Aa
are my symtoms normal
hi its the newbie again, i was just wondering is it normal to have pain in the area my livers at, also im very tired grumpy, sweaty and generally feel terrible,i havnt even started tx yet [next week]ive felt like this when i first became infected .i was just wondering is this normal,i have hcv 9 years geno type 1 stage 2 liver damage,i have slight swelling at the centre of my rib cage just to my right, i do have gastric problems,and an undiagnosed hiatus hernia i say undiagnosed,when i went for my biopsy and explained swelling they checked it breifly and said it was a hernia,my mother had the same and symtoms are the same,any help on this, thanx
i pray for us all every night.
i pray for us all every night.
Regarding the joke remark, I was only referring to what pjhep80 commented about herself...
I totally agree with you, that it is no joking matter, especially depression.
The problem we have been discussing is more the fatigue and brain fog before tx, as almanu and myself have not started with tx and are experiencing these symptoms. They are very annoying and my doc had checked everything from blood pressure, anemia to hormones and found nothing wrong with me at all. Until he found the hep c, so I am pretty sure that they are hep c symptoms, in my personal case. And they are all identical with the typical hep c symptoms mentioned in all the medical information.
Of course, every one should check out their own health, one cannot generalize.
Thank you for mentioning clinical depression during. I agree that it is something one really needs to watch out for. I guess one cannot know how the chemical reactions of tx are gonna affect ones psyche while on tx, especially if one is depressed before starting tx. I've gone through a lot of tough periods in my life, but have never had a depression from going through it, so I hope the meds won't do that to me. But, thanks for the reminder.
It is great to have this forum, where ppl are so kind and knowledgeable about the disease and tx.
The best to you too, Marcia
I totally agree with you, that it is no joking matter, especially depression.
The problem we have been discussing is more the fatigue and brain fog before tx, as almanu and myself have not started with tx and are experiencing these symptoms. They are very annoying and my doc had checked everything from blood pressure, anemia to hormones and found nothing wrong with me at all. Until he found the hep c, so I am pretty sure that they are hep c symptoms, in my personal case. And they are all identical with the typical hep c symptoms mentioned in all the medical information.
Of course, every one should check out their own health, one cannot generalize.
Thank you for mentioning clinical depression during. I agree that it is something one really needs to watch out for. I guess one cannot know how the chemical reactions of tx are gonna affect ones psyche while on tx, especially if one is depressed before starting tx. I've gone through a lot of tough periods in my life, but have never had a depression from going through it, so I hope the meds won't do that to me. But, thanks for the reminder.
It is great to have this forum, where ppl are so kind and knowledgeable about the disease and tx.
The best to you too, Marcia
Guys,
My doctor had me go on Paxill a month before I started treatment to offset any problems I might develop because of the interferon (which you know and I'm sure they explainned to you can cause MAJOR problems with depression). It was one of the best moves I made. Not only did it help me not get depressed or anxious but it turned out I probably needed it all of my life!
You might think about speaking to your doctor and taking it.
I had geno 1A and geno 1B - 72 weeks of treatment and have been SVR for 16 months. Anything you need to do to get through this treatment is worth it.
Al - 9 years is a very short time to have hep. I had no idea I have it and when I was diagnosed I probably had it for 25 years. I was already stage 3 and never had a sign or symptom of it in my entire life. Everybody is very different. I did develop autoimmune hypothyroidsm as a result of treatment but otherwise.........doing fine finally!
Good luck.
PS Being a newbie the best thing you can do is to ask questions. The more knowledge you have the better to beat this disease. Make sure you get a copy of every single test result and keep it in a binder. That will help you so much later.
My doctor had me go on Paxill a month before I started treatment to offset any problems I might develop because of the interferon (which you know and I'm sure they explainned to you can cause MAJOR problems with depression). It was one of the best moves I made. Not only did it help me not get depressed or anxious but it turned out I probably needed it all of my life!
You might think about speaking to your doctor and taking it.
I had geno 1A and geno 1B - 72 weeks of treatment and have been SVR for 16 months. Anything you need to do to get through this treatment is worth it.
Al - 9 years is a very short time to have hep. I had no idea I have it and when I was diagnosed I probably had it for 25 years. I was already stage 3 and never had a sign or symptom of it in my entire life. Everybody is very different. I did develop autoimmune hypothyroidsm as a result of treatment but otherwise.........doing fine finally!
Good luck.
PS Being a newbie the best thing you can do is to ask questions. The more knowledge you have the better to beat this disease. Make sure you get a copy of every single test result and keep it in a binder. That will help you so much later.
These symptoms can just as easily be symptoms of clinical depression or hypothyroidism. As far as depression being "just in the head". Most of our life experiences are in our heads. That doesn't make it any less real or painful! The fatigue of clinical depression can make the fatigue and brain fog of tx seem relatively easy. Remember, clinical depression is so painful it causes many people to take their own lives. This is something to be take very seriously! It is not a joke matter or something to be taken lightly!!!
I'm sure there are other diseases with these symptoms also. That is why it is important to see a good knowledgeable doc and have appropreiate tests done.
Best of luck!
Let us know what happens.
Hector
I'm sure there are other diseases with these symptoms also. That is why it is important to see a good knowledgeable doc and have appropreiate tests done.
Best of luck!
Let us know what happens.
Hector
I wished that was the case. And that it was just in the head...
Unfortunately I had all these symptoms before I found out that I had hep c. Or maybe I should say that fortunately I did, if not I wouldn't have gone to my doctor and wouldn't have found out that I had hep c.
But it was a good joke, anyways.
Unfortunately I had all these symptoms before I found out that I had hep c. Or maybe I should say that fortunately I did, if not I wouldn't have gone to my doctor and wouldn't have found out that I had hep c.
But it was a good joke, anyways.
maby all the ibs and stomach pains and gastro problems is because we are all worrying ourselves to death about having this not being able to get rid of it and dying of liver failure
im thinking thats my problem anyways...
lol
im thinking thats my problem anyways...
lol
I was diagnosed 1 month ago. I don't have the results of my genotype, yet and have not had a biopsy. All I can say that until 2 months ago I was healthy and had a lot of energy. Than from one day to the other I had extreme fatigue and have been feeling like that almost everyday. Sometimes I have bouts of utter exhaustion. I can get very irritated over small things, as they sometimes take on huge proportions. Like having to get something out of a cupboard and it's stuck. It's like the threshold of patience is gotten really small. I have had night sweats for years now. I am also feeling generally terrible, I mean physically.
From what I've read these are very typical symptoms when having hep c. Of course one can have the same symptoms from something else, too.
I have been digging into medical info on the relevance of symptoms and progress of the disease. You can have cirrhosis and be completely asymptomatic and you can have light fibrosis and have lots of symptoms, so you don't have to be very ill to feel ill and you can feel nothing and be really ill. So only a biopsy can tell.
Since you had you hernia diagnosed when you had the biopsy, i would talk to your doctor about it. See what he thinks you should do. Also about the pain, some people develop pain around the site of the biopsy after having had one. So that could be from the biopsy.
IBS (Irritable Bowel Syndrome) often accompanies hep c. I've had it for years now.
My prayers are with you, too.
Marcia
From what I've read these are very typical symptoms when having hep c. Of course one can have the same symptoms from something else, too.
I have been digging into medical info on the relevance of symptoms and progress of the disease. You can have cirrhosis and be completely asymptomatic and you can have light fibrosis and have lots of symptoms, so you don't have to be very ill to feel ill and you can feel nothing and be really ill. So only a biopsy can tell.
Since you had you hernia diagnosed when you had the biopsy, i would talk to your doctor about it. See what he thinks you should do. Also about the pain, some people develop pain around the site of the biopsy after having had one. So that could be from the biopsy.
IBS (Irritable Bowel Syndrome) often accompanies hep c. I've had it for years now.
My prayers are with you, too.
Marcia
Have you had your gall bladder checked?
I am not a doctor but I can give you my 2 cents worth...
Pain in the liver area? There are no nerves in your liver (remember your biopsy? Otherwise it would hurt when they take those samples. YIKES!!!) so not sure how you would you feel pain?
"Tired, grumpy, sweaty and generally feel terrible". I have compensated cirrhosis and feel as good as I ever felt. (Which can be a problem because you don't know how damaged your liver really is until I had a biopsy). How at stage 2 you could feel ill from liver disease I don't know. There are many illness that have the general symptoms you mention.
9 years is a short time with HCV. It usually takes decades for your liver to progress to cirrhosis. And at that point it is shrinking in size and losing its functionality. It get really nasty looking too. No more nice, shining, nutmeg color.
Stage 0 indicates no fibrosis
stage 1 indicates enlargement of the portal areas by fibrosis
stage 2 indicates fibrosis extending out from the portal areas with rare bridges between portal areas
stage 3 indicates many bridges of fibrosis that link up portal and central areas of the liver
stage 4 indicates cirrhosis.
I wish you all the best with your treatment.
I hope you achieve SVR!
Hector
Pain in the liver area? There are no nerves in your liver (remember your biopsy? Otherwise it would hurt when they take those samples. YIKES!!!) so not sure how you would you feel pain?
"Tired, grumpy, sweaty and generally feel terrible". I have compensated cirrhosis and feel as good as I ever felt. (Which can be a problem because you don't know how damaged your liver really is until I had a biopsy). How at stage 2 you could feel ill from liver disease I don't know. There are many illness that have the general symptoms you mention.
9 years is a short time with HCV. It usually takes decades for your liver to progress to cirrhosis. And at that point it is shrinking in size and losing its functionality. It get really nasty looking too. No more nice, shining, nutmeg color.
Stage 0 indicates no fibrosis
stage 1 indicates enlargement of the portal areas by fibrosis
stage 2 indicates fibrosis extending out from the portal areas with rare bridges between portal areas
stage 3 indicates many bridges of fibrosis that link up portal and central areas of the liver
stage 4 indicates cirrhosis.
I wish you all the best with your treatment.
I hope you achieve SVR!
Hector
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