sure there will be a way through for us.
Keep the faith
Female
48 yrs old
i treated once on a trial for viraminadine back in 2004- non-responder or partial responder they would not tell me anything
Stage 2 Grade 2
Genotype - undetermined, i have been tested over 20 times
infected between 26 - 30 years ago, iv drug user
I am wating for the new PI treatments
Age: 53
Type 1a
HCV/RNA Quantitative measure 12,000,000 + parts per liter tested.
Positive for at least 25-years since last high risk behaviors.
2-prior treatments. 1) Taken off first time early by doctor as a non-responder and too
sick from treatment to continue.
2) Voluntarily quit treatment the second time too sick to continue.
3rd treatment was Telepravir study:
1) Began treatment 1-9-2009, ended early 8-16-2009 after 8-months
due to hospitalization for Pancreatitis caused by the Interferon.
2) SVR at 6-months post treatment
3) Will test again in August at 6-months post treatment to see
results. Hope I'm still SVR!
Telepravir ROCKS!
Joey
I really do hope telaprevir does rock, so many people are counting on it. Goodluck with your SVR !