7002065 tn?1443073614

does interferon destroyed my soul?

Hi, I did take IFN alpha together with sovaldi for 12 weeks. That was 3 months ago. I cleared the virus. My ability to focus and for example play guitar is totally wrecked. I was so happy before treatment. Now I can't properly talk. I feel like I lost 50 points lent IQ.
I'm only 25 and I'm about to kill myself if my soul doesn't comes back. I don't want to live in this shell tx left behind... Sad
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Avatar universal
Hey, Frank!  What a great post.  Only thing I wanted to say, is that at least 2 of addressed the impotence, telling him it was temporary.  I guess that is not a guy's perspective, which must see the problem differently,  but it does go away.  I am glad you brought that out.  Coming from a man, that will carry more weight.

You bring a wonderful perspective to this because you have really been there.  I had no idea before joining this Forum that they were treating w/INF for souch long times!

Jonas:  Love the idea of the name change, and am glad to see that you are trying to work with the diet.

To both of you have a great day tomorrow, and keep on keeping on.  Hugs to both,  Pat
Helpful - 0
253566 tn?1219679699
Hi Jonas,

How are you today? The weather is really changing here in Pennsylvania! We had great nice weather... not too hot or cold but it is cold and raining now!!!

Many of us may be confused by your exactly history. I don't want you to feel uncomfortable but we can only help you if we know exact details of what is going on.

If you feel comfortable can you give us a bit of your medical issues before treatment and then the exact dates you treated. What other meds were you on when you treated?

Others have asked if you were within the hospital/lockup/house during treatment before/during treatment.

What medications are you currently being treated with? No one commented on your complaint of impotency which I found alarming! I became impotent when I first started anti-depressants but after some time it cleared up so it is important for us to know what other medications you are on now.

Again, I don't want you to feel uncomfortable but please know that we are not here to judge at all. I don't know what it is like in Germany but in the USA most Liver specialist will not even ask a patient how they think they got HepC. They are not interested! The docs treating HepC patients don't care if they were drug users, prostitutes, nurses, lawyers, etc.

We care even less here. We have had discussions with family members with brothers in prisons dying from HepC and helped them get treatment! We are very passionate about helping everyone no matter the situation. but we do need to know whatever is necessary to help the person who has reached out for help.

I am writing this, and maybe it is just me, but I feel a bit, um, not sure what the best word is... maybe frustrated...

for example: many have written about what kind of diet is best but you continue to ask about what kind of diet??? and this is just after I suggest that you re-read your very long post!

Of course, this makes me think that you have difficulty focussing! or some problems with memory... but you have already pointed that out... I am sure that you have a notebook feature on your computer so you have to start using it and copy paste the most important POSITIVE things such as diet tips!

This is another thing about your living situation I and maybe others don't understand. I can go to my GP and ask to speak with a dietician. They can set up a weekly diet for whatever situation I or they think is best. I think you must have the same thing available in the hospital near your house... but since you have not been 100% clear about the situation I am not sure...

"i have a question regarding THC. THC is sometimes used by people with MS (Autoimmune) and it does also help with post interferon symptoms. (i tested it) "
AGAIN, very FRUSTRATING! Where did this come from? Many have posted treatments that have been studied and worked LDN and now you come up with THC! With your own testing!!! btw, have you been diagnosed with PIS? or MS? I think I would stick with the plan to try to reduce inflammation within your system - which was the plan the other day. OK?

"my failure is that i orient myself on the worst case posts"

Excellent! Now what are you going to do about this? Again my suggestion would be to use a notebook app or just a paper notebook and write down some of the positive points of the writings in this and other threads!

OH, and maybe another GREAT idea would be to change your ID on here to looking to the future type name!!!

I do hope you take this posting very serious.
your friend, frank
Helpful - 0
Avatar universal
I was going to say pretty much what Pooh said, except I would have said 'type in liver friendly diet' in the box and search from there. (i am not nealy as computer savvy as most folks on here : -) ).

Basically, the diet consists on all fresh fruits and veggies (cooking them is okay), but Reduce or leave out all together, the sugar and salt.  Good fats include yogurt, cottage cheese, cream cheese, avocado, nuts, there are others but I have to go look atthe lists from time to time myself).  Reduce or cut out red meat.  Try to eat chicken, turkey, wellcooked, and the same with fish - cold water fish are best.  There are grains, cereals to include andnot include, but since I don't eat much of that I can't remember which ones.  I do eat a lot of fresh, unsalted almonds.

Good luck, you have already seen a difference in the 2 or 3 times you have tried it.  That should tell you to keep on keeping on.  Go for it!  You will feel much better!   : -).  Pat
Helpful - 0
1815939 tn?1377991799
You are computer savvy. Just google 'healthy balanced diet' and see what comes up.

Here is a link to start you off:


People have been very understanding and patient and listened to you and given you excellent advice and suggestions. People have tried to help you and steer you in the right direction. But you cannot expect people on the forum to look everything up for you when you can do it yourself. Diet information, as well as a lot of other information, is at your fingertips. All you need to do is to do an internet search. You need to take the initiative and do some of the research yourself, focus on the positive, and make positive changes in your life.

Helpful - 0
7002065 tn?1443073614
my failure is that i orient myself on the worst case posts, i started my diet today. thing is, i don't know what to put in the diet. i ate about 4 apples today. made a huge difference. well,  and i ate fries. with tomato ketchup.
what would you suggest for the diet patra?

big hugs from this place!! !!
Helpful - 0
Avatar universal
Good morning -- well,I guess it still is morning here, but probably not there.  I have no opinion on the marijuana issue - have never even used it to know.  But surely, 12 weeks on INF is not the same as what Frank did with the, I believe, 72 weeks.  

Don't  overlook the obvious and easy!!  Get your diet worked out with the person in charge of meals in your house!   Drink sufficient water!  Go for walks!  Think about other things than your problems -  as we have all said focusing on those just stresses you out and that is NOT helping you get past this post EOT problem.  Do the things that will help clear the meds from your system.

We would not keep stressing these things IF WE DID NOT KNOW THAT THEY WORK, and IF WE DIDN'T CARE ABOUT HOW YOU ARE DOING.

Enough lecture for today.

My husband goes on Facebook and You Tube every day and finds happy, cheerful, funny things and shows them to me.  You can do that yourself as I am sure your computer skills are far better than mine (well I can turn it off and on now without help Hehehe!)

Have a GOOD, POSITIVE, healing day!!  Hugs and smiles,  Pat
Helpful - 0
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